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How to get 'Voices from the Shadows' viewed by more people
Sly Saint
,
Jun 7, 2018
...
2
Replies:
26
Views:
4,654
Sly Saint
Jul 24, 2021
Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.
Andy
,
Apr 23, 2021
...
3
4
5
Replies:
94
Views:
9,460
Medfeb
Jul 28, 2021
New Light Aware Card
Tara Green
,
Aug 26, 2021
Replies:
3
Views:
1,120
MeSci
Aug 27, 2021
"Patient's Charter for ME/CFS/PVFS"
Andy
,
Oct 7, 2021
...
2
Replies:
20
Views:
2,501
rvallee
Oct 16, 2021
#MEAction: Tell your Doctor that GET is gone
Sly Saint
,
Nov 10, 2021
Replies:
7
Views:
1,767
Sly Saint
Dec 12, 2021
small advocacy project: replacement for CFS/ME clinic patient manual
NelliePledge
,
Jun 3, 2018
Replies:
7
Views:
2,175
Sly Saint
Dec 17, 2021
ME/CFS sites promoting the Lightning Process
Sly Saint
,
Jul 25, 2018
Replies:
2
Views:
2,164
Sly Saint
Dec 17, 2021
[Time for commenting has passed]Birmingham UK CCG DRAFT Policy for the treatment of Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)
Esther12
,
Jul 30, 2018
Replies:
3
Views:
1,778
Sly Saint
Dec 17, 2021
Lancet photo competition for “original photographs that bring a fresh focus to a health story” -potential opportunity for awareness?
Cinders66
,
Oct 22, 2019
Replies:
4
Views:
1,824
Sasha
Jan 5, 2022
Expert source list for journalists on Long COVID. Compiled by Fiona Lowenstein and Betsy Ladyzhets
Jaybee00
,
Nov 5, 2021
Replies:
1
Views:
1,068
Jaybee00
Jan 17, 2022
A Picture of_ME: media images of ME
PeterW
,
Feb 16, 2022
Replies:
7
Views:
1,220
Trish
Feb 19, 2022
Lobbying European Community for funding for ME/CFS Research
FMMM1
,
Jan 4, 2019
Replies:
8
Views:
1,833
FMMM1
Mar 31, 2022
[National Institute of Health] Community Advisory Committee – Guidelines for the Design of Clinical Studies in ME/CFS
Andy
,
Apr 15, 2022
Replies:
3
Views:
1,445
Samuel
Apr 20, 2022
Help needed: Send messages to Hungarian pwME for my ME Awareness Day project
Wyva
,
Apr 27, 2022
...
2
Replies:
23
Views:
2,104
Sarah
May 8, 2022
Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022
Andy
,
May 10, 2022
Replies:
1
Views:
1,078
Arnie Pye
May 10, 2022
‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay
Phoebe
,
May 20, 2022
Replies:
0
Views:
1,346
Phoebe
May 20, 2022
UK: Priority Setting Partnership for ME/CFS
Andy
,
Mar 10, 2020
...
10
11
12
Replies:
232
Views:
29,542
bobbler
May 21, 2022
USA: #MEAction: Email Doctor Unger about the Misinformation at CDC
Sly Saint
,
May 28, 2022
Replies:
0
Views:
994
Sly Saint
May 28, 2022
Help with Advocating - responding to claims that ME is a psychological illness
Tara Green
,
May 25, 2022
Replies:
16
Views:
1,948
Tara Green
May 31, 2022
Exploration of the idea of a register of patient advocates
Andy
,
May 27, 2022
...
2
Replies:
23
Views:
2,338
MSEsperanza
Jun 7, 2022
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