USA: News from the Bateman Horne Center

Tuesday, November 12: Free, professionally-facilitated online support group

https://batemanhornecenter.org/event/online-support-group-85/

Topic: Pain Tools Amidst Difficult Moments

1PM MT/3 PM ET/8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+November+12:+Free,+professionally-facilitated+online+support+group&iso=20241112T13&p1=220&ah=1

https://twitter.com/user/status/1853120571816472596
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New video (about 4 minutes long) from Batemen Horne Center. This is the third video in a video series they call "The Basics."

The Basics: Diagnosing ME/CFS



YouTube summary said:
Clayton Powers, DPT, discusses the basics of diagnosing myalgic encephalomyelitis (ME/CFS).
  • ME/CFS description
  • Symptoms that meet the diagnostic criteria
This video is the third in our series called The Basics. Other videos cover post-exertional malaise (PEM) and orthostatic intolerance.

Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen.
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https://batemanhornecenter.org/event/online-support-group-81/

Online Support Group

December 10 @ 1:00 pm - 2:00 pm MST/8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20241210T13&p1=220&ah=1

Free

Topic: Attending to Loneliness

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
 
Free, professionally-facilitated online support group
Topic: Facing the Holidays with Chronic Illness
https://batemanhornecenter.org/event/online-support-group-82/

Tuesday, December 17

1 PM MST/3 PM ET/8 PM in Great Britain & Ireland

Find the time in your time zone here
https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+December+17+Free,+professionally-facilitated+online+support+group&iso=20241217T13&p1=220&ah=1

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Longer description:

Online Support Group
December 17 @ 1:00 pm - 2:00 pm MST
Free
Online Support Group
Topic: Facing the Holidays with Chronic Illness
Support Group Format
Both monthly support groups are designed to include people with
ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome
supporters and loved ones.

These sessions are led by a licensed professional who has personal
experience navigating life while living with a complex chronic
illness. Each session includes a topic and guided discussion.
Participants are encouraged to participate to their comfort level
which may include listening, communicating in the chat box, and/or
sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required. Click here to register
https://batemanhornecenter.zoom.us/meeting/register/tZcvcOyrrT4tHdGd5qVBq8sva4Y-6tRVSEoB

Upon registration, you will receive a confirmation email containing
instructions on how to join the group event. We recommend attendees
test the link, their cameras, and speakers/headphones prior to
joining.

https://twitter.com/user/status/1865115485827735826
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ahimsa said:
Promising Clinical Trial Results: Advancing ME/CFS and Long COVID Treatment
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One on oxaloacetate, one on valacyclovir and celecoxib. I think we have criticised both of these trials.

I have a fair bit of time for the Bateman Horne Center, but I think a number of the trials that are done there are problematic. It's such a shame, as the Center could be contributing a lot to knowledge of useful treatments.
 
Hutan said:
One on oxaloacetate, one on valacyclovir and celecoxib. I think we have criticised both of these trials.

I have a fair bit of time for the Bateman Horne Center, but I think a number of the trials that are done there are problematic. It's such a shame, as the Center could be contributing a lot to knowledge of useful treatments.
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Thanks for your comments!

I'm unable to analyze these things, I'm just posting links that I find, so it really helps to have others add comments.
 
Dolphin said:
Free, professionally-facilitated online support group
Topic: Facing the Holidays with Chronic Illness
https://batemanhornecenter.org/event/online-support-group-82/

Tuesday, December 17

1 PM MST/3 PM ET/8 PM in Great Britain & Ireland

Find the time in your time zone here
https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+December+17+Free,+professionally-facilitated+online+support+group&iso=20241217T13&p1=220&ah=1

-----
Longer description:

Online Support Group
December 17 @ 1:00 pm - 2:00 pm MST
Free
Online Support Group
Topic: Facing the Holidays with Chronic Illness
Support Group Format
Both monthly support groups are designed to include people with
ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome
supporters and loved ones.

These sessions are led by a licensed professional who has personal
experience navigating life while living with a complex chronic
illness. Each session includes a topic and guided discussion.
Participants are encouraged to participate to their comfort level
which may include listening, communicating in the chat box, and/or
sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required. Click here to register
https://batemanhornecenter.zoom.us/meeting/register/tZcvcOyrrT4tHdGd5qVBq8sva4Y-6tRVSEoB

Upon registration, you will receive a confirmation email containing
instructions on how to join the group event. We recommend attendees
test the link, their cameras, and speakers/headphones prior to
joining.
Click to expand...
Support Group Recap: Facing the Holidays with Chronic Illness
December 17, 2004

https://batemanhornecenter.org/wp-content/uploads/2024/12/20241217-Support-Group-Recap.pdf

Extracts:
—-
“Participant shared that she experiences so much isolation it is challenging to make herself leave a social event before it causes PEM [post-exertional malaise]”
—-
“Anything worth doing is worth doing slowly with many breaks”
---
“I let my family know I can't cook, clean, or sit up for long periods. I volunteered to do some shopping, which I could do online and while horizontal, and contribute grocery money.”
---
Participant refers to her illness as “the baby” such as “the baby needs to lie down” or the baby needs to be fed by someone else.” This helps to remind the participant that it is not her fault.
---
Participant shared that it took four years to accept that she isn’t going home for Christmas. Now that she has accepted her limitations, she is getting creative such as doing a family Zoom and joining online hobby and friendship groups.
---
Participant shared that her mother and sibling are begging her to travel several states away to visit them for the holidays. She decided to visit them at another time of the year when there is less holiday stress.

https://twitter.com/user/status/1870944600820773186
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Dolphin said:
https://batemanhornecenter.org/event/online-support-group-81/

Online Support Group

December 10 @ 1:00 pm - 2:00 pm MST/8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+December+10:+Free,+professionally-facilitated+online+support+group&iso=20241210T13&p1=220&ah=1

Free

Topic: Attending to Loneliness

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
Click to expand...
Support Group Recap: Attending to Loneliness
December 10, 2024

https://batemanhornecenter.org/wp-content/uploads/2024/12/20241210-Support-Group-Recap.pdf
 
Tuesday, January 14: Free, professionally-facilitated online support group

https://batemanhornecenter.org/event/online-support-group-86/

Topic: Using Effective Coping Techniques for Living with Chronic Illness

1PM MT/3 PM ET/8 PM in Great Britain & Ireland

Advance Registration Required. Register here:

https://batemanhornecenter.zoom.us/...-CsrDMvHdShJnohEdXts7Fi7yOBvXjR#/registration

Find the time in your time zone here:

https://www.timeanddate.com/worldclock/fixedtime.html?msg=Free+Online+Support+Group:+Using+Effective+Coping+Techniques&iso=20250114T13&p1=220&ah=1
 
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Tuesday, January 21: Free, professionally-facilitated online support group

https://batemanhornecenter.org/event/online-support-group-87/

Topic: Using Boundaries to Improve the Illness Experience

1PM MT/3 PM ET/8 PM in Great Britain & Ireland

Advance Registration Required. Register here:

https://batemanhornecenter.zoom.us/...-GqrT8uG91TcVrcsS-qK3ZusCK4--ZK#/registration

Find the time in your time zone here:

https://www.timeanddate.com/worldclock/fixedtime.html?msg=Free+Online+Support+Group:+Using+Boundaries+to+Improve+the+Illness+Experience&year=2025&month=Jan&day=21&hour=13&min=0&sec=0&p1=220&ah=1
 
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Bateman Horne Center:

Catch Up or Revisit! Whether you attended or missed our third webinar co-hosted with Solve ME, Severe ME/CFS: Care, Rights & Research, we've got you covered.

Medical Panel highlights strategies to overcome barriers in providing medical care for those with Severe ME/CFS.

Moderated by Dr. Hoppers, with expert insights from Dr. Bateman, Dr. Muirhead, and Theresa Dowell, DNP, PT.

Watch the full discussion: https://loom.ly/M5SVKwI

Read the transcript: https://loom.ly/peaAtdo

Explore the resource guide: https://loom.ly/V_EJA64

https://twitter.com/user/status/1877143764289855857
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