me/cfs

  1. Jonathan Edwards

    Does the new ME/CFS research of BPS proponents affect anything much now?

    This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid I agree with Andy that this is bonkers, irrespective of who is involved in what. Crawley's research does not actually do that much harm, I suspect. It is a symptom of...
  2. Dolphin

    Impact of Q-fever fatigue syndrome on patients’ work status, 2020, Reukers et al

    Free full text: https://academic.oup.com/occmed/advance-article/doi/10.1093/occmed/kqaa166/5929827 Impact of Q-fever fatigue syndrome on patients’ work status D F M Reukers, J A F van Loenhout, I Roof, T F Senden, S P Keijmel, C P Bleeker-Rovers, C H M van Jaarsveld, J L A Hautvast, K van der...
  3. John Mac

    The Lonely, Isolating, and Alienating Implications of ME/CFS. Boulazreg & Rokach. 2020

    Full title: The Lonely, Isolating, and Alienating Implications of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2227-9032/8/4/413
  4. John Mac

    ME/CFS European Comparison Survey - SmartSurvey. Professor Derek Pheby 2020

    https://www.smartsurvey.co.uk/s/GX4HMU/ I took the survey and it did only take 10 minutes. Wanted to know your symptoms, medications and treatments. https://me-pedia.org/wiki/Derek_Pheby
  5. Andy

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    https://www.bacme.info/sites/bacme.info/files/BACME%20Position%20Paper%20on%20the%20Management%20of%20ME-CFS%20October%202020.pdf Available directly from their home page, https://www.bacme.info/ My guess (I have no insider knowledge) is that this gives a strong indication of how the revised...
  6. Dolphin

    Oxidative stress caused by a dysregulated Wnt/β-catenin signalling pathway... abnormal placenta ... in pregnant mice with CFS, 2020, Zhao et al

    https://www.cambridge.org/core/journals/zygote/article/oxidative-stress-caused-by-a-dysregulated-wntcatenin-signalling-pathway-is-involved-in-abnormal-placenta-formation-in-pregnant-mice-with-chronic-fatigue-syndrome/732B77AB5F851B50AC2886C97DE5D7F2 Oxidative stress caused by a dysregulated...
  7. Sly Saint

    The Effect of CBT, GET and Pacing Treatments on ME/CFS Symptoms: Analysis of a Patient Survey compared against Secondary Surveys - 2017 Geraghty et al

    https://sapc.ac.uk/conference/2017/abstract/effect-of-cbt-get-and-pacing-treatments-mecfs-symptoms-analysis-of-patient
  8. JemPD

    Does anyone have a list of common ME symptoms please?

    I'm trying to track my activity & symptoms to see if i can pace a bit better after a recent unexpected deterioration. I know it will sound daft to non sufferersm but i cant remember them all - which is a symptom in itself. I know i have seen many lists of symptoms in the poosibility of ME after...
  9. John Mac

    Cardiac Dimensions and Function Are Not Altered among Females with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Iversen et al. 2020

    https://www.mdpi.com/2227-9032/8/4/406
  10. Dolphin

    Chronic Fatigue Syndrome the roles of perfectionism and metacognition in co-morbid depression and anxiety, 2020, Wright (D.Clin.Psy.)

    Can be downloaded for free at these links: https://livrepository.liverpool.ac.uk/3100418/1/201310670_June2020.pdf https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.815650
  11. J

    Potential Role of Neuroactive Tryptophan Metabolites in Central Fatigue: Establishment of the Fatigue Circuit, 2020, Yamashita

    https://journals.sagepub.com/doi/full/10.1177/1178646920936279
  12. Andy

    Video: Energy Management in Chronic Illness: Practical Tips, pts 1&2 [Workwell and Whittemore Peterson Institute]

    https://youtu.be/FqoIf11mY8Q https://youtu.be/NWLu1IfYYH0 ______________________ See also this thread on another Workwell team talk at about the same time: Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm
  13. Kalliope

    News from Australia

    ABC - Finding hope for those living with Chronic Fatigue Syndrome - interview with Sue Collins, dr. Heidi Nicholl and prof. Ken Walder Imagine going for a short walk one day and then the next morning you can't even get out of bed. That's what life is like for some people living with what's...
  14. Andy

    Webinar: Scientific Research on ME/CFS in the Age of COVID-19 - Hanson, Lipkin, Nath - Oct 26th, 2020, 6 to 7pm ET.

    https://jaxmecfs.com/2020/10/14/webinar-on-scientific-research-on-me-cfs-in-the-age-of-covid-19/
  15. Kalliope

    Trial By Error by David Tuller: How Professor Lubet's Nightmare Began...

    A few years ago, my friend and colleague Steven Lubet, a law professor and scholar at Northwestern University, wrote the following account of the start of his struggle with what was then largely called chronic fatigue syndrome. While his story does not directly relate to current events, Steve’s...
  16. Kalliope

    Blog: The Science Bit by Brian Hughes

    Good intentions regularly lead to terrible outcomes. While researchers’ hearts may be pure, that fact alone does not guarantee that their works will be blessed. In psychology, we sometimes talk about the “just-world fallacy”, the belief that in the end our collective actions will average out...
  17. Dx Revision Watch

    Neuropsychiatric complications of Covid-19, 2020, Butler et al

    Split from Possibility of ME or PVFS after COVID-19, Long Covid ******** https://www.bmj.com/content/371/bmj.m3871 Editorials Neuropsychiatric complications of covid-19 BMJ 2020; 371 doi: https://doi.org/10.1136/bmj.m3871 (Published 13 October 2020) Matthew Butler, NIHR academic clinical...
  18. Dolphin

    Three principles/innate health: The efficacy of psycho-spiritual mental health education for people with CFS, 2020, El-Mokadem et al

    https://psycnet.apa.org/record/2020-69778-001
  19. Kalliope

    Cytokine profiling of extracellular vesicles isolated from plasma in ME/CFS: a pilot study, 2020, Giloteaux, Levine, Hanson et al

    Cytokine profiling of extracellular vesicles isolated from plasma in myalgic encephalomyelitis/chronic fatigue syndrome: a pilot study Ludovic Giloteaux, Adam O'Neal, Jesús Castro-Marrero, Susan M. Levine & Maureen R. Hanson Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)...
  20. Simone

    Australia research funding 2020: Successful applicants for NHMRC $3m Targeted Call for Research announced

    The successful applicants for Australia’s $3m ME/CFS Targeted Call for Research (TCR) have been announced. The successful projects: Professor Sonya Marshall-Gradisnik Griffith University Grant: $1.46m Project title: Ion channel dysfunction in the pathophysiology of Myalgic Encephalomyelitis/...
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