#meaction

See Also: Which ME/CFS charity would you donate to right now for biomedical research? And: What are the best UK charities for ME? Following my receipt of a 50 USD charity gift card in a giveaway which only works with US Charities, I am left wondering what charity to spend it on. In the list of...

#MEAction and Patient-led Research Collaborative have created a four-part video series focusing on post-exertional malaise and pacing. Each video includes an interview with an expert conducted by Chimére L. Sweeney, a Long COVID author, speaker, filmmaker, and writer. We are thankful for the...

Steven Molony is an actor, writer, and filmmaker who makes all of #MEAction’s videos in addition to supplying voiceover. He is an ally to people with myalgic encephalomyelitis, Long COVID, and other chronic illnesses. Jaime Seltzer is #MEAction’s director of scientific and medical outreach and...

Threads about different articles have been merged Article about today's protest at the White House from MedPage Today: "Long COVID, ME/CFS Patients Protest in Front of White House" https://www.medpagetoday.com/infectiousdisease/longcovid/100806 There was also a mention of the protest, and...

I'm not sure how exactly our forum members might use this type of guideline, but I came across this recently and found it interesting. Link to PDF file created by MEAction: Journalist Primer: How to Report on ME/CFS

https://www.meaction.net/wp-content/uploads/2022/08/Pediatric-Guide-to-Pacing-2.pdf

full details and sample email https://www.meaction.net/2022/05/27/email-doctor-unger-about-misinformation-at-cdc/

What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID https://www.ibtimes.com/what-chronic-fatigue-syndrome-overlooked-condition-shares-symptoms-long-covid-3410892

News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK

"The updated NICE guideline on ME/CFS contains substantial changes that alter the treatment and management of people with ME in England and Wales*. We need your help to tell doctors and other medical staff that the recommended treatments for people with ME have changed. We want to get the...

https://www.mightycause.com/story/Walktober A nonprofit fundraiser supporting Myalgic Encephalomyelitis Action Network Inc

https://www.meaction.net/2021/08/23/meaction-6-me-orgs-call-for-cdc-to-change-how-it-tracks-me-cfs/

" MEAction Response to CDC #MEAction has released a draft response to the CDC’s flawed systematic evidence review on ME/CFS treatments. Sign our form by August 15, 2021 to have your name added to #MEAction’s response before we formally submit it as a public comment on August 16." " CDC review...

The July 2021 edition of Medical Board of California News issue includes a 2-page article called, "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID: What Every Physician Needs to Know" by MEAction. https://www.mbc.ca.gov/Download/Newsletters/Newsletter2021-July.pdf The full...

A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Medpage today: "NIH Striving to Avoid False Hope in Chronic Fatigue" Shame about the title, yet again. https://www.medpagetoday.com/publichealthpolicy/publichealth/70529

This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...

https://www.meaction.net/2020/11/12/important-news-from-jennifer-brea/?fbclid=IwAR3_GgqUDp3qe3woHXjeH04-n_sdapO-xKepc1EvJ4Gz0TTvCLXmo12st0U "Today we announce that #MEAction’s co-founder and executive director, Jennifer Brea, is going to be transitioning to a board position so she can take time...

https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf

Stop. Rest. Pace. - New global information campaign around Long Covid, ME, and PEM. We knew this was coming. So many people with myalgic encephalomyelitis (ME) develop the disease after an infection, up to 80% in fact, and evidence is mounting that a non- trivial percentage of individuals will...

On Wednesday, September 23 the CDC helt its ME/CFS Stakeholder Engagement and Communication (SEC) conference call ant the #MEAction community showed up to make our voices heard! Here is our initial summary of what you need to know. ... We’ve divided this summary into the following sections, so...