cdc

  1. ahimsa

    CDC and #MEAction: ME/CFS Resources for Medical Students - Flashcards

    I recently found out about this page on the CDC website: ME/CFS Resources for Medical Students I think it's fairly new? The date at the top is May 13, 2024 but that could just be the last update. The last item on the resource list is "Infection-Associated Chronic Illness Flashcards - An Anki...
  2. Dolphin

    Voice of the patient: people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) share in their own words, 2024, Unger

    https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2444826 Research Article Voice of the patient: people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) share in their own words Dana J. Brimmer Jin-Mann S. Lin & Elizabeth R. Unger Received 12 Sep 2024, Accepted 23 Oct...
  3. SNT Gatchaman

    Preprint Underdiagnosis of myalgic encephalomyelitis/chronic fatigue syndrome-like illness in a large integrated healthcare system, 2024, Wood, Unger et al.

    Underdiagnosis of myalgic encephalomyelitis/chronic fatigue syndrome-like illness in a large integrated healthcare system — Kaiser Permanente Northern California, 2022-2023 Mariah Wood; Nicole Halmer; Jeanne Bertolli; Laura B. Amsden; Joshua R. Nugent; Jin-Mann S. Lin; Gretchen Rothrock; Joelle...
  4. Dolphin

    Cognitive assessment in ME/CFS: a cognitive substudy of the multi-site clinical assessment of ME/CFS (MCAM), 2024, Lange, Unger +

    https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2024.1460157/full Cognitive assessment in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): a cognitive substudy of the multi-site clinical assessment of ME/CFS (MCAM) Introduction: Patients with Myalgic...
  5. Nightsong

    Chronic Overlapping Pain Conditions in people with [ME/CFS]: a sample from the Multi-site Clinical Assessment of ME/CFS (MCAM) study, 2024, Fall et al

    Background Chronic overlapping pain conditions (COPCs), pain-related conditions that frequently occur together, may occur in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and could impact illness severity. This study aimed to identify comorbid COPCs in patients with...
  6. M

    CDC MCAM data posted in MapMECFS

    NIH's MapMECFS newsletter stated that the clinical data and biospecimens from CDC's Multi-Site Clinical Assessment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (MCAM) study are now available on mapMECFS and searchMECFS. But it requires a request as below, not just an account, to access...
  7. Wyva

    Estimates of Incidence and Predictors of Fatiguing Illness after SARS-CoV-2 Infection, 2023, Vu, Unger et al

    Abstract This study aimed to estimate the incidence rates of post–COVID-19 fatigue and chronic fatigue and to quantify the additional incident fatigue caused by COVID-19. We analyzed electronic health records data of 4,589 patients with confirmed COVID-19 during February 2020–February 2021 who...
  8. Wyva

    CDC Data Brief: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults: United States, 2021–2022, 2023, Vahratian, Unger et al

    Key findings Data from the National Health Interview Survey In 2021–2022, 1.3% of adults had myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The percentage of adults who had ME/CFS increased with age through ages 60–69 and then declined among those age 70 and older. White...
  9. ME/CFS Skeptic

    A new consensus? - ME/CFS skeptic blog

    I've written some of my thoughts about the new reports and guidelines on ME/CFS that have been published over the past 5 years. They seem to form a new consensus, one where PEM is a required criterium for ME/CFS, where GET is no longer recommended and CBT is proposed as a supportive treatment...
  10. M

    Medscape: Dozens of COVID cases linked to a CDC conference

    (Oh the irony) More than 30 people who attended a conference organized by the CDC's "disease detectives" likely were infected with COVID-19 at the event last week, the agency said. The CDC hosted the 4-day conference that started April 24 at a Crowne Plaza hotel just outside Atlanta, which is...
  11. ahimsa

    USA: Video comparing 2 different CDC COVID Tracker maps, community level vs community transmission

    CDC Maps: From Red to Green Comparison of two of the CDC maps (community transmission vs community levels) that are available on the CDC website and displayed on their social media. FYI, this video is new, and the discussion is timely, even though the CDC made these map changes to show new...
  12. rvallee

    CDC announces Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) program

    New CDC Foundation Program Focuses on Creating Partnerships to Address Chronic Conditions Caused by Infections, Including Long COVID...
  13. ahimsa

    Medscape: ME/CFS and Long COVID: Q&A With the CDC's Dr Jennifer Cope

    ME/CFS and Long COVID: Q&A With the CDC's Dr Jennifer Cope https://www.medscape.com/viewarticle/984122
  14. Sly Saint

    USA: CDC: School-Based Active Surveillance (SBAS) of ME/CFS Among Schoolchildren, comments invited until 20th Sept 2022.

    https://www.federalregister.gov/documents/2022/07/22/2022-15735/proposed-data-collection-submitted-for-public-comment-and-recommendations
  15. D

    Who Hijacked ME?

    To follow from Trish's post (https://www.s4me.info/threads/ltse-long-term-symptom-exacerbation-type-2-me-or-new-diagnosis.27945/#post-422324): The BPS Brigade have been accused of hijacking ME and replacing it with CFS emphasizing the symptom of fatigue and ignoring PEM. However from what I've...
  16. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    full details and sample email https://www.meaction.net/2022/05/27/email-doctor-unger-about-misinformation-at-cdc/
  17. Andy

    Cardiopulmonary, metabolic, and perceptual responses during exercise in ... (ME/CFS): A Multi-site Clinical Assessment, 2022, Cook et al

    Full title: Cardiopulmonary, metabolic, and perceptual responses during exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A Multi-site Clinical Assessment of ME/CFS (MCAM) sub-study. Abstract Background Cardiopulmonary exercise testing has demonstrated clinical utility in...
  18. Hip

    Advice on mask-wearing to protect against Covid-19

    Western medical authorities and the WHO have repeatedly stated that the populace do not need to wear masks or respirators, and that for the general public these offer no protection from coronavirus. The WHO say: Source: here It's rather annoying when scientists hide behind deceptive...
  19. ahimsa

    CDC ECHO monthly webinars 2022 - Long COVID & Fatiguing Illness Recovery Program

    OMF tweeted about this ECHO webinar series today: "Join in on a monthly ECHO webinar series funded by @CDCgov, focusing on #LongCOVID and #MECFS. The next session will held January 13, at 12:00 - 1:00 pm PT. Register now: https://bit.ly/3n7drja" "Following webinars in the series will take...
  20. ME/CFS Skeptic

    Dane Cook's analysis of exercise data of the CDC's MCAM study

    1) The data reported by Dr. Dane Cook in this CDC call from 13 May 2021 is pretty interesting. He was able to analyze the results of exercise testing in the large Multi-Site Clinical Assessment of ME/CFS study (MCAM). 2) Previous meta-analyses have shown that ME/CFS patients have lower peak...
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