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Advocacy Action Alerts

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  1. Tom Kindlon

    The Squeaky Wheel: the SMCI’s Professional Advocate Emily Taylor on Strategically Making Noise for Chronic Fatigue Syndrome

    Tom Kindlon, Mar 31, 2019
    Replies:
    1
    Views:
    2,175
    Tom Kindlon
    Mar 31, 2019
  2. Graham

    International Open Data Day

    Graham, Feb 15, 2019
    Replies:
    4
    Views:
    1,607
    Graham
    Feb 16, 2019
  3. Roy S

    Dave Tuller speaking in Boston November 3

    Roy S, Oct 26, 2018
    Replies:
    4
    Views:
    1,989
    Sly Saint
    Feb 10, 2019
  4. Andy

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    Andy, Dec 4, 2018
    Replies:
    8
    Views:
    2,137
    Stuart
    Feb 9, 2019
  5. Andy

    MEAction UK: Send your MP a message about the #MEdebate

    Andy, Jan 30, 2019
    Replies:
    3
    Views:
    1,296
    ArtStu
    Jan 30, 2019
  6. Andy

    MEAction: MPs Parliament Debate Follow-up [submit the feedback, if any, you got from your MP]

    Andy, Jan 27, 2019
    Replies:
    0
    Views:
    1,400
    Andy
    Jan 27, 2019
  7. MyalgicE

    Australia: Medical research council asking for feedback on draft report

    MyalgicE, Jan 22, 2019
    Replies:
    1
    Views:
    1,529
    Hutan
    Jan 22, 2019
  8. Trish
    Locked

    UK Action Alert - Contact your MP. Parliamentary debate Thursday 24th January 2019

    Trish, Jan 18, 2019
    Replies:
    0
    Views:
    1,214
    Trish
    Jan 18, 2019
  9. Sly Saint

    Scotland - National Action Plan on Neurological Conditions (Draft for consultation) 2019-2024

    Sly Saint, Jan 16, 2019
    Replies:
    2
    Views:
    1,424
    Emsho
    Jan 16, 2019
  10. Andy

    Apply for Stanford Medicine X Conference as ePatient or Presenter – deadline Jan. 31st

    Andy, Jan 7, 2019
    Replies:
    0
    Views:
    1,493
    Andy
    Jan 7, 2019
  11. John Mac

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    John Mac, Sep 20, 2018 ... 5 6 7
    Replies:
    135
    Views:
    20,061
    Andy
    Dec 14, 2018
  12. Andy

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    Andy, Dec 9, 2018
    Replies:
    13
    Views:
    2,100
    obeat
    Dec 10, 2018
  13. ahimsa

    USA advocacy: Ask Congress to sign letter to HHS - NEW deadline Dec. 12

    ahimsa, Dec 3, 2018
    Replies:
    3
    Views:
    1,794
    ahimsa
    Dec 7, 2018
  14. Sly Saint

    Nov 29th #YoungHeartsDay - for #KidswithME

    Sly Saint, Nov 26, 2018
    Replies:
    16
    Views:
    1,919
    Tom Kindlon
    Nov 29, 2018
  15. KarenSW

    UK Parliament - Science and Technology Select Committee

    KarenSW, Nov 7, 2018
    Replies:
    1
    Views:
    1,793
    It's M.E. Linda
    Nov 17, 2018
  16. Andy

    ME Association Quick Survey Nov 18: Do you have a healthcare plan that is consulted, adhered to and kept up to date...?

    Andy, Nov 2, 2018
    Replies:
    14
    Views:
    2,227
    Invisible Woman
    Nov 5, 2018
  17. MSEsperanza

    BBC Wales are planning a story on ME

    MSEsperanza, Sep 22, 2018 ... 2
    Replies:
    21
    Views:
    4,091
    Sly Saint
    Oct 29, 2018
  18. Milo

    Immediate twitter action request

    Milo, Oct 18, 2018
    Replies:
    5
    Views:
    1,660
    Milo
    Oct 18, 2018
  19. Esther12

    ME Action virtual protest of HHS today (Sept 14th)

    Esther12, Sep 14, 2018
    Replies:
    12
    Views:
    2,020
    Roy S
    Sep 16, 2018
  20. Medfeb

    CFSAC charter has not been renewed. Solve, #MEAction and Occupy ME all call for action.

    Medfeb, Sep 6, 2018 ... 2
    Replies:
    23
    Views:
    5,133
    Roy S
    Sep 16, 2018
Showing threads 81 to 100 of 156

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