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Ofcom rule that Sky News' presentation of the Perrin Technique was "not duly accurate or duly impartial"

Discussion in 'General ME/CFS News' started by Andy, Aug 30, 2018.

  1. Andy

    Andy Committee Member & Outreach

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    It could be argued that Ofcom here demonstrate a better ability to analyse the results of a research paper than the MRC....
    https://www.ofcom.org.uk/__data/ass...ue-360-ofcom-broadcast-on-demand-bulletin.pdf, skip to p. 20 for the start of this specific ruling.
     
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  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Last edited: Aug 30, 2018
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    It probably is difficult for them to provide a high quality response about every piece of research the MEA are asked to comment on. The way Sky interpreted the MEA comment could show the advantage of including a general comment like "we have serious concerns that some patients are being encouraged to spend their time and money on interventions that lack any good evidence of efficacy".

    edit: @Andy posts more from the MEA in the next post, and it looks like they did say something very similar! Bad Sky.
     
    Last edited: Aug 30, 2018
  4. Andy

    Andy Committee Member & Outreach

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    If you read further on in the judgement, Ofcom say
    So Ofcom are of the opinion that Sky essentially weren't interested in representing the MEAs counter-opinion.
     
  5. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    I really wish Raymond Perrin would stop with the bombastic claims, because I actually think his theory holds some weight. I am convinved the lymphatic system plays a big role in this illness. I'm glad he worked together with researchers and NHS clinicians to write the paper in BMJ, and I do think there may be scope for accurate assessment of ME using physical characteristics. But this is still a theory. There really is very little evidence backing up his claims. For example, his theory is build on the idea of varicose lymphatics, which I find interesting because I can feel exactly what he describes in my own neck and chest area. But you search for 'varicose lymphatics' on google and you get next to zero relevent results (except those from content written about the Perrin Technique). He's really talking a different language to most clinicians.
     
  6. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I think he is talking the same language but he is using the words in a way that makes no anatomical sense. He talks of a tender point over the left breast related to the thoracic duct. But the thoracic duct is way deep inside the ribcage. I don't see how you are going to get varicose lymphatics in the head and neck because they are above the heart and so under no hydrostatic pressure. His account is sort of free-wheeling looniness without a scrap of evidence (as you say).
     
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  7. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    :rofl:
     
  8. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

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    Now that is a great tagline...I’ll have to bank that one for future use :D
     
  9. Adrian

    Adrian Administrator

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    Is that the medical equivalent of the Morecambe and Wise's sketch to i'm playing all the right notes just not in the right order?
     
  10. Adrian

    Adrian Administrator

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    I think this is interesting. In the past I have complained to the BBC about their coverage of PACE/Crawleys work and their failure to put other view points. Being the BBC they dismiss such complaints claiming they have over coverage that balances (which they don't). So this ruling from ofcom is interesting.
     
  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    another one claiming cure by perrin technique; tweet from MEA thread re Gary Burgess

    https://me-living.info/
     
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  12. Trish

    Trish Moderator Staff Member

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    I haven't read all the details on this person's website, but enough to say he shouldn't be advertising the Perrin technique on the basis of his personal story. It's an anecdote, no more.

    Note - he only got sick in January this year and now claims to be recovered after lots of Perrin treatment and other stuff including pacing.

    He's just launched his website which reads like an advertisement for the Perrin technique, even though he's only been back at work a few weeks and isn't fully exercising yet.
     
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  13. ringding

    ringding Senior Member (Voting Rights)

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    I've skimmed through, but he does at least have a comment from Perrin at the end which lays out his position on it (it's not a cure all and won't work for all with ME).
    He could do with putting it up front really!
    https://me-living.info/blog/f/feedback-from-dr-raymond-perrin
     
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  14. Dolphin

    Dolphin Senior Member (Voting Rights)

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    A number of years ago, people heard from a Perrin Technique clinic there was going to be a feature on the condition on a particular radio programme on national radio. When the piece was on, the individual with ME or CFS seemed very keen to shoehorn the Perrin technique and the particular clinic into the conversation. I often wondered had the individual an undeclared conflict of interest e.g. had been offered free or reduced price treatment sessions.
     
    Last edited: Oct 17, 2019
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