Canada: Petition: ME/CFS research funding, closes Sept 10, 2021

"We, the undersigned, Citizens of Canada, call upon the Government of Canada to:
1. Set Aside $50 Million Dollars for ME/CFS biomedical research;
2. Commission the Chief Statistician of Canada, Anil Arora, to study the economic impact of ME/CFS according to the Canadian Consensus Criteria; and
3. Work with the provinces to set aside funding to rapidly accelerate a diagnostic test for ME/CFS so that patients can be rapidly diagnosed."

https://petitions.ourcommons.ca/en/Petition/Details?Petition=e-3391

 

Thank you for posting this @Andy

- $280,000 per year, or 48 cents per Canadian pwME per year.
- that's 28.17 pence per Canadian with ME
- government inertia.
- in 2019 the Canadian government, with some fanfare announced $1.4 million in research funding for ME.
-along with this came government officials
admonishing medical practitioners to treat ME as the serious biomedical disease it is.

Somehow less than a half dollar a year per pwME, doesn't seem to suggest the Canadian government considers ME serious
at all. And, with little to no physician guidance coming from the federal government, the old message to the health care community hasn't really changed.

 

Unfortunately, with all of the money that is going into "Covid" to keep people and businesses afloat, I can't see there being any money for ME research for the foreseeable future.

 

Yes, @TigerLilea I know what you mean -

But advocates and others who may not describe themselves as such could always write, petition, educate their government reps etc.
Of course we're hoping discoveries from COVID research might help the ME community.
Especially if COVID continues to be seen as some of form of ME.
(Even though there are differences as well.)

 

Open letter to party leaders on M.E.

http://caledoncitizen.com/?p=35326

 

Excellent, first rate, letter. However, Caledon is a rural town, prosperous, summer cottage country for the well to do. Maybe they will see the letter and wake up. A great pity a letter like this does not appear in the Toronto Star or the Montreal Gazette.