Bateman Horne Center: We See You. You are Not Missing to Us.

https://batemanhornecenter.org/see-not-missing-us/

 

Public Awareness of ME/CFS : A Changing Story

"We saw small but significant progress when Utah’s Governor, Gary Herbert released an official declaration that acknowledges the ME/CFS community as legitimate, and “recognizes the struggles faced by those afflicted with this disorder, respects their courage, and stands with organizations and individuals throughout the world that are fighting to research, treat, and eradicate this disease.”

The declaration concluded by designating May 2018 as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Month in Utah.

"Although formally recognizing ME/CFS in one state for one month might seem insignificant, it is important to recognize the state-level traction this declaration introduces. The story of ME/CFS and FM is no longer a purely hidden narrative of suffering and rejection, but a story where formal government action is beginning to validate and support people living with, in the words of Governor Herbert, “a complex, chronic disease responsible for causing extreme fatigue, widespread muscle and joint pain, and a host of other symptoms.”

full blog here:
https://batemanhornecenter.org/millionsmissing2018/