me awareness week

2023 World ME Day campaign announced "The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to understand this disease more accurately. That’s why our tagline this year is “ME...

Post copied from this thread First World ME Day and theme launched by alliance members "The World ME Alliance, a collaborative of organisations from across the globe, is launching World ME Day on 12th May this year. This new initiative aims to bring together organisations and unify efforts to...

A thread for article, events and anything else related to ME Awareness Day/Week/Month 2021.

I thought it might be useful to have a thread on all the wonderful initiatives for ME Awareness day/week/month 2020. Big campaigns can, of course, have their own thread but I think it would nice to have an overview of everything, including the smaller projects that are taking place all over the...

Moderator note: This post and subsequent discussion have been moved from this thread: May 2019 - Awareness Week including Millions Missing Were any U.K. “protests” visibly demanding research funds from our state funders? I’ve watched a few videos where the “general picture” or life stories etc...

Australia: International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) including myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS) Sandgate Town Hall will be lit up Blue for International Awareness Day for Chronic Immunological and Neurological Diseases...

Hope this is okay to share. I've included an audio version of the post too. "Trust issues run through every level of the ME experience. Being unable to trust our physical bodies to perform, is just the beginning. Trust, in the context of ME, goes way beyond personal, physical problems...

Not a joke... :( What a bitter hijack... Direct link: https://www.nihr.ac.uk/blogs/worries-that-keep-you-awake-at-night/8466 Just a little extract to let you have a taste of her revolting prose (this woman really has no decency): Leaving the field would be your best contribution, Esther...

This thread includes posts on general news from the CDC and ME/CFS news including stakeholder calls. Several threads have been merged.

https://batemanhornecenter.org/see-not-missing-us/

" THIS week marks ME Awareness Week, culminating in a campaign day called ‘Millions Missing’ in cities across the world. Leamington and Stratford Observer deputy editor Laura Kearns is using this as a chance to speak out about her battle with the illness and talk to others with the condition...

‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP | 09 May 2018 http://www.meassociation.org.uk/2018/05/me-awareness-week-2018-new-early-day-motion-launched-by-carol-monaghan-mp-09-may-2018/ An early day motion has been launched by Carol Monaghan MP, and she needs...

The Birmingham Mail is covering ME Awareness week with this story of a sufferer https://www.birminghammail.co.uk/news/health/illness-sucking-life-out-millions-14611319

"Your schedule for another packed day of ME Awareness The main event: 7.00am Newsbeat Documentary 'M.E. and me' on BBC iPlayer (and hopefully YouTube) presented by Emma Donohoe. 8.10am BBC1 Breakfast Show Dr Eliana Lacerda a researcher from the M.E. Biobank and Emma Donohoe on the 'red sofa'...

ME Awareness Week: ‘Missing behind closed curtains for 12 years’ – Woman describes living with M.E. http://www.meassociation.org.uk/2018/05/me-awareness-week-missing-behind-closed-curtains-for-12-years-woman-describes-living-with-m-e-07-may-2018/ Geraldine Scott, Eastern Daily Press, 6th May...

Pa. state Rep. Peter Schweyer speaks on House Resolution 854 designating May 12, 2018, as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day” in Pennsylvania.

mentioned by @Binkie4 on another thread " reMEmber Saturday 12 May 2pm – ME Awareness Conference. Dr Amolak Bansal clinical lead of the Surrey CFS/ME Service, will be talking about the mitochondrial research of Professor Julia Newton at Newcastle University. Dr Charles Shepherd Medical...

We've organised a performance to raise awareness and funds for ME at Wheal Martyn, China Clay Museum, St Austell, Cornwall. We hope that people with ME, their families, carers, friends and members of the public will come along to listen, connect and celebrate the amazing strength and resilience...

As the title explains, we are looking for suggestions on how S4ME might be able to join in with and promote May 12th and/or May ME Awareness Month, so please suggest away. It also looks like MillionsMissing are aiming to generate protests on the 12th May as well, so ideas around this are...