UK: NRS Healthcare - information page on ME

[Dolphin]

https://www.nrshealthcare.co.uk/articles/condition/chronic-fatigue-syndrome

The most in-depth guide to Chronic Fatigue Syndrome. Learn all about what causes Chronic Fatigue Syndrome, the symptoms and more. Click here to read our new complete guide to Chronic Fatigue Syndrome.

“Exercise for chronic fatigue syndrome
People with CFS often feel that they are too tired to exercise, or that the fatigue they feel after an exercise session is so great they are unable to keep doing it. However, exercise for chronic fatigue syndrome is really important and can make a big difference to the way those living with the condition feel day to day. “

"A market leading and award winning provider of products and services designed to support independent living. Our comprehensive range includes daily living aids, mobility equipment, disability equipment and therapeutic resources.

"Buy with Confidence & Trust. With a heritage over 65 years NRS Healthcare (previously known as Nottingham Rehab Supplies) has unparalleled expertise in marketing Daily Living Aids and Disability Aids for older people, disabled adults and children and their carers."

 

[Wonko]

Why is a company selling "Daily Living Aids and Disability Aids for older people, disabled adults and children and their carers." even offering "medical advice"?

Let alone one that thinks it's all about being "tired".

 

[NelliePledge]

Why is a company selling "Daily Living Aids and Disability Aids for older people, disabled adults and children and their carers." even offering "medical advice"?

Let alone one that thinks it's all about being "tired".

Content to draw traffic to the site

 

[Andy]

For online communities, the only forum they list is http://forum.chronicfatiguesyndrome.me.uk/, where you can read "Roger's route to recovery"

So what’s the truth? The truth is that where you are now began with just one imbalance created by toxicity or deficiency or both, and that imbalance is either physical, emotional, mental or spiritual or a combination of two or more of these. If you can eliminate the toxicity or deficiency, thus correcting the imbalance, nature will step in, and over time, you’d recover, at least in part and very possibly in full.

The problem is that there are hundreds of potential imbalances along with thousands of potential toxins and deficiencies, and other than by pure luck – though pure luck does happen occasionally - it’s like looking for one particular fish, let’s call him George, in a very large ocean.

And the solution is? First, dump your label, then fully accept that you have an imbalance somewhere, and that imbalances can be corrected by dealing with toxins and deficiencies and that, therefore, over time, you can bring yourself back to homeostasis. To do this, the requirement is to work with your spirit, your body, your emotions and your mind to gradually give them what they need. Importantly, embrace the existence of ‘your imbalance’ and the message that it’s giving you because doing so is the first step towards wellness.

http://forum.chronicfatiguesyndrome.me.uk/index.php/topic,20121.0.html

 

[Trish]

Blimey, what a revelation. All we have to do is dump the label and embrace our imbalances and leave it to our spirit messages...
There really is some very odd stuff on the internet.

More seriously, it would probably be a good idea for those inclined to do so to contact the company and set them straight.

 

[BruceInOz]

that imbalance is either ... or spiritual

WTF?

 

[Barry]

Lighting process! AfME leaflet that pretends to explain pacing but describes GET-style approach! Yuk

 

[Sly Saint]

this website has been updated in 2019.

Posted on 09/05/2019
The science behind why M.E. does NOT make you “lazy”

Around 17 to 24 million people are living with Myalgic Encephalomyelitis (M.E.) worldwide, making the condition far from uncommon, and as many as 25% of those have been diagnosed with a severe case. Yet despite these shocking figures, M.E. remains largely misunderstood, with many people wrongly assuming that symptoms associated with the condition make those living with it “lazy”.

M.E., or chronic fatigue syndrome, can be difficult for others to comprehend – especially as it is a health condition which is not immediately visible and has varying symptom severity. For this reason, we’ve looked into the science behind M.E. to help raise awareness of what it’s really like to live with and hopefully provide a better understanding of why those who have the condition are not “lazy” or “unmotivated”.

What is M.E.?
M.E. is a long-term condition that is characterised by exhaustion which cannot be cured through sleep or rest. It is sometimes known as chronic fatigue syndrome (CFS) or post-viral fatigue.

The symptoms and severity of M.E. are different for each individual. Whilst some people may develop mild or moderate symptoms others can experience severe cases which can seriously affect their everyday lives.

“M.E. can affect people of any age, ethnicity or background.”

As well as fatigue, the most significant symptoms for a diagnosis include: post-exertional malaise (PEM), muscle pain or fatigue, cognitive problems, irregular sleep and ongoing flu-like symptoms. PEM is the name given when symptoms of M.E. intensify due to physical or mental exertion that would be minor to other people. This can cause a severe drop in energy levels.

In 2018 the M.E. Association shared The Real ME Campaign which led to hundreds of people living with M.E. sharing photos of themselves, to highlight what the condition really looks like. They wanted to show that M.E. can happen to anyone and affect people in many ways. Due to the success of the campaign in 2018, the M.E. Association is continuing The Real ME Campaign during M.E. Awareness Week in 2019. Be sure to keep an eye out for it on social media!

https://www.nrshealthcare.co.uk/articles/news/the-science-behind-why-m-e-does-not-make-you-lazy