USA: News from the Bateman Horne Center

October 24 Online Support Group
https://batemanhornecenter.org/event/online-support-group-61/

15:00 ET/20:00 in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20231024T13&p1=220&ah=1

Topic: Comparison

The first 30-minutes will focus on a predetermined topic followed by a general discussion for the last half of the hour. Both of the monthly support groups are designed to include people with ME/CFS, FM, Long
COVID, and co-existing conditions. We also welcome supporters and loved ones.

https://twitter.com/user/status/1712194908851679362
Click to expand...
 
November 14 @ 1:00 pm - 2:00 pm MST FREE Bateman Horne Center Online Support Group

https://batemanhornecenter.org/event/online-support-group-58/

3 PM Eastern Time/8 PM in Great Britain & Ireland

Find the time in your time zone here: https://www.timeanddate.com/worldcl...ine+support+group&iso=20231114T13&p1=220&ah=1

Topic: Communication & Relationships when Chronically Ill (Talking to caregivers and loved ones about wants, needs, experiences) Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.

https://twitter.com/user/status/1720212992682291702
Click to expand...
 
Thursday, November 16
https://batemanhornecenter.org/event/lunch-learn-virtual-event-44/

Presentation topic: Anti-Inflammatory Nutrition

Agenda
– 15 to 20 minute presentation by a community participant on an illness-related topic
– Announce the “get to know you” question
– Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions

1:30 PM ET/6:30 PM in Great Britain & Ireland.

Find the time in your time zone here https://www.timeanddate.com/worldcl...–+Virtual+Event&iso=20231116T1130&p1=220&ah=2

https://twitter.com/user/status/1722300282061590888
Click to expand...
 
Tuesday, November 21: Free, professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-57/

3 PM ET/8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20231121T13&p1=220&ah=1

Topic: Self-trust

(Navigating chronic illness by learning to have confidence in your own experiences)


Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

https://twitter.com/user/status/1723031996094464022
Click to expand...
 
Free Bateman Horne Center Online Support Group
https://batemanhornecenter.org/event/online-support-group-60/


Tuesday, December 5 @ 1:00 pm - 2:00 pm MST
3pm ET/8 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20231205T13&p1=220&ah=1

Topic: Improving the Holiday Moments While Ill

(Strategies for keeping the holidays fulfilling)

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.

https://twitter.com/user/status/1730606434130264129
Click to expand...
 
Free online event: Lunch & Learn
https://batemanhornecenter.org/event/lunch-learn-virtual-event-47/

Thursday, December 14
11:30 AM MST/1:30 PM ET/6:30 PM in Great Britain & Ireland

Find the time in your time zone here:
https://www.timeanddate.com/worldcl...h+&+learn&iso=20231214T1130&p1=220&ah=1&am=30

Presentation Topic: My Favorite Things

Agenda
15-20 minute presentation by community participant on an illness-related topic
-Announce the get know you" question
-Separate into virtual break-out rooms for introductions and discuss
the 'get to know you" questions
https://twitter.com/user/status/1731417975964467227
Click to expand...
 
Latest blog post from Bateman Horne Center:
Long COVID Treatment Trial, by Suzanne D. Vernon

https://batemanhornecenter.org/long-covid-treatment-trial/
(line breaks added)
Bateman Horne Center said:
This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID. The combination of these drugs has two specific mechanisms of action that could inhibit herpesvirus reactivation and keep these viruses in a latent state or tamp down their replication. The valacyclovir works by inhibiting viral DNA polymerase, reducing viral DNA synthesis and replication. Celecoxib, a COX-2 inhibitor, has anti-herpesvirus activity by downregulating COX-2 which herpesviruses turn on and up-regulate to help with viral replication.

We hypothesized that the combined usage of valacyclovir plus celecoxib would suppress tissue resident viruses and effectively manage the symptoms of Long COVID. The results were positive and showed statistically significant improvements in fatigue, pain, and symptoms of autonomic dysfunction and general well-being related in the treatment group compared to women in the control group receiving standard of care.

To confirm these encouraging results, we designed the gold standard of clinical trials – a randomized double-blind placebo controlled trial – to test whether two different daily doses of valacyclovir and celecoxib is a safe and effective treatment of symptoms in women sick with Long COVID. This trial will enroll up to 60 women who have Long COVID symptoms.

Since this is a randomized, double-blind, placebo control trial, the drug and placebo look identical and neither the participants nor BHC staff knows who is receiving drug or placebo. The participants are randomly assigned to either the treatment or placebo arm.

BHC needs to recruit and screen at least 600 women with Long COVID to enroll and randomized 60 women to achieve our target enrollment. This trial enrolls only women to minimize the differences introduced by sex in this relatively small study.
Click to expand...

Study requires five in-person visits to the Bateman Horne Center (in Utah).

For anyone interested in participating in the trial here's the link:

https://redcap01.brisc.utah.edu/ccts/redcap/surveys/?s=H4WD4D8WNPD8DJKL

Or contact them via email ( research@batemanhornecenter.org ) or phone (801-532-8311).
 
Free, professionally-facilitated online support group Tuesday, January 9 https://batemanhornecenter.org/event/online-support-group-62/

1PM MST/3 PM ET/8 PM Great Britain & Ireland

Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+January+9+online+support+group&iso=20240109T13&p1=220&ah=1

Topic: Hopelessness & Suicidality (Navigating Chronic Illness)

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group. We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
https://twitter.com/user/status/1742260821315486161
Click to expand...
 
Last edited:
Topic: Respecting & Nourishing Internal Dialogue
(Keeping it Psychologically Clean)
Support Group Format

Tuesday, January 16

13:00 MST/15:00 ET/20:00 Great Britain & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20240116T13&p1=220&ah=1

Both monthly support groups are designed to include people with
ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome
supporters and loved ones.

These sessions are led by a licensed professional who has personal
experience navigating life while living with a complex chronic
illness. Each session includes a topic and guided discussion.
Participants are encouraged to participate to their comfort level
which may include listening, communicating in the chat box, and/or
sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required
https://batemanhornecenter.org/event/online-support-group-63/

https://twitter.com/user/status/1743092341643088229
Click to expand...
 
Last edited:
Lunch & Learn – Virtual Event January 18

11:30 MST/13:30 ET/18:30 in Great Britain & Ireland

Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=January+18+Lunch+&+Learn+–+Virtual+Event&iso=20240118T1130&p1=220&ah=1&am=30

Presentation Topic: “Fighting for the best available care in an unaware system”

Agenda – 15 to 20 minute presentation by a community participant on an illness-related topic
– Announce the “get to know you” question
– Separate into virtual break-out rooms for introductions and discuss the “get to know you” questions

Advance Registration Required. https://batemanhornecenter.org/event/lunch-learn-virtual-event-45/

https://twitter.com/user/status/1743730998276137236
Click to expand...
 
Last edited:
Note the date for this has now been changed to Friday, February 16
Tuesday, February 13 FREE Online Support Group


1 PM MST/ 3 PM ET/8 PM in Great Britain & Ireland
Find the time in your time zone here
https://www.timeanddate.com/worldcl...group+February+13&iso=20240213T13&p1=220&ah=1

Topic: Minority Survival Skills

(Navigating & Owning Illness Identity)

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
https://batemanhornecenter.org/event/online-support-group-64/

https://twitter.com/user/status/1753086389007134790
Click to expand...
 
Last edited:
This past summer, we completed an open-label, proof of concept trial using a combination of valacyclovir, the generic form of Valtrex, and celecoxib, the generic form of Celebrex to see if it improved symptoms in women sick with Long COVID.
Click to expand...
A reminiscence of Montoya's Valtrex trial umpteen years ago that showed stunning result in a proof-of-concept trial, only to quietly disappear from the scene when the double-blind trial failed. This is what I mean by long COVID research repeating what's been going on for the past 40 years in MECFS. So much for starting with clean slate to study post-viral illness in real time. I'm afraid this will go on ad infimum as long as they focus solely on viral/post-viral cause of MECFS.
 
Dolphin said:
Free, professionally-facilitated online support group Tuesday, January 9 https://batemanhornecenter.org/event/online-support-group-62/

1PM MST/3 PM ET/8 PM Great Britain & Ireland

Find the time in your time zone here: https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+January+9+online+support+group&iso=20240109T13&p1=220&ah=1

Topic: Hopelessness & Suicidality (Navigating Chronic Illness)

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group. We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.
Click to expand...
Recap notes from our Hopelessness & Suicidality Support Group held Tuesday, January 9th.

https://batemanhornecenter.org/wp-content/uploads/2024/01/1_9_2024-Support-Group-Recap.pdf

https://twitter.com/user/status/1753127431014158508
Click to expand...
 
Lunch & Learn-Virtual Event
https://batemanhornecenter.org/event/lunch-learn-virtual-event-48/
February 15 @ 11:30 AM-1 PM MST
FREE
Lunch & Learn
A Free BHC Community Event Bateman Horne Center
Presentation Topic: "Refresh Your Home Like an Interior Designer Part 2"
Agenda 15 to 20 minute presentation by community participant on an illness-related topic
-Announce the 'get know you question
- Separate into virtual break-out rooms for introductions and discuss the "get know you" questions


1:30 PM ET / 6:30 PM in Great Britain & Ireland

find the time in your time zone here:

https://www.timeanddate.com/worldcl...ual+Event&iso=20240215T1130&p1=220&ah=1&am=30

https://twitter.com/user/status/1755337253914542327
Click to expand...
 
Tuesday, February 20.

Free, professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-65/

1 PM MST/3 PM ET/8 PM in Great Britain & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldcl...ine+support+group&iso=20240220T13&p1=220&ah=1

Topic: Moving from Shame to Pride: Moving Away from Inappropriate Guilt

Support Group Format

Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

We strive to foster an inclusive and accepting environment for all!

Advance Registration Required.

https://twitter.com/user/status/1756329923122266336
Click to expand...
 
Last edited:
Last edited:

New ECHO Recording Available to Watch Now!


Long COVID and Post-Viral Syndromes ECHO: Pediatric and Young Adults


What is an ECHO?


Developed by Dr. Sanjeev Arora in 2003 at The University of New Mexico, Project ECHO (Extension for Community Healthcare Outcomes) is a collaborative medical education and care management model designed to provide best-practice specialty care to more people.


An ECHO is a forum for health care professionals to come together, creating a network of knowledge, through case-based lectures & didactics.


Bateman Horne Center and University of Utah Health ECHO teams host this excellent case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions.


In this presentation Dr. Alba Azola and Dr. Melanie Hoppers discuss pediatric and young adult cases of Long COVID & ME/CFS.


  • Review recent epidemiological data on Long COVID in the young adult population
  • Describe the proposed pathophysiologic mechanism involved in Long COVID
  • Special considerations for assessment and management of LC in adolescents and young adults (AYA)
  • Case discussions

Note to community members:

We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current care regimen.

https://twitter.com/user/status/1760443395368276062
Click to expand...
 
You must log in or register to reply here.
Back
Top Bottom