me/cfs

  1. Dolphin

    Going to See the Paediatrician, 2020, Kozlowska et al

    Free full text: https://link.springer.com/chapter/10.1007/978-3-030-46184-3_2 Looks like it could be quite annoying
  2. Hutan

    Specialist treatment of CFS/ME: a cohort study among adult patients in England, 2017, Collin and Crawley

    Abstract Background NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year. Variation in therapy programmes and treatment outcomes across services has not been described. Methods We described treatments provided by 11 CFS/ME...
  3. Andy

    Prognostic Factors for Staying at Work for Partially Sick-Listed Workers with Subjective Health Complaints: A Prospective Cohort Study, 2020, Anema et

    Open access, https://www.mdpi.com/1660-4601/17/19/7184/htm My bolding.
  4. Andy

    Dr Alastair Miller's misleading claims about effectiveness of the English NHS (rehab) ME/CFS clinics, Royal Society of Medicine webinar in Sept '20

    https://www.virology.ws/2020/10/01/tria-by-error-royal-society-of-medicine-webinar-on-long-covid/
  5. Andy

    Continuous Education Module: Nursing Management: Chronic fatigue syndrome

    Open access, https://journals.lww.com/nursingmanagement/Fulltext/2020/10000/Chronic_fatigue_syndrome.10.aspx
  6. Estherbot

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Michael Sharpe breaks his retirement promise on ME/CFS and returns with this monstrosity, a blog for the BMJ (British Medical Journal) He says ME/CFS is an illness but not a disease... Mind, Medicine and Morals: A Tale of Two Illnesses...
  7. Leila

    Does your ME feel like your initial infection?

    I came across this question on Twitter, I think in the context of longcovid. For those of you that had a clear viral/infectious onset: Do your symptoms resemble the initial infection you had? For me, that's absolutely the case. If I had to choose a name for my illness that describes it the...
  8. John Mac

    Recommendations for Epidemiological Research in ME/CFS from the EUROMENE Epidemiology Working Group. Mudie et al. 2020

    https://www.preprints.org/manuscript/202009.0744/v1
  9. Dolphin

    Chronic Fatigue Syndrome in children population – current knowledge summary , 2020, Prylińska et al

    Free full text...
  10. John Mac

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewsk, P.; Pheby, D...
  11. Dolphin

    How common are depression and anxiety in adolescents with CFS and how should we screen for these mental health co-morbidities, 2020, Loades et al

    Free full text: https://link.springer.com/article/10.1007/s00787-020-01646-w
  12. Dolphin

    Mental Health and Chronic Fatigue Syndrome: Is Mental Health the Culprit Behind Your Fatigue?, 2020, Raza et al

    Not a recommendation http://thebiomedicapk.com/articles/819.pdf ORIGINAL ARTICLE Mental Health and Chronic Fatigue Syndrome: Is Mental Health the Culprit Behind Your Fatigue?
  13. ahimsa

    Planned documentary - Relevium, on Dr Bateman's work on ME/CFS and Fibromyalgia

    Someone posted a link on twitter about a planned documentary called Relevium. https://glematiroad.com/relevium-documentary I don't know anything about this other than what I've read just now on this website, but I'm hopeful. If anyone on the forum has more info about this please share! At...
  14. Andy

    Review: How has cognitive behaviour therapy been adapted for adolescents with comorbid depression and chronic illness? A scoping review, 2020, Loades

    Open access, https://acamh.onlinelibrary.wiley.com/doi/10.1111/camh.12421
  15. Dolphin

    A meta-ethnography of people with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) and their support needs, 2020, Pilkington et al

    https://www.sciencedirect.com/science/article/abs/pii/S0277953620305888 Some of these have been involved with annoying papers in the past Social Science & Medicine Available online 16 September 2020, 113369 In Press, Journal Pre-proof
  16. Cheshire

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    Barbara Stussman1*, Ashley Williams2, Joseph Snow3, Angelique Gavin4, Remle Scott1, Avindra Nath4 and Brian Walitt5 https://www.frontiersin.org/articles/10.3389/fneur.2020.01025/full
  17. ME/CFS Skeptic

    What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

    Evelien and I were interested in what clinical trials are currently planned or ongoing for ME/CFS. It can take many years to conduct a clinical trial and report the results, so we wanted to know what we can expect to come out in the next years. A search of databases that register clinical...
  18. Andy

    Orthostatic stress testing in [ME/CFS] patients with or without concomitant fibromyalgia, 2020, van Campen et al

    Full title: Orthostatic stress testing in myalgic encephalomyelitis/chronic fatigue syndrome patients with or without concomitant fibromyalgia: effects on pressure pain thresholds and temporal summation Paywall, https://www.clinexprheumatol.org/abstract.asp?a=15665 Unable to access via Sci hub...
  19. Simon M

    Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath

    New blog Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath Understanding long covid: a shortcut to solving ME/CFS? September 17, 2020 Simon McGrath Comments 0 Comment Large numbers of people, around one in 10, don’t make a normal recovery from coronavirus but continue...
  20. Samuel

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    omf sent this out: vvv NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS A resource for clinicians and patients. The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS. This handout is being made...
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