USA: News from the Bateman Horne Center

Biography
THERESA DOWELL, FNP, PT is a nationally recognized clinician, researcher, and author in the field of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). She is a member of the US ME/CFS Clinician Coalition which is made up of expert clinicians in the field of ME/CFS. She has co-authored numerous papers and opinion statements on ME/CFS including consensus recommendations for the diagnosis and treatment of ME/CFS. She currently sits on the board of directors for the International Association of ME/CFS and is the medical director of the Workwell Foundation. Theresa received a Doctorate of Nursing Practice from Duke University and a Master of Physical Therapy from Northern Arizona University. She owns a private practice in Flagstaff, Arizona dedicated to the treatment of ME/CFS, Long COVID, and Fibromyalgia.
 
So do I. As far as I know we haven't seen any evidence beyond a few anecdotes, some positive, some negative. Hardly the basis for BHC to be raising spinal surgery as having any relevance to ME/CFS.

I had a pretty good impression of BHC until this.
 
Tuesday, November 12: Free, professionally-facilitated online support group

https://batemanhornecenter.org/event/online-support-group-85/

Topic: Pain Tools Amidst Difficult Moments

1PM MT/3 PM ET/8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+November+12:+Free,+professionally-facilitated+online+support+group&iso=20241112T13&p1=220&ah=1

https://twitter.com/user/status/1853120571816472596
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New video (about 4 minutes long) from Batemen Horne Center. This is the third video in a video series they call "The Basics."

The Basics: Diagnosing ME/CFS



YouTube summary said:
Clayton Powers, DPT, discusses the basics of diagnosing myalgic encephalomyelitis (ME/CFS).
  • ME/CFS description
  • Symptoms that meet the diagnostic criteria
This video is the third in our series called The Basics. Other videos cover post-exertional malaise (PEM) and orthostatic intolerance.

Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen.
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https://batemanhornecenter.org/event/online-support-group-81/

Online Support Group

December 10 @ 1:00 pm - 2:00 pm MST/8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20241210T13&p1=220&ah=1

Free

Topic: Attending to Loneliness

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
 
Free, professionally-facilitated online support group
Topic: Facing the Holidays with Chronic Illness
https://batemanhornecenter.org/event/online-support-group-82/

Tuesday, December 17

1 PM MST/3 PM ET/8 PM in Great Britain & Ireland

Find the time in your time zone here
https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+December+17+Free,+professionally-facilitated+online+support+group&iso=20241217T13&p1=220&ah=1

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Longer description:

Online Support Group
December 17 @ 1:00 pm - 2:00 pm MST
Free
Online Support Group
Topic: Facing the Holidays with Chronic Illness
Support Group Format
Both monthly support groups are designed to include people with
ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome
supporters and loved ones.

These sessions are led by a licensed professional who has personal
experience navigating life while living with a complex chronic
illness. Each session includes a topic and guided discussion.
Participants are encouraged to participate to their comfort level
which may include listening, communicating in the chat box, and/or
sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required. Click here to register
https://batemanhornecenter.zoom.us/meeting/register/tZcvcOyrrT4tHdGd5qVBq8sva4Y-6tRVSEoB

Upon registration, you will receive a confirmation email containing
instructions on how to join the group event. We recommend attendees
test the link, their cameras, and speakers/headphones prior to
joining.

https://twitter.com/user/status/1865115485827735826
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Last edited:
ahimsa said:
Promising Clinical Trial Results: Advancing ME/CFS and Long COVID Treatment
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One on oxaloacetate, one on valacyclovir and celecoxib. I think we have criticised both of these trials.

I have a fair bit of time for the Bateman Horne Center, but I think a number of the trials that are done there are problematic. It's such a shame, as the Center could be contributing a lot to knowledge of useful treatments.
 
Hutan said:
One on oxaloacetate, one on valacyclovir and celecoxib. I think we have criticised both of these trials.

I have a fair bit of time for the Bateman Horne Center, but I think a number of the trials that are done there are problematic. It's such a shame, as the Center could be contributing a lot to knowledge of useful treatments.
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Thanks for your comments!

I'm unable to analyze these things, I'm just posting links that I find, so it really helps to have others add comments.
 
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