me/cfs

preprint https://www.medrxiv.org/content/10.1101/2021.01.25.21250436v1 https://www.medrxiv.org/content/10.1101/2021.01.25.21250436v1.full.pdf

Vink M, Vink-Niese A. The draft updated NICE guidance for ME/CFS highlights the unreliability of subjective outcome measures in non-blinded trials. Journal of Health Psychology. January 2021 (Editorial), doi:10.1177/1359105321990810...

Any recommendations for a good doctor/clinic in the SE corner of NSW (Monaro region), for a newly diagnosed patient in that area? Thanks.

https://www.rcpjournals.org/content/clinmedicine/21/1/13 This is barely worth posting, but I read it. It's so basic it felt like it was written for children - is that because it's in a journal for doctors rather than researchers? So many strong assertions ("The first and most important step is...

https://www.mdpi.com/2227-9032/9/2/106/htm

Article continues at the facebook link above.

An occupational therapist has contacted the Irish ME/CFS Association looking for CPD courses for her and her colleagues in the hospital on Long Covid or ME/CFS. Suggestions welcomed here, by private message or by email (tomkindlon@irishmecfs.org) from other countries. One we'll mention is...

Fecal Microbiota Transplantation: A New Therapeutic Attempt from the Gut to the Brain Hao-Ming Xu,1 Hong-Li Huang,1 You-Lian Zhou,1 Hai-Lan Zhao,1 Jing Xu,1 Di-Wen Shou,1 Yan-Di Liu,1 Yong-Jian Zhou,1 and Yu-Qiang Nie https://www.hindawi.com/journals/grp/2021/6699268/

Split from Possibility of ME or PVFS after COVID-19, Long Covid Just made the mistake of listening to part of "Trisha Greenhalgh Webinar on Long-COVID". Was hosted by the Canadian Institutes of Health Research in a series on Long-Covid, ME & more. Blood still boiling. Basically said PACE was...

This isn't new, but I don't think it has been highlighted much, if at, all online Table listing the percentage of Canadians with chronic fatigue syndrome, fibromyalgia, multiple chemical sensitivity, etc. who have 19 specific co-morbidities, based on a official survey See pages 5-8...

Full title: Salivary DNA loads for human herpes viruses 6 and 7 are correlated with disease phenotype in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome https://www.medrxiv.org/content/10.1101/2021.01.06.20248486v1

https://www.mdpi.com/1010-660X/57/1/43/htm

Full title: “it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME) https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-020-02461-7 ETA link to article

https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-020-02683-4

This thread was split from Open Medicine Foundation (OMF) News I thought we could not conclude autoimmunity is likely out of the picture as long as we dont know how to target long lived plasma cells? I mean b-cells dont really matter at that point if im not mistanken, as the autoimmune plasma...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4045534/ (not new but might be of interest)

This study aims to assess whether raised CRP (a blood test used as a marker of inflammation) is associated with probable depression in children and young people with CFS/ME. CACH team: Sandy Royston, Maria Loades, Esther Crawley...

Here's a compilation of some of the biggest media articles about ME from 2020. Let me know if you miss any articles, and I'll add them to the list :) Part 1. January Corriere Della Sera La ballerina senza più forze: "Io, malata di stanchezza cronica. Se mi lavo i capelli, non posso fare...

Open access, https://www.mdpi.com/2077-0383/9/12/4106/htm

Full title: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Organic Disease or Psychosomatic Illness? A Re-Examination of the Royal Free Epidemic of 1955 https://pubmed.ncbi.nlm.nih.gov/33375343/