CDC ECHO monthly webinars 2022 - Long COVID & Fatiguing Illness Recovery Program

[ahimsa]

OMF tweeted about this ECHO webinar series today:

"Join in on a monthly ECHO webinar series funded by @CDCgov, focusing on #LongCOVID and #MECFS. The next session will held January 13, at 12:00 - 1:00 pm PT. Register now: https://bit.ly/3n7drja"

"Following webinars in the series will take place on the 2nd Thursday of each month at 12:00 - 1:00 pm PT. This program is open to all healthcare professionals interested in learning more about treatment of #LongCOVID & #MECFS. (1 credit hour of CME, CNE, & CPE will be available.)"
​

Note: PT = Pacific Time (USA west coast)

Fortunately the registration page includes a link where you can convert the time to your own time zone.

https://twitter.com/OpenMedF/status/1479859457786056708

Update: I just realized that OMF is simply announcing this series, it's not actually OMF news.

 

[ahimsa]

I thought I'd post the information that's listed on the Zoom registration page:

Topic: Long COVID & Fatiguing Illness Recovery Program - Monthly Session

Description: A CDC-funded monthly webinar-style ECHO learning session to rapidly disseminate Post-acute Sequelae of COVID-19 (PASC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) findings and emerging best practices.​

 

[ahimsa]

Just saw this image on twitter with more information about who's behind this webinar series.

At the end there's an email address for questions: LCecho@salud.unm.edu



Tweet from @itsbodypolitic

 

[Dolphin]

Past recording details. Clickable links/files at link

https://m.box.com/shared_item/https://app.box.com/s/a9mnj1ypho0j9li30jymcsl5kwsr054q



Long COVID & Fatiguing Illness Recovery ProgramPast Session Resources
January 13, 2022 – Overview of PASC, ME/CFS, OPIFI
 Session Recording –  Presentation Slides  Meet the Faculty Agenda  Q&A




February 10, 2022 - Neurocognitive Manifestations of Post-COVID Conditions
 Session Recording -
 Presentation Slides  Meet the Faculty Agenda  Q&A

March 10, 2022 - Pulmonary Manifestations of Post-COVID Conditions
 Session Recording -
 Presentation Slides Meet the Faculty Agenda

 

[Dolphin]

Via the
Massachusetts ME/CFS & FM Association
monthly newsletter

One of these starts in less than hour
—-
ECHO Webinar Series
The Long Covid and Fatiguing Illness Recovery Program ECHO continues their monthly webinar series with the following programs:



April 14, 2022: Autonomic/Cardiac Manifestations.
May 12, 2022: History of ME/CFS led by Dr Bateman.
June 9, 2022: ME/CFS Patient Perspective.

Register here for all events

Recordings of past presentations are available on their website.

In addition, a 45-minute, self-paced Long Covid and Fatiguing Illness Recovery Program Quarterly Course is now available.

 

[ahimsa]

A recording of the ECHO webinar held on April 14th (Autonomic/Cardiac Manifestations of Post-COVID Conditions) has been posted:

 

[ahimsa]

A recording of the ECHO webinar held on April 14th (Autonomic/Cardiac Manifestations of Post-COVID Conditions) has been posted:

I watched part of this video. I stopped at about minute 25 or 26.

Some parts were okay, but at minute 21 he showed this slide warning about the "Downward Spiral in PASC" (PASC = Post-Acute Sequelae of COVID-19).



The slide says PASC, so I thought maybe he just means those patients without PEM/PESE, since there are a lot of other post-COVID situations. But when he presents the slide he uses the term Long Covid. And he does not mention screening for PEM/PESE.

It sounds like the same old theory that patients are just exercise averse.

From the video transcript (with a few typos corrected):

It's so important to manage the symptoms because without managing the symptoms they will get worse. Here's what we call the downwards downward spiral in Long Covid, where the initial COVID-19 illness, of course, with common symptoms like fatigue and orthostatic intolerance leads to bed rest. Now it's quite impressive how quickly bed rest can lead to deconditioning. In studies by Dr. Ben Levine at UT Southwestern it's shown [that] as little as 20 hours of bed rest already promotes cardiac atrophy and evidence of deconditioning. And deconditioning then begets worsening symptoms, worsening palpitations, worsening exercise intolerance. And then this leads to more bed rest in a lot of our patients too, which can lead to more deconditioning, and then the cycle repeats. So it's important to break this cycle by helping to alleviate symptoms.​

I thought I'd pass this on.

 

[Laurie P]

From the video transcript (with a few typos corrected):

It's so important to manage the symptoms because without managing the symptoms they will get worse. Here's what we call the downwards downward spiral in Long Covid, where the initial COVID-19 illness, of course, with common symptoms like fatigue and orthostatic intolerance leads to bed rest. Now it's quite impressive how quickly bed rest can lead to deconditioning. In studies by Dr. Ben Levine at UT Southwestern it's shown [that] as little as 20 hours of bed rest already promotes cardiac atrophy and evidence of deconditioning. And deconditioning then begets worsening symptoms, worsening palpitations, worsening exercise intolerance. And then this leads to more bed rest in a lot of our patients too, which can lead to more deconditioning, and then the cycle repeats. So it's important to break this cycle by helping to alleviate symptoms.

I thought I'd pass this on.

Here are the treatment and summary screens, as well as a link to Dr. Ben Levine https://utswmed.org/doctors/benjamin-levine/ who works at an institution that doesn't even list ME or CFS as conditions that they treat. I'm not well enough to summarize his impressive page, it's best to just go there.

Dr. Bateman and JD Davids from ME Action were part of the Q & A. I was very disappointed that they didn't use that opportunity more to our benefit.

I fear we are going to be selling our sleep shirts off of our backs and our sheets off of our beds to fund @dave30th for a long time to come with educational materials like this going out.