me/cfs

  1. Sly Saint

    IiMER : Caring for Someone with Severe ME

    https://www.investinme.org/20CNY/20CNY08adv.shtml
  2. Andy

    Understanding the economic impact of myalgic encephalomyelitis/chronic fatigue syndrome in Ireland: a qualitative study, 2020, Cullinan, Kindlon et al

    @Tom Kindlon is one of the authors. Open access, https://hrbopenresearch.org/articles/3-88/v1
  3. Andy

    Perfectionism, depression and anxiety in chronic fatigue syndrome: A systematic review, 2020, Cherry et al

    Open access, https://www.sciencedirect.com/science/article/pii/S0022399920308849
  4. T

    Fibromyalgia and Chronic Fatigue Syndrome, 2020, Baloh

  5. Dolphin

    Amantadine and L-carnitine treatment of Chronic Fatigue Syndrome, 1997, Plioplys et al

    Copied from this thread https://pubmed.ncbi.nlm.nih.gov/9018019/ Amantadine and L-carnitine treatment of Chronic Fatigue Syndrome A V Plioplys 1, S Plioplys Neurobiology 1997;35(1):16-23. doi: 10.1159/000119325. PMID: 9018019 DOI: 10.1159/000119325 Abstract Carnitine is essential for...
  6. M

    Use of sildenafil (viagra) to alter fatigue, functional status and impaired cerebral blood flow in ... CFS, 2020, Friedman (Pfizer)

    Split from this thread: Exercise Intolerance in Cystic Fibrosis Importance of Skeletal Muscle, 2020, Harris et al Use of sildenafil (Viagra) to alter fatigue, functional status and impaired cerebral blood flow in patients with CFS...
  7. John Mac

    A Literature Review of GP Knowledge and Understanding of ME/CFS: A Report from the Socioeconomics Working Group of EUROMENE, 2020, Pheby et al

    Full title: A Literature Review of GP Knowledge and Understanding of ME/CFS: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE) https://www.preprints.org/manuscript/202011.0735/v1
  8. Trish

    Role of mitochondria, oxidative stress and the response to antioxidants in ME/CFS: a possible approach to SARS-CoV-2 ‘long-haulers’?, 2020, Tate et al

    Review article: Role of mitochondria, oxidative stress and the response to antioxidants in myalgic encephalomyelitis/chronic fatigue syndrome: a possible approach to SARS-CoV-2 ‘long-haulers’? EmilyWood, Katherine H.Hall, WarrenTate (University of Otago, New Zealand)...
  9. Andy

    Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials: an in-depth look at exercise therapy for CFS, 2020,Tack

    Paywall, https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1848262 Sci hub. no access at time of posting. ETA: Corrected access details.
  10. Sly Saint

    Medicine Journal : Chronic fatigue syndrome - Stephen Perry 2020

    https://www.medicinejournal.co.uk/article/S1357-3039(20)30229-2/pdf https://scihubtw.tw/10.1016/j.mpmed.2020.09.007 Psychiatric aspects of general medicine| Volume 48, ISSUE 12, P765-768, December 01, 2020 fish and chips paper.
  11. Andy

    Fibromyalgia and Chronic Fatigue Syndrome in the Age of COVID-19, 2020, Mohabbat et al

    Open access, https://mcpiqojournal.org/article/S2542-4548(20)30153-3/fulltext
  12. Sly Saint

    Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population: Kitami, Fukuda et al 2020

    https://www.nature.com/articles/s41598-020-77105-y
  13. Dx Revision Watch

    The WHO has approved my proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11

    Yesterday, the WHO approved my February 2020 proposal for removal of "Benign" from "Benign myalgic encephalomyelitis" for ICD-11. See thread: Updates on status of ICD-11 and changes to other classification and terminology systems Post #443...
  14. Andy

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    Open access, https://journals.sagepub.com/doi/10.1177/1049732320969395
  15. S

    Profile of circulating microRNAs in Myalgic Encephalomyelitis......(2020)Moreau et al

    Google translated: The Canadian Press MONTREAL - A new test developed by Montreal researchers is expected to improve the diagnosis and treatment of patients with myalgic encephalomyelitis (ME), a condition better known as chronic fatigue syndrome. L'EM is currently diagnosed primarily by...
  16. MSEsperanza

    The difficulties of conducting intervention trials for the treatment of [ME/CFS]: Expert testimony to NICE guidelines committee by Jonathan Edwards

    Thought it could be helpful to have a thread on Jonathan's expert testimony for any further use and citation. Edwards, Jonathan CW (2020), The difficulties of conducting intervention trials for the treatment of myalgic encephalomyelitis/chronic fatigue syndrome: Expert testimony presented to...
  17. mango

    Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

    The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation"). Comments can be submitted through a form on their website. Deadline is Friday, 4 December 2020. Anna lausuntosi Krooninen väsymysoireyhtymä (ME/CFS) Hyvä käytäntö...
  18. Simon M

    USA: INSPIRE Innovative Support for Patients with Covid-19 Registry (ME/CFS outcome measure)

    Post copied from Attitudes of incoming US politicians to ME/CFS and post-Covid 19 illness Details below. Basically, they aim to recruit a lot of people with a positive diagnosis for SARS-COV2 and follow them for 18 months, with ME/CFS as the primary outcome. (I think that's quite a strong...
  19. John Mac

    Jo Daniels (on CBT, ME/CFS and Long Covid)

    Long Covid: what teachers and pupils need to know https://www.tes.com/news/long-covid-what-teachers-and-pupils-need-know (Split thread: Jo Daniels is quoted, defending CBT for ME/CFS and for Longcovid. Her quotes come towards the end of the article.)
  20. T

    Symptoms, function and quality of life in myalgic encephalomyelitis/CFS: an Australian based, cross-sectional study, 2019, Donnelly

    From: Dr. Marc-Alexander Fluks B.Sc. Thesis Kate Donnelly Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/ https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf
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