get

Full title: Evaluating Pacing Therapy (PT) versus Graded Exercise Therapy (GET) for improving fatigue, pain, and quality of life in adults with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Systematic Review...

Hi all, it came up in another thread that it would be good to have a one-stop shop of all papers or evidence examining the efficacy or risks of CBT/GET for people with ME or LC (LC-ME preferred but my guess is that no relevant studies taking into account PEM specifically will have been done yet...

Abstract The British National Institute for Health and Care Excellence (NICE) published its updated guidelines for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in October 2021. NICE concluded, after an extensive review of the literature, that graded exercise therapy (GET) is...

Evaluation of a survey exploring the experiences of adults and children with ME/CFS who have participated in CBT and GET interventional programmes https://www.meaction.net/wp-content/uploads/2019/04/NICE-Patient-Survey-Outcomes-CBT-and-GET-Oxford-Brookes-Full-Report-03.04.19.pdf FINAL REPORT...

Patient-Reported Treatment Outcomes in ME/CFS and Long COVID Martha Eckey; Peng Li; Braxton Morrison; Ronald W Davis; wenzhong xiao Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID are persistent multi-system illnesses affecting many patients. With no known effective...

Randomised controlled trial of graded exercise in chronic fatigue syndrome Karen E Wallman, Alan R Morton, Carmel Goodman, Robert Grove and Andrew M Guilfoyle Med J Aust 2004; 180 (9): 444-448. || doi: 10.5694/j.1326-5377.2004.tb06019.x Published online: 3 May 2004 Abstract Objective: To...

I posted about this issue in the News from Scandinavia thread last week, but as things keep unfolding I think it deserves its own thread. A massive thank you to patient advocates @MittEremltage, @Clementine and others, for digging into this and doing a phenomenal job trying to hold the...

Hi I’m interested in having a copy of the documents in the subsection “for doctors” and “for patients” in this me-pedia page https://me-pedia.org/wiki/PACE_trial_documents However when I download them I just get a html version of the mepedia front page. Not sure if its because im on my phone...

Graded exercise therapy compared to activity management for paediatric chronic fatigue syndrome/myalgic encephalomyelitis: pragmatic randomized controlled trial Gaunt, Daisy M.; Brigden, Amberly; Harris, Shaun R. S.; Hollingworth, William; Jago, Russell; Solomon-Moore, Emma; Beasant, Lucy...

Patients with persistent symptoms after COVID-19 attending a multidisciplinary evaluation: Characteristics, medical conclusions, and satisfaction Gouraud; Thoreux; Ouazana-Vedrines; Pitron; Betouche; Bolloch; Caumes; Guemouni; Xiang; Lemogne; Ranque Objective Among patients attending a...

Now published - link here ******** Preprint From @MSEsperanza: "The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients' experiences with inpatient rehabilitation for long/post COVID, Hammer et al [full text in German only] Abstract...

https://www.goodfellowunit.org/medcases/chronic-fatigue-syndromemyalgic-encephalomyelitis Chronic fatigue syndrome/myalgic encephalomyelitis Date Published Monday, 18 September 2023 Category Chronic conditions Miss C is a 17-year-old girl who comes to see you ... The specific treatments that...

Seen the following article recently shortly after a sibling participated in a similar study https://mecfsskeptic.com/psychosomatic-history-of-multiple-sclerosis/ this too though much older - https://forum.mssociety.org.uk/t/mi...research-at-the-heart-of-disability-cuts/9260 shocking and a...

Pre-print (free access) Abstract Extensive research links regular physical exercise to an overall enhancement of cognitive function across the lifespan. Here, we assess the causal evidence supporting this relationship in the healthy population, using an umbrella review of meta-analyses limited...

Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS) https://fundingawards.nihr.ac.uk/award/NIHR203290 https://www.refuel-ms.com/ Chief Investigator(s): Professor Rona Moss-Morris Co-investigators Start Date...

I've written some of my thoughts about the new reports and guidelines on ME/CFS that have been published over the past 5 years. They seem to form a new consensus, one where PEM is a required criterium for ME/CFS, where GET is no longer recommended and CBT is proposed as a supportive treatment...

Abstract: Post-COVID-19 syndrome is an ongoing challenge for healthcare systems as well as for society. The clinical picture of post-COVID-19 syndrome is heterogeneous, including fatigue, sleep disturbances, pain, hair loss, and gastrointestinal symptoms such as chronic diarrhea. Neurological...

Some time ago there was a survey sent to CFS clinics in the UK asking if they followed up dropout patients to see if they dropped out because harmed, and over 50% of those replying said no, so no wonder no harm recorded. Has anyone a link to this please? I had one but cant access it on old PC.

Full title: Do diagnostic criteria for ME matter to patient experience with services and interventions? Key results from an online RDS survey targeting fatigue patients in Norway Abstract: Public health and welfare systems request documentation on approaches to diagnose, treat, and manage...

The announcement of this study caused a firestorm on Twitter and continues to do so: With the exception of a "clever" acronym, nothing adds more to the credibility of a clinical trial than announcing "promising results" before it has even finished: Amid all the self-serving puffery and...