What can wage development before and after a G93.3 diagnosis tell us about prognoses for myalgic encephalomyelitis?, 2024, Kielland et al

MrMagoo said:
Nobody cares that it’s a waste of time, or doesn’t help but they will care if it’s a waste of money.
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In an era of performative government, I'm not even sure that holds. The equation seems to be that the media demands Something is Done, governments Do Something (it doesn't matter what or how much it costs), which diverts the media's attention elsewhere for a while. Repeat in every challenging policy area.

It was ever thus, but what's changed in recent years is the shamelessness in funding initiatives that are transparently set up to fail. Such as Britain commissioning a series of clinics for long Covid—a new medical entity that everyone agrees is very challenging—which don't even have doctors.
 
MrMagoo said:
It’s so obvious - blaming the patient for not being well and not wanting to get better fits nicely with capitalism. The only way to get attention is to show that money is being wasted and there is economic inactivity. The BPS “fix” of thinking yourself better is a waste of money. Nobody cares that it’s a waste of time, or doesn’t help but they will care if it’s a waste of money.
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Any system has the capacity to convince itself of that. But capitalism is the only system that should care about efficacy on grounds of RoI alone. Show me the money? Well, it's flowing in one direction only. And yet here we are, a fake treatment model with a negative RoI based on pseudoscience, and neither capitalist nor humanitarian, or basic professionalism or even scientific or skeptic, sides care one bit that it clearly doesn't work and is highly deceptive.

Humans are just straight up weird. Some would gladly pay money to see some group of people suffer, even as they whine about being robbed by 'other' people. Or whatever. Just straight up weird stuff.

But for sure here decision-makers don't care because they believe the lies professionals tell them about this being effective. Even though they can't actually back it up with anything. No system can survive this kind of sabotage from within, unfortunately.
 
It feels like a sort of ruse to make a rehabilitation and then claim it should make people recover so that if they don’t recover it’s easy to claim it’s the patients fault who didn’t try hard enough etc and the government had done it’s duty by offering rehabilitation.
 
ME Research UK:

Researchers from Norway have published an article in the journal “Social Sciences & Humanities Open” which investigates the wages earned by 1,523 people with a G93.3 diagnosis for “post viral fatigue syndrome – this includes “Benign Myalgic Encephalomyelitis".

Read more about how findings from the study might give an insight into the course and severity of ME/CFS here: https://bit.ly/4gzxOhD
https://twitter.com/user/status/1889977979859591215
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forestglip said:
English translation published today:

Science Norway: Almost no ME/CFS patients return to work
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Another terrible summary of what ME/CFS is. But the article itself is free of any BPS.
ME/CFS is a disease that affects individuals to varying degrees and has no known cause. The main symptom is long-term fatigue.

The terms ME and CFS are usually used synonymously or interchangeably.

CFS refers to chronic fatigue syndrome.

ME refers to myalgic encephalomyelitis.
Myalgia means 'muscle pain,' encephalon comes from Greek and means 'brain,' and myelon means 'spinal cord.'
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