me/cfs

  1. ahimsa

    USA: News from Patient-Led Research Collaborative

    I wasn't sure where to put the news about this group's July 9 webinar. So I created a new thread for the Patient-Led Research Fund organization. Please move this post if it belongs elsewhere. Website for Patient-Led Research Collaborative Linktree for Patient-Led Research Collaborative...
  2. forestglip

    [Retracted] Causal Relationship Between Diet, Lipids, Immune Cells, and [CFS]: A Two-Mediation Mendelian Randomization Study, 2025, Li et al

    This article has been retracted, see post #31. ---------------------------------------------------------- Causal Relationship Between Diet, Lipids, Immune Cells, and Chronic Fatigue Syndrome: A Two-Mediation Mendelian Randomization Study Jixu Li, Qi Qin, Yiran Zhu, Yulu Qian, Jialu Yin, Xin...
  3. Hutan

    Comparing gene expression patterns in CFS and GWI using the Kerr ME/CFS Platform, 2011, Garcia, Kerr, Fletcher, Sol, Klimas

    2011 study Authors Garcia L, Kerr J, Fletcher MA, Sol C, Klimas N. Institution University of Miami Miller School of Medicine and Miami VA Medical Center, Miami, Florida, USA, and St George’s University of London, London, UK ]Funding The study was funded by a research grant ME Research UK...
  4. Nightsong

    Neurodevelopment Genes Encoding Olduvai Domains Link Myalgic Encephalomyelitis to Neuropsychiatric Disorders, 2025, Lidbury et al

    Abstract: Background/Objectives: The aetiology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic and severe debilitating disease with a complex phenotype, remains elusive. Associations with infectious diseases and autoimmune and neuropsychiatric disorders have been...
  5. forestglip

    Thesis Investigating liminality in the lived experiences of young adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), 2025, Toller

    Investigating liminality in the lived experiences of young adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) Toller, L University of Exeter PhD in Sociology [Line breaks added] Abstract This study investigates the lived experiences of young adults (aged 18-25) with...
  6. forestglip

    The pivotal role of central sensitization in long COVID, fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Goldenberg

    The pivotal role of central sensitization in long COVID, fibromyalgia and myalgic encephalomyelitis/chronic fatigue syndrome Don L. Goldenberg Introduction Long COVID is a condition characterized by persistent unexplained symptoms following COVID-19 infection. These symptoms are not related to...
  7. John Mac

    Preprint Hypothesis: A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of ME/CFS and Long COVID, 2025, Jeff Wood, Kaufman et al.

    Abstract The underlying pathologies driving post-acute infectious syndromes (e.g. myalgic encephalomyelitis / chronic fatigue syndrome, long COVID, etc) remain poorly understood. Given the extreme burden these illnesses impose on suffers, and the dramatic increase in cases following the COVID-19...
  8. forestglip

    The Implications and Predictability of Sleep Reversal for People with [ME/CFS]: A Machine Learning Approach, 2025, Dietrich, Jason et al

    The Implications and Predictability of Sleep Reversal for People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Machine Learning Approach Meghan P. Dietrich, Raam Pravin, Jacob Furst, Leonard A. Jason Background/Objectives: Impaired sleep is one of the core symptoms of myalgic...
  9. forestglip

    Trial Report Low Dose Rapamycin Alleviates Clinical Symptoms of Fatigue and PEM in ME/CFS Patients via Improvement of Autophagy, 2025, Ruan et al

    Now published, see post #37 ---------------------------------------------- Low Dose Rapamycin Alleviates Clinical Symptoms of Fatigue and PEM in ME/CFS Patients via Improvement of Autophagy Brian T. Ruan, Sarojini Bulbule, Amy Reyes, Bela Chheda, Lucinda Bateman, Jennifer Bell, Braydon...
  10. ahimsa

    "Emergency departments aren’t trained for Long COVID — and patients are paying the price" (The Sick Times)

    [The headline says Long Covid, so I put it in this forum, but this article also applies to ME/CFS, and probably many more chronic illnesses that aren't well known by the staff in hospital emergency rooms.] Emergency departments aren’t trained for Long COVID — and patients are paying the price
  11. John Mac

    Review Evaluating Pacing Therapy versus GET for improving fatigue, pain, and quality of life in adults with ME/CFS, 2025, Cooper

    Full title: Evaluating Pacing Therapy (PT) versus Graded Exercise Therapy (GET) for improving fatigue, pain, and quality of life in adults with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Systematic Review...
  12. John Mac

    Trial Report Effect on QoL of Therapeutic Plasmapheresis and Intravenous Immunoglobulins on a Population of ME/CFS Patients, 2025, Oesch-Regeni

    Full title: The Effect on Quality of Life of Therapeutic Plasmapheresis and Intravenous Immunoglobulins on a Population of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Elevated β-Adrenergic and M3-Muscarinic Receptor Antibodies—A Pilot Study...
  13. Nightsong

    A Signal for Voice and Speech Abnormalities in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2025, Grach et al

    Now published - see post #17 Abstract: Background/Objectives: Patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may report abnormalities in voice and speech; however, no formal research has been conducted in this area. Methods: An online mixed-methods survey was...
  14. forestglip

    Thesis Concept Campaign: Raising Awareness of ME/CFS Among Unaffected Audiences, 2025, Domińczuk

    Concept Campaign: Raising Awareness of ME/CFS Among Unaffected Audiences Iga Domińczuk LAB University of Applied Sciences Institute of Design and Fine Arts Bachelor of Culture and Arts, Packaging and Brand Design Abstract Visual communication has the power to challenge stigmas and public...
  15. forestglip

    Review Effectiveness of Exercise-Based Rehabilitation in Chronic Fatigue Syndrome: A Systematic Review and Meta-analysis, 2025, Martin et al

    Effectiveness of Exercise-Based Rehabilitation in Chronic Fatigue Syndrome: A Systematic Review and Meta-analysis Antonio De Vera Martín, Alberto Díaz Salazar, Isidro Miguel Martín Pérez, Sebastián Eustaquio Martín Pérez [Line breaks added] Abstract Chronic Fatigue Syndrome is a complex and...
  16. Nightsong

    Cerebrospinal fluid immune phenotyping reveals distinct immunotypes of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Bastos et al

    Abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex heterogeneous multiorgan disease that can have severe impact on individuals' quality of life. Diagnosis of ME/CFS is based on symptom presentation, and a significant goal for the field is to establish meaningful...
  17. John Mac

    Evaluating the Causal Role of Genetically Inferred Immune Cells and Inflammatory Cytokines on ME/CFS, 2025, Duan et al

    https://www.mdpi.com/2227-9059/13/5/1200 Abstract Background/Objectives: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multifaceted and diverse disorder with an ambiguous etiology. Recent evidence indicates that immune system impairment and inflammatory mechanisms are pivotal...
  18. ahimsa

    Two Households, Both Alike in Indignity: An Interview with Anne Ursu (Literary Hub)

    From Literary Hub: Two Households, Both Alike in Indignity: An Interview with Anne Ursu Anne Ursu is the author of Not Quite a Ghost, a middle grade novel about "an eleven-year-old, Violet, who comes down with a post-viral illness" It's hard to pick a section to quote, but here's one that...
  19. Nightsong

    Thesis Molecular Epidemiologic Studies of Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), 2025, Kumar

    [ Embargoed PhD thesis; abstract only. ] Abstract Background: Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) is a disabling multisystem complex disorder with no known etiology or approved treatment. Our studies aimed to assess the link between ME/CFS and autoimmune disease (AID)...
  20. forestglip

    Living with myalgic encephalomyelitis/chronic fatigue syndrome: Experiences of occupational disruption for adults in Australia, 2021, Bartlett et al

    Living with myalgic encephalomyelitis/chronic fatigue syndrome: Experiences of occupational disruption for adults in Australia Chelsea Bartlett, Julie L Hughes, and Laura Miller First published online May 27, 2021 Introduction Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a...
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