1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 23rd September 2024 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

registry

  1. SNT Gatchaman
    Thread

    Preprint The German Multicenter Registry for ME/CFS MECFS-R, 2024, Hieber, Scheibenbogen, Behrends et al.

    The German Multicenter Registry for ME/CFS MECFS-R Hannah Hieber; Rafael Pricoco; Katrin Gerrer; Cornelia Heindrich; Katharina Wiehler; Lorenz L...
    Thread by: SNT Gatchaman, Apr 28, 2024, 5 replies, in forum: ME/CFS research
  2. Hutan
    Thread

    Patient registries

    I need to write something to support the development of an ME/CFS patient registry in my country. I'm interested to know what ME/CFS patient...
    Thread by: Hutan, Oct 4, 2023, 3 replies, in forum: Other research methodology topics
  3. Samuel
    Thread

    Rare disease registry

    i don't really understand this article but it seems potentially relevant [given e.g. the seeming heterogeneity of m.e., diagnostic questions, and...
    Thread by: Samuel, Mar 28, 2022, 0 replies, in forum: Other health news and research
  4. Andy
    Thread

    Solve ME/CFS Initiative's ME/ CFS Patient Registry: You + M.E.

    Preview of the project. The Solve ME/CFS Initiative (SMCI) is in the final stages of constructing a new state-of-the-art patient registry...
    Thread by: Andy, Jan 12, 2018, 54 replies, in forum: News from organisations
Showing results 1 to 4 of 4