me/cfs

This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid I agree with Andy that this is bonkers, irrespective of who is involved in what. Crawley's research does not actually do that much harm, I suspect. It is a symptom of...

Free full text: https://academic.oup.com/occmed/advance-article/doi/10.1093/occmed/kqaa166/5929827 Impact of Q-fever fatigue syndrome on patients’ work status D F M Reukers, J A F van Loenhout, I Roof, T F Senden, S P Keijmel, C P Bleeker-Rovers, C H M van Jaarsveld, J L A Hautvast, K van der...

Full title: The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2227-9032/8/4/413

https://www.smartsurvey.co.uk/s/GX4HMU/ I took the survey and it did only take 10 minutes. Wanted to know your symptoms, medications and treatments. https://me-pedia.org/wiki/Derek_Pheby

https://www.bacme.info/sites/bacme.info/files/BACME%20Position%20Paper%20on%20the%20Management%20of%20ME-CFS%20October%202020.pdf Available directly from their home page, https://www.bacme.info/ My guess (I have no insider knowledge) is that this gives a strong indication of how the revised...

https://www.cambridge.org/core/journals/zygote/article/oxidative-stress-caused-by-a-dysregulated-wntcatenin-signalling-pathway-is-involved-in-abnormal-placenta-formation-in-pregnant-mice-with-chronic-fatigue-syndrome/732B77AB5F851B50AC2886C97DE5D7F2 Oxidative stress caused by a dysregulated...

https://sapc.ac.uk/conference/2017/abstract/effect-of-cbt-get-and-pacing-treatments-mecfs-symptoms-analysis-of-patient

I'm trying to track my activity & symptoms to see if i can pace a bit better after a recent unexpected deterioration. I know it will sound daft to non sufferersm but i cant remember them all - which is a symptom in itself. I know i have seen many lists of symptoms in the poosibility of ME after...

https://www.mdpi.com/2227-9032/8/4/406

Can be downloaded for free at these links: https://livrepository.liverpool.ac.uk/3100418/1/201310670_June2020.pdf https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.815650

https://journals.sagepub.com/doi/full/10.1177/1178646920936279

https://youtu.be/FqoIf11mY8Q https://youtu.be/NWLu1IfYYH0 ______________________ See also this thread on another Workwell team talk at about the same time: Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm

ABC - Finding hope for those living with Chronic Fatigue Syndrome - interview with Sue Collins, dr. Heidi Nicholl and prof. Ken Walder Imagine going for a short walk one day and then the next morning you can't even get out of bed. That's what life is like for some people living with what's...

https://jaxmecfs.com/2020/10/14/webinar-on-scientific-research-on-me-cfs-in-the-age-of-covid-19/

A few years ago, my friend and colleague Steven Lubet, a law professor and scholar at Northwestern University, wrote the following account of the start of his struggle with what was then largely called chronic fatigue syndrome. While his story does not directly relate to current events, Steve’s...

Good intentions regularly lead to terrible outcomes. While researchers’ hearts may be pure, that fact alone does not guarantee that their works will be blessed. In psychology, we sometimes talk about the “just-world fallacy”, the belief that in the end our collective actions will average out...

Split from Possibility of ME or PVFS after COVID-19, Long Covid ******** https://www.bmj.com/content/371/bmj.m3871 Editorials Neuropsychiatric complications of covid-19 BMJ 2020; 371 doi: https://doi.org/10.1136/bmj.m3871 (Published 13 October 2020) Matthew Butler, NIHR academic clinical...

https://psycnet.apa.org/record/2020-69778-001

Cytokine profiling of extracellular vesicles isolated from plasma in myalgic encephalomyelitis/chronic fatigue syndrome: a pilot study Ludovic Giloteaux, Adam O'Neal, Jesús Castro-Marrero, Susan M. Levine & Maureen R. Hanson Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)...

The successful applicants for Australia’s $3m ME/CFS Targeted Call for Research (TCR) have been announced. The successful projects: Professor Sonya Marshall-Gradisnik Griffith University Grant: $1.46m Project title: Ion channel dysfunction in the pathophysiology of Myalgic Encephalomyelitis/...