me/cfs

  1. John Mac

    Re-analysis of genetic risks for Chronic Fatigue Syndrome from 23andMe data finds few remain, Bedford et al, 2021

    Preprint https://www.medrxiv.org/content/10.1101/2020.10.27.20220939v1 Threads on genetic risks listed here: https://www.s4me.info/threads/evidence-for-a-genetic-component-in-me-cfs-discussion-thread.16117/#post-277072
    • John Mac
    • Thread
    • 23andme bastian greshake tzovaras bedford genetics me/cfs nancy klimas snp
    • Replies: 9
    • Forum: ME/CFS research
  2. Andy

    Effect of disease duration in a randomized Phase III trial of rintatolimod, an immune modulator for [ME/CFS], 2020, Mitchell et al

    Rintatolimod = Ampligen Open access, https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0240403
    • Andy
    • Thread
    • 2020 ampligen me/cfs paper rintatolimod
    • Replies: 16
    • Forum: ME/CFS research
  3. Sly Saint

    NZ: The 2020 Brain Health Research Centre Lecture - Professor Warren Tate - 23 November 2020

    Split from the NZ News thread The 2020 Brain Health Research Centre Lecture Emeritus Professor Warren Tate will present the 2020 BHRC Lecture, entitled "Understanding the biological basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and its sudden increase in public profile...
  4. Andy

    The negative impact of the psychiatric model of chronic fatigue syndrome on doctors’ understanding and management of the illness, 2020, Geraghty

    Paywall, https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1834295 Sci hub, https://sci-hub.se/10.1080/21641846.2020.1834295
  5. Sly Saint

    Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in RCTs: 2020, Do-Young Kim et al

    Systematic Review of Primary Outcome Measurements for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in Randomized Controlled Trials https://www.mdpi.com/2077-0383/9/11/3463 eta:
    • Sly Saint
    • Thread
    • 2020 cfq cis do-young kim korea me/cfs measurement paper review sf-36
    • Replies: 3
    • Forum: ME/CFS research
  6. Sly Saint

    Therapists’ perceptions of barriers and facilitators to uptake and engagement with therapy in long‐term conditions - Oct 2020 Moss-Morris et al

    https://bpspsychub.onlinelibrary.wiley.com/doi/10.1111/bjhp.12475 (only mentions 'chronic fatigue' but also LTC (long term conditions) and MUS) eta: All authors declare no conflict of interest.
  7. Andy

    Effectiveness a herbal medicine (Sipjeondaebo-tang) on adults with chronic fatigue syndrome, 2020, Shin et al

    Full title: Effectiveness a herbal medicine (Sipjeondaebo-tang) on adults with chronic fatigue syndrome: A randomized, double-blind, placebo-controlled trial Open access, https://www.sciencedirect.com/science/article/pii/S2213422020303000
    • Andy
    • Thread
    • astragalus ginseng herbal medicine korea me/cfs shin
    • Replies: 3
    • Forum: Other treatments
  8. Jonathan Edwards

    Does the new ME/CFS research of BPS proponents affect anything much now?

    This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid I agree with Andy that this is bonkers, irrespective of who is involved in what. Crawley's research does not actually do that much harm, I suspect. It is a symptom of...
  9. Dolphin

    Impact of Q-fever fatigue syndrome on patients’ work status, 2020, Reukers et al

    Free full text: https://academic.oup.com/occmed/advance-article/doi/10.1093/occmed/kqaa166/5929827 Impact of Q-fever fatigue syndrome on patients’ work status D F M Reukers, J A F van Loenhout, I Roof, T F Senden, S P Keijmel, C P Bleeker-Rovers, C H M van Jaarsveld, J L A Hautvast, K van der...
  10. John Mac

    The Lonely, Isolating, and Alienating Implications of ME/CFS. Boulazreg & Rokach. 2020

    Full title: The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2227-9032/8/4/413
  11. John Mac

    ME/CFS European Comparison Survey - SmartSurvey. Professor Derek Pheby 2020

    https://www.smartsurvey.co.uk/s/GX4HMU/ I took the survey and it did only take 10 minutes. Wanted to know your symptoms, medications and treatments. https://me-pedia.org/wiki/Derek_Pheby
  12. Andy

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    https://www.bacme.info/sites/bacme.info/files/BACME%20Position%20Paper%20on%20the%20Management%20of%20ME-CFS%20October%202020.pdf Available directly from their home page, https://www.bacme.info/ My guess (I have no insider knowledge) is that this gives a strong indication of how the revised...
    • Andy
    • Thread
    • 2020 bacme dysregulation guidelines me/cfs united kingdom
    • Replies: 144
    • Forum: General ME/CFS news
  13. Dolphin

    Oxidative stress caused by a dysregulated Wnt/β-catenin signalling pathway... abnormal placenta ... in pregnant mice with CFS, 2020, Zhao et al

    https://www.cambridge.org/core/journals/zygote/article/oxidative-stress-caused-by-a-dysregulated-wntcatenin-signalling-pathway-is-involved-in-abnormal-placenta-formation-in-pregnant-mice-with-chronic-fatigue-syndrome/732B77AB5F851B50AC2886C97DE5D7F2 Oxidative stress caused by a dysregulated...
  14. Sly Saint

    The Effect of CBT, GET and Pacing Treatments on ME/CFS Symptoms: Analysis of a Patient Survey compared against Secondary Surveys - 2017 Geraghty et al

    https://sapc.ac.uk/conference/2017/abstract/effect-of-cbt-get-and-pacing-treatments-mecfs-symptoms-analysis-of-patient
  15. JemPD

    Does anyone have a list of common ME symptoms please?

    I'm trying to track my activity & symptoms to see if i can pace a bit better after a recent unexpected deterioration. I know it will sound daft to non sufferersm but i cant remember them all - which is a symptom in itself. I know i have seen many lists of symptoms in the poosibility of ME after...
  16. John Mac

    Cardiac Dimensions and Function Are Not Altered among Females with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Iversen et al. 2020

    https://www.mdpi.com/2227-9032/8/4/406
    • John Mac
    • Thread
    • 2020 cardiac function cardiology echocardiography iverson me/cfs norway paper
    • Replies: 7
    • Forum: ME/CFS research
  17. Dolphin

    Chronic Fatigue Syndrome the roles of perfectionism and metacognition in co-morbid depression and anxiety, 2020, Wright (D.Clin.Psy.)

    Can be downloaded for free at these links: https://livrepository.liverpool.ac.uk/3100418/1/201310670_June2020.pdf https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.815650
  18. J

    Potential Role of Neuroactive Tryptophan Metabolites in Central Fatigue: Establishment of the Fatigue Circuit, 2020, Yamashita

    https://journals.sagepub.com/doi/full/10.1177/1178646920936279
  19. Andy

    Video: Energy Management in Chronic Illness: Practical Tips, pts 1&2 [Workwell and Whittemore Peterson Institute]

    https://youtu.be/FqoIf11mY8Q https://youtu.be/NWLu1IfYYH0 ______________________ See also this thread on another Workwell team talk at about the same time: Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm
    • Andy
    • Thread
    • 2020 cpet heart rate me/cfs pacing staci stevens video whittemore peterson institute workwell
    • Replies: 4
    • Forum: Resources
  20. Kalliope

    News from Australia

    ABC - Finding hope for those living with Chronic Fatigue Syndrome - interview with Sue Collins, dr. Heidi Nicholl and prof. Ken Walder Imagine going for a short walk one day and then the next morning you can't even get out of bed. That's what life is like for some people living with what's...
    • Kalliope
    • Thread
    • 2020 australia long covid me/cfs regional thread video
    • Replies: 465
    • Forum: Regional news
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