USA: News from Solve ME

Tonight 11pm UK from what the translation tells me, it's 3pm PT/6pm ET

Happening today!
https://ow.ly/1Tih50VumPR

There's still time to sign up for our webinar today @ 3 pm PT / 6 pm ET:
"Investigating Immune Dysfunction and T-Cell Exhaustion via Single Cell Immune Profiling in ME/CFS and Long COVID."
Join us for a webinar on exciting new research on the immune system in ME/CFS and Long COVID. Two research labs are working together to study how immune cells behave differently in people with these illnesses.
Their goals include:
� Learning more about how the immune system is affected
� Identifying different patient subgroups
� Finding new ways to diagnose and treat these conditions
 
bobbler said:
Tonight 11pm UK from what the translation tells me, it's 3pm PT/6pm ET

Happening today!
https://ow.ly/1Tih50VumPR

There's still time to sign up for our webinar today @ 3 pm PT / 6 pm ET:
"Investigating Immune Dysfunction and T-Cell Exhaustion via Single Cell Immune Profiling in ME/CFS and Long COVID."
Join us for a webinar on exciting new research on the immune system in ME/CFS and Long COVID. Two research labs are working together to study how immune cells behave differently in people with these illnesses.
Their goals include:
� Learning more about how the immune system is affected
� Identifying different patient subgroups
� Finding new ways to diagnose and treat these conditions
Click to expand...
Station: SolveME / YouTube
Date: May 1, 2025
URL:

Item: Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in ME/CFS & Long COVID

https://twitter.com/user/status/1917705729143706033
Click to expand...
 
News for Solve M.E. Advocacy Week 2025

A reminder that Advocacy Week 2025 is is scheduled for June 23 - 27. This year all activites are 100% virtual. You can participate from home which makes it easier to engage with your representatives and advocate for change.

If you're not able to particpate in Advocacy Week you can ask friends, family members, or anyone else who might be interested to sign up (see registration link at the end of post). No experience is necessary.

A short summary of Advocacy Week:
Solve ME said:
Advocacy Week is a nationwide advocacy effort to connect people with ME/CFS and associated conditions; scientists; clinicians, and caregivers to share their unique stories with Congress. Our ultimate goal is to make these conditions widely understood, diagnosable, and treatable.

There will be actions for every energy level and ability to join, from social media posts to virtual meetings with congressional leaders. We will have levels of messaging tailored to beginning, intermediate, and experienced advocates.
Click to expand...

Solve ME has just announced the dates and times for three online training sessions. Choose the session that suits your level of experience.
Solve ME said:
There will be three 1-hour training sessions. This year we will have three different levels of messaging.
  • 9 am PT / 12 pm ET on May 28, 2025: Training for beginners and first-time advocates.
  • 9 am PT / 12 pm ET on June 4, 2025: Training for intermediate-level advocates (e.g. who have participated in a previous Advocacy Week or have done some other advocacy before but do not wish to lead a team).
  • 9 am PT / 12 pm ET on June 11, 2025: Training for team leads and advanced advocates.
Training sessions will include information on:
  • How to tell your story
  • What to expect in your meetings
  • What we are advocating for
  • How to use the Advocacy Associates App
Click to expand...

General registration for Advocacy Week (deadline May 12)

Registration for training sessions (you can select the session you want at this link)
 
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ahimsa said:
News for Solve M.E. Advocacy Week 2025

A reminder that Advocacy Week 2025 is is scheduled for June 23 - 27. This year all activites are 100% virtual. You can participate from home which makes it easier to engage with your representatives and advocate for change.

If you're not able to particpate in Advocacy Week you can ask friends, family members, or anyone else who might be interested to sign up (see registration link at the end of post). No experience is necessary.

...

General registration for Advocacy Week (deadline May 12)

Registration for training sessions (you can select the session you want at this link)
Click to expand...

The deadline for signing up for Advocacy Week has been extended to May 27. Anyone in the USA is encouraged to volunteer.

I signed up myself - I'm a first timer!

I've also signed up for the June 4th training session. I wanted to go to the May 28th training session (for new folks) but I had a conflict.
 
Solve ME Webinar:

Probing Functional Autoantibodies in Patients with ME/CFS

Thursday, July 31
12 pm Pacific / 3 pm Eastern

Dr. Akiko Iwasaki (Sterling Professor of Immunobiology and Molecular, Cellular and Developmental Biology at Yale University) is the first recipient of Solve’s ME/CFS Catalyst Award in support of her study, “Probing Functional Autoantibodies in Patients with ME/CFS.”

In this webinar, Dr. Iwasaki will talk to Solve CEO Emily Taylor about the study, which focuses on a crucial and emerging area of investigation: the role of autoantibodies—antibodies that mistakenly target a person’s own tissues—in the long-term neurological symptoms seen in patients with ME/CFS.

Dr. Iwasaki’s lab will investigate whether these autoantibodies can actually cause symptoms such as fatigue, pain, cognitive issues, and motor dysfunction by introducing patient-derived antibodies into mice and analyzing their effects. The team will also use an advanced technology (called HuProt) to scan all human proteins to find which ones are targeted by specific autoantibodies. Autoantibodies against specific human proteins may be effective biomarkers—measurable features that help us diagnose patients quicker or customize how we treat each patient.
Click to expand...

After her presentation and as time allows, Dr. Iwasaki will take questions from the audience.

Webinar registration
 
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