I wasn't sure where to post what will be the 2nd message in this thread, but it made sense to create a thread for it. There have been several substantial efforts so far in Germany, I've seen some in the US, on mass transit and highways, and it would probably be helpful to have a resource for...
One of these is Curable
https://www.facebook.com/curablehealth/
"Pain causes fatigue, etc., etc."
There were two other apps being pushed in my Facebook timeline, but I can't remember what they were.
Just a placeholder thread for such apps, as they seem to be being pushed harder commercially...
I wonder if this will impact some of the treatments marketed to treat ME/CFS..
A new policy on advertising for speculative and experimental medical treatments
September 6, 2019
Today, we’re announcing a new Healthcare and medicines policy to prohibit advertising for unproven or experimental...
This company appears to be selling a test which it describes as
Chronic Fatigue Tests
Tired All The Time Chronic Fatigue Test Kits
Regular price £15.99
the problem is the link to the test comes after they explain that
far from making it clear that ME/CFS is not the same as chronic...
Hello,
A few people expressed interest in reading ME Australia’s response to the draft report from the NHMRC Advisory Committee, I finally put it online:
https://meaustralia.net/2019/03/25/draft-report-wrongly-claims-99-recover-from-chronic-fatigue-syndrome-and-me/
People in the UK may have seen a lot of adverts recently for Versus Arthritis; I only found out just now that Versus Arthritis was formed in 2018 following a merger of Arthritis Care and Arthritis Research UK.
(Arthritis Research UK are on the CMRC).
Although I thought the earlier ads were a...
I employ carers from a care agency. Once a week the agency sends me a letter showing which carer is booked to come to me and at what time.
Today's letter also included a leaflet from a woman offering Refloxology, £22 for 45 minutes, as well as hand and foot massage or manicure/pedicure for...
I’m wondering if we might be missing a trick. I’m sure history will show us to be in a period of considerable and rapid change (even though it may not feel like it to us). Change means that advocacy opportunities can arise, but possibly easy to overlook when in the midst of such changes.
We...
It could be argued that Ofcom here demonstrate a better ability to analyse the results of a research paper than the MRC....
https://www.ofcom.org.uk/__data/assets/pdf_file/0020/119162/issue-360-ofcom-broadcast-on-demand-bulletin.pdf, skip to p. 20 for the start of this specific ruling.
Thought it might be useful to have a thread on this for reference.
I found this site which sells disability aids.
It has a large section on CFS and links to MEA a couple of times but AfME more.
In addition to the usual mis-information on CBT for pwME/CFS and GET, it says
"
The Lightning Process...
I used that headline to point out the power of marketing...How to get attention
My name is Anthony Ross. I am a former Wimbledon player, psychologist, and before becoming ill the head of a tennis psychology company where I learned the power of marketing in the years leading to my illness. I am...
ME Association - Advertising Standards Uphold Complaint Against Gupta Programme for ME/CFS and Fibromyalgia
ME Association - Advertising Standards Uphold Complaint Against Gupta Programme for ME/CFS and Fibromyalgia – 11 April 2018...
Facebook question:
How can I create an ad targeted at people interested in myalgic encephalomyelitis or Chronic fatigue syndrome? I was previously able to use the following headings: Alternative names for chronic fatigue syndrome, cfs or Chronic fatigue syndrome awareness. However they no longer...
The ME Association:
Advertising Standards Authority ruling on ME Association complaint re Kathy Kent and the Lightning Process
When the SMILE trial results were published, the ME Association stated that we would continue to refer cases where Lightning Process practitioners are making unproven...
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