ethics

Re-visiting professional ethics in psychotherapy: reflections on the use of talking therapies as a supportive adjunct for myalgic encephalomyelitis/chronic fatigue syndrome and ‘medically unexplained symptoms’ Joanne Hunt; Charlotte Blease Following years of debate over the effectiveness of...

Abstract Background Working alongside patients and the public to shape and engage with research, Patient and Public Involvement and Engagement (PPIE), facilitates more impactful research outcomes. The UK Standards for Public Involvement provides a framework for conducting PPIE; however, they...

Publication integrity: what is it, why does it matter, how it is safeguarded and how could we do better? Mark J. Bolland; Alison Avenell; Andrew Grey Trustworthy literature is an essential part of knowledge, evidence-based information, and science. However, publications can contain mistakes or...

https://undark.org/2023/11/20/clinical-trial-injury/

Observer investigation reveals UK Biobank opened its biomedical database to insurance firms despite pledge it would not do so Sensitive health information donated for medical research by half a million UK citizens has been shared with insurance companies despite a pledge that it would not be...

French research centre behind controversial Covid paper found to have used questionable ethics processes | Coronavirus | The Guardian

Documents timestamped at 14th Oct 2022 Quarantine 1&2 of 5 full, set to begin 15th March 2023 and 14th April 2023 https://www.imperial.ac.uk/infectious-disease/research/human-challenge/covhic002/ Recruiting Now We are looking for healthy volunteers aged 18-30 years old to take part in a new...

Abstract In 2016, we published a conceptual framework outlining the conclusions of our work in defining pilot and feasibility studies. Since then, the CONSORT extension to randomised pilot and feasibility trials has been published and there have been further developments in the pilot study...

The Scholarly Kitchen - Blog of the Society for Scholarly Publishing Who Cares About Publication Integrity? Editor’s Note: Today’s post is by Andrew Grey, Alison Avenell, and Mark Bolland. Andrew is a clinical endocrinologist and Associate Professor of Medicine at the University of Auckland...

A discussion has arisen on the use of animals in biological research into ME. I suspect there is insufficient data to create animal models of ME at the moment, but that may change in the future, for example using mice to test hypotheseis on potential causes of ME. Medical research into...

A chilling account by Robert Cockburn, an Australian journalist, of how he was harmed by unapproved experimental devices in an asthma trial at Sydney University’s Woolcock Institute of Medical Research. He sustained long-term respiratory and neurological injuries from one of the devices. When...

Desperate Patients Are Shelling Out Thousands for a Long Covid Cure. Is It for Real? Two doctors, their unusual treatment program, and the “wild bisons” who swear by it. by Kiera Butler January 3, 2022...

This thread has been moved from the News subforum and renamed following a published paper based on Cheston's work. Respect and Shame in Healthcare and Bioethics Workshop: Peter Schaber, University of Zurich – “Respect for the Patient’s Wishes.” + ECR presentation from Katharine Cheston...

https://peh-med.biomedcentral.com/articles/10.1186/s13010-021-00110-0 Abstract Epistemic injustice sits at the intersection of ethics, epistemology, and social justice. Generally, this philosophical term describes when a person is wrongfully discredited as a knower; and within the clinical...

Physicians depend on the measurability and empirical verifiability of symptoms. Still, some symptoms defy observation and measurement, which can cause patients with a wide variety of conditions—including chronic fatigue syndrome, endometriosis, fibromyalgia, many psychiatric illnesses, multiple...

https://journalofethics.ama-assn.org/article/importance-listening-treating-invisible-illness-and-long-haul-covid-19/2021-07

There is some discussion of ME/CFS and medically unexplained symptoms in this including mention of papers by Keith Geraghty and Diane O'Leary. https://scholarshare.temple.edu/bitstream/handle/20.500.12613/6496/Sevareid_temple_0225M_14400.pdf?sequence=1&isAllowed=y ABSTRACT Objectivity is a...

https://www.tandfonline.com/doi/abs/10.1080/17441692.2021.1922731 Most public and non-profit organisations that fund health research provide the majority of their funding in the form of grants. The calls for grant applications are often untargeted, such that a wide variety of applications may...

I am starting a thread on the 'Duties of a Doctor', which in the UK has replaced the Hippocratic Oath (as far as I am aware for graduating doctors). I don't want to limit this discussion to the UK though. Here is the link to the 'Duties of a Doctor - General Medical Council' information...

I think it is possible it happens with some people with ME/CFS, both men and women https://www.sciencedirect.com/science/article/pii/S2352552520300839#! Ethics, Medicine and Public Health Volume 15, October–December 2020, 100545 Thoughts Connecting epistemic injustice and justified belief in...