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Open Letters and Replies

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  1. Science For ME
    Locked Sticky

    Open letters to the UK ME Association trustees about a research project developing PROMs, led by Sarah Tyson

    Science For ME, Apr 2, 2024
    Replies:
    4
    Views:
    4,078
    Trish
    Apr 6, 2024
  2. Science For ME
    Locked Sticky

    S4ME: 2023 Open Letter, complaints, petition updates regarding Cochrane and the CFS Exercise Therapy Review

    Science For ME, Aug 28, 2023 ... 2 3
    Replies:
    57
    Views:
    22,804
    Science For ME
    Apr 29, 2025 at 4:16 PM
  3. Barry

    My letter to The Lancet in response to the GETSET publication

    Barry, Dec 14, 2017
    Replies:
    8
    Views:
    2,383
    Barry
    Dec 15, 2017
  4. Trish

    Letter to Prof. Hugh Brady, VC Bristol University, Nov 2016

    Trish, Dec 15, 2017
    Replies:
    11
    Views:
    3,266
    Esther12
    Dec 16, 2017
  5. Carly Maryhew

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Carly Maryhew, Dec 15, 2017 ... 11 12 13
    Replies:
    241
    Views:
    45,488
    Inara
    Jan 16, 2018
  6. Andy
    Locked

    Graham's finalised letter to NICE, January 2018

    Andy, Jan 12, 2018
    Replies:
    1
    Views:
    5,047
    Andy
    Jan 31, 2018
  7. Graham

    Proposed Letter to NICE

    Graham, Dec 22, 2017 ... 4 5 6
    Replies:
    105
    Views:
    18,170
    Invisible Woman
    Feb 1, 2018
  8. Andy

    OPEN LETTER TO DR. NYE ( Clinical Champion, Liverpool ME/CFS Clinical Network Co-ordinating Centre), c. 2007

    Andy, Feb 2, 2018
    Replies:
    12
    Views:
    3,230
    Luther Blissett
    Feb 3, 2018
  9. Science For ME

    S4ME: Submission to the public review on Common Data Elements for ME/CFS: Concerns with the proposed measure of post-exertional malaise

    Science For ME, Feb 2, 2018 ... 2
    Replies:
    26
    Views:
    8,604
    Andy
    Feb 4, 2018
  10. Webdog

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    Webdog, Jan 24, 2018 ... 4 5 6
    Replies:
    110
    Views:
    20,682
    Allele
    Apr 30, 2018
  11. Jonathan Edwards

    Submission to the Scottish Parliament by Jonathan Edwards

    Jonathan Edwards, Jul 7, 2018 ... 4 5 6
    Replies:
    104
    Views:
    18,267
    Emsho
    Jul 19, 2018
  12. Andy

    Open Letter: 74 International experts urge Dutch Minister of Health to make substantial long term investment in biomedical research

    Andy, Jul 17, 2018
    Replies:
    3
    Views:
    2,324
    Esther12
    Jul 19, 2018
  13. Kalliope

    MEAction: The NIH responds to #MEAction, next steps

    Kalliope, Jul 19, 2018 ... 2
    Replies:
    21
    Views:
    4,498
    Dolphin
    Jul 21, 2018
  14. Andy

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Andy, Jan 16, 2018 ... 16 17 18
    Replies:
    340
    Views:
    44,317
    Trish
    Jul 30, 2018
  15. brf

    Open Letter Video to Prime Minister Trudeau: May 2018

    brf, May 7, 2018
    Replies:
    10
    Views:
    2,858
    DokaGirl
    Dec 15, 2018
  16. Science For ME

    S4ME letter to NICE and Replies, re: "three members of the ME/CFS Guideline Committee have a conflict of interest"

    Science For ME, Nov 30, 2018 ... 2
    Replies:
    27
    Views:
    5,577
    ME/CFS Skeptic
    Mar 24, 2019
  17. MyalgicE

    ME Australia’s submission to the National Health and Medical Research Council on their draft report

    MyalgicE, Mar 25, 2019
    Replies:
    7
    Views:
    2,045
    BruceInOz
    Mar 26, 2019
  18. Trish

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Trish, Jan 12, 2019 ... 9 10 11
    Replies:
    209
    Views:
    33,990
    PhysiosforME
    Oct 24, 2019
  19. Trish

    Open letter to Dr Peter Fisher, Liverpool University, about a research survey on emotional distress and CFS. 2019

    Trish, Nov 7, 2019 ... 2
    Replies:
    36
    Views:
    5,737
    Snow Leopard
    Nov 12, 2019
  20. Trish

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Trish, Oct 20, 2019 ... 2
    Replies:
    24
    Views:
    5,176
    rogerblack
    Dec 1, 2019
  21. Science For ME

    S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement

    Science For ME, Nov 14, 2019 ... 2
    Replies:
    23
    Views:
    4,728
    Andy
    Jun 1, 2020
  22. Trish

    A personal letter to the NIH team researching ME/CFS about their PEM study, 2020

    Trish, Oct 6, 2020 ... 2 3
    Replies:
    42
    Views:
    7,648
    shak8
    Dec 3, 2020
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