Open Letter: 74 International experts urge Dutch Minister of Health to make substantial long term investment in biomedical research

Andy

Andy

Retired committee member
During the fall of 2011 a severely ill Dutch ME-patient, Mirande de Rijke, decided to start a petition to demand recognition of ME as a biomedical disease. She formed the Groep ME Den Haag which collected 56.000 signatures, due to which the Dutch parliament requested the Health Council to formulate advices based on the current knowledge about the disease.

On March 19, 2018 The Dutch Health Council released their advisory report on ME/CFS. Our previous reporting on the content of the report can be found here.

On March 29, 2018 the Dutch parliament asked minister of health Bruno Bruins for advice.

On July 11, 2018 a meeting was organized to which 3 staff members of Mr. Bruins also invited the Groep ME Den Haag. On that occasion a detailed research-plan was presented and handed over by the Groep, the rough contents of which will be made public within not too long. It was also accompanied by a compelling letter from 74 international ME-researchers and clinicians which follows below, along with the names of its 74 signatories. Dr. Antony Komaroff also wrote a separate note on the report:
Click to expand...
https://mecentraal.wordpress.com/20...-long-term-investment-in-biomedical-research/
 
Really good letter, and it's so good to again see so many doctors and researchers speaking out for us.

I found this very powerful:

"The treatments based on that hypothesis (CBT/GET),have produced no robust evidence in the past 2 decades...."

And "Furthermore, patients internationally for more than 20 years have continually reported deteriorationfrom following the advice of their doctors to gradually increase their exertion levels based on a GET protocol....."

That's so damning, that those in power and influence have allowed this to carry on for 2 decades. I hope outsiders take this in!
 
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