USA: News from the Bateman Horne Center

Free Bateman Horne Center Online Support Group
https://batemanhornecenter.org/event/online-support-group-60/


Tuesday, December 5 @ 1:00 pm - 2:00 pm MST
3pm ET/8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20231205T13&p1=220&ah=1

Topic: Improving the Holiday Moments While Ill

(Strategies for keeping the holidays fulfilling)

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.

https://twitter.com/user/status/1730606434130264129
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Free online event: Lunch & Learn
https://batemanhornecenter.org/event/lunch-learn-virtual-event-47/

Thursday, December 14
11:30 AM MST/1:30 PM ET/6:30 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...h+&+learn&iso=20231214T1130&p1=220&ah=1&am=30

Presentation Topic: My Favorite Things

Agenda
15-20 minute presentation by community participant on an illness-related topic
-Announce the get know you" question
-Separate into virtual break-out rooms for introductions and discuss
the 'get to know you" questions
https://twitter.com/user/status/1731417975964467227
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Latest blog post from Bateman Horne Center:
Long COVID Treatment Trial, by Suzanne D. Vernon

https://batemanhornecenter.org/long-covid-treatment-trial/
(line breaks added)
Bateman Horne Center said:
This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID. The combination of these drugs has two specific mechanisms of action that could inhibit herpesvirus reactivation and keep these viruses in a latent state or tamp down their replication. The valacyclovir works by inhibiting viral DNA polymerase, reducing viral DNA synthesis and replication. Celecoxib, a COX-2 inhibitor, has anti-herpesvirus activity by downregulating COX-2 which herpesviruses turn on and up-regulate to help with viral replication.

We hypothesized that the combined usage of valacyclovir plus celecoxib would suppress tissue resident viruses and effectively manage the symptoms of Long COVID. The results were positive and showed statistically significant improvements in fatigue, pain, and symptoms of autonomic dysfunction and general well-being related in the treatment group compared to women in the control group receiving standard of care.

To confirm these encouraging results, we designed the gold standard of clinical trials – a randomized double-blind placebo controlled trial – to test whether two different daily doses of valacyclovir and celecoxib is a safe and effective treatment of symptoms in women sick with Long COVID. This trial will enroll up to 60 women who have Long COVID symptoms.

Since this is a randomized, double-blind, placebo control trial, the drug and placebo look identical and neither the participants nor BHC staff knows who is receiving drug or placebo. The participants are randomly assigned to either the treatment or placebo arm.

BHC needs to recruit and screen at least 600 women with Long COVID to enroll and randomized 60 women to achieve our target enrollment. This trial enrolls only women to minimize the differences introduced by sex in this relatively small study.
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Study requires five in-person visits to the Bateman Horne Center (in Utah).

For anyone interested in participating in the trial here's the link:

https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=H4WD4D8WNPD8DJKL

Or contact them via email ( research@batemanhornecenter.org ) or phone (801-532-8311).
 
Free, professionally-facilitated online support group Tuesday, January 9 https://batemanhornecenter.org/event/online-support-group-62/

1PM MST/3 PM ET/8 PM Great Britain & Ireland

Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+January+9+online+support+group&iso=20240109T13&p1=220&ah=1

Topic: Hopelessness & Suicidality (Navigating Chronic Illness)

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group. We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
https://twitter.com/user/status/1742260821315486161
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Topic: Respecting & Nourishing Internal Dialogue
(Keeping it Psychologically Clean)
Support Group Format

Tuesday, January 16

13:00 MST/15:00 ET/20:00 Great Britain & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20240116T13&p1=220&ah=1

Both monthly support groups are designed to include people with
ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome
supporters and loved ones.

These sessions are led by a licensed professional who has personal
experience navigating life while living with a complex chronic
illness. Each session includes a topic and guided discussion.
Participants are encouraged to participate to their comfort level
which may include listening, communicating in the chat box, and/or
sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required
https://batemanhornecenter.org/event/online-support-group-63/

https://twitter.com/user/status/1743092341643088229
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Lunch & Learn – Virtual Event January 18

11:30 MST/13:30 ET/18:30 in Great Britain & Ireland

Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=January+18+Lunch+&+Learn+–+Virtual+Event&iso=20240118T1130&p1=220&ah=1&am=30

Presentation Topic: “Fighting for the best available care in an unaware system”

Agenda – 15 to 20 minute presentation by a community participant on an illness-related topic
– Announce the “get to know you” question
– Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions

Advance Registration Required. https://batemanhornecenter.org/event/lunch-learn-virtual-event-45/

https://twitter.com/user/status/1743730998276137236
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Note the date for this has now been changed to Friday, February 16
Tuesday, February 13 FREE Online Support Group


1 PM MST/ 3 PM ET/8 PM in Great Britain & Ireland
Find the time in your time zone here
https://www.timeanddate.com/worldcl...group+February+13&iso=20240213T13&p1=220&ah=1

Topic: Minority Survival Skills

(Navigating & Owning Illness Identity)

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
https://batemanhornecenter.org/event/online-support-group-64/

https://twitter.com/user/status/1753086389007134790
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This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID.
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A reminiscence of Montoya's Valtrex trial umpteen years ago that showed stunning result in a proof-of-concept trial, only to quietly disappear from the scene when the double-blind trial failed. This is what I mean by long COVID research repeating what's been going on for the past 40 years in MECFS. So much for starting with clean slate to study post-viral illness in real time. I'm afraid this will go on ad infimum as long as they focus solely on viral/post-viral cause of MECFS.
 
Dolphin said:
Free, professionally-facilitated online support group Tuesday, January 9 https://batemanhornecenter.org/event/online-support-group-62/

1PM MST/3 PM ET/8 PM Great Britain & Ireland

Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+January+9+online+support+group&iso=20240109T13&p1=220&ah=1

Topic: Hopelessness & Suicidality (Navigating Chronic Illness)

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group. We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
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Recap notes from our Hopelessness & Suicidality Support Group held Tuesday, January 9th.

https://batemanhornecenter.org/wp-content/uploads/2024/01/1_9_2024-Support-Group-Recap.pdf

https://twitter.com/user/status/1753127431014158508
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Lunch & Learn-Virtual Event
https://batemanhornecenter.org/event/lunch-learn-virtual-event-48/
February 15 @ 11:30 AM-1 PM MST
FREE
Lunch & Learn
A Free BHC Community Event Bateman Horne Center
Presentation Topic: "Refresh Your Home Like an Interior Designer Part 2"
Agenda 15 to 20 minute presentation by community participant on an illness-related topic
-Announce the 'get know you question
- Separate into virtual break-out rooms for introductions and discuss the "get know you" questions


1:30 PM ET / 6:30 PM in Great Britain & Ireland

find the time in your time zone here:

https://www.timeanddate.com/worldcl...ual+Event&iso=20240215T1130&p1=220&ah=1&am=30

https://twitter.com/user/status/1755337253914542327
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Tuesday, February 20.

Free, professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-65/

1 PM MST/3 PM ET/8 PM in Great Britain & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20240220T13&p1=220&ah=1

Topic: Moving from Shame to Pride: Moving Away from Inappropriate Guilt

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.

https://twitter.com/user/status/1756329923122266336
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https://batemanhornecenter.org/event/online-support-group-67/

Online Support Group

March 12 @ 1:00 pm - 2:00 pm MDT

3PM ET/7PM in Great Britain & Ireland

Find the time in your time zone here
https://www.timeanddate.com/worldcl...ine+Support+Group&iso=20240312T13&p1=220&ah=1

FREE

Topic: Caring About Our Caregivers: Challenges, Solutions and Resources

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!
 
Free, professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-84/

Tuesday, April 9
1 PM MDT/3 PM/8 PM in Great Britain & Ireland

Find the time in your time zone here:

https://www.timeanddate.com/worldcl...ine+support+group&iso=20240409T13&p1=220&ah=1

Topic: What Does All of this Mean? Creating Purpose Out of the Chronic Illness Experience

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.

https://twitter.com/user/status/1773467197010055448
Click to expand...
 
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