Trish Davis
Perhaps it will help you understand where I'm coming from with PEM if you read the S4ME fact sheet on PEM. https://www.s4me.info/threads/science-for-me-fact-sheets.43310/post-606969
Trish Davis
Sarah Tyson
Trish Davis The results of the PASS gives fascinating and detailed description of PEM in ME/CSF and I look forward to sharing and discussing the details in due course.
Sarah Tyson
Trish Davis If you don’t mind me saying, I think you have not grasped (or maybe are unwilling/unable to accept) that the point of the MEAQ is to ask about what people do, rather than the full detail of how they do it. There will be a multitude of different ways in which people perform tasks, make adaptation or other compromises to get through life. And that is fine. The issue is whether they do it, however they do it. Whether someone else may do it differently, or whether the person can do it in a certain way is irrelevant. We are not attempting to standardise the activities, we are asking if people do the activity, however they do it.
You ask about the scoring system and analysis approach. It is pretty hard to summarise as it is a large section of my life’s work! However, you really want to get your head around these issues I recommend the seminal texts by Anne Bowling. Luckily some of it appears to be available for free now-a-days. This is a good intro (Chapter 2) Measuring Health - Ann Bowling - Google Books
The analysis which focusses on a really thorough examination of the construct validity using Rasch analysis. The Wikipedia page is pretty good introduction. Rasch model - Wikipedia
Trish Davis
Sarah Tyson Thank you for the information about how you analyse the data. I'll take a look.
You say: "If you don’t mind me saying, I think you have not grasped (or maybe are unwilling/unable to accept) that the point of the MEAQ is to ask about what people do, rather than the full detail of how they do it."
My response to that is that I'm sorry to say I find this response patronising and missing my point. As I said earlier, I find FB particuarly difficult to use for in depth discussion, but I've tried to convey the central factors of cumulative effect and how often one can do an activity to gauging key factors of severity and need for care, which are presumably an important part of care planning. However good the mathemeatical/analytical instruments used, any summary statistic is too easily skewed by the sort of data this will provide. I think I'll have to leave it there. I have no energy left for arguing against someone so convinced their knowledge is superior to anything I might say.
Perhaps it will help you understand where I'm coming from with PEM if you read the S4ME fact sheet on PEM. https://www.s4me.info/threads/science-for-me-fact-sheets.43310/post-606969
Trish Davis
Sarah Tyson
Trish Davis The results of the PASS gives fascinating and detailed description of PEM in ME/CSF and I look forward to sharing and discussing the details in due course.
Sarah Tyson
Trish Davis If you don’t mind me saying, I think you have not grasped (or maybe are unwilling/unable to accept) that the point of the MEAQ is to ask about what people do, rather than the full detail of how they do it. There will be a multitude of different ways in which people perform tasks, make adaptation or other compromises to get through life. And that is fine. The issue is whether they do it, however they do it. Whether someone else may do it differently, or whether the person can do it in a certain way is irrelevant. We are not attempting to standardise the activities, we are asking if people do the activity, however they do it.
You ask about the scoring system and analysis approach. It is pretty hard to summarise as it is a large section of my life’s work! However, you really want to get your head around these issues I recommend the seminal texts by Anne Bowling. Luckily some of it appears to be available for free now-a-days. This is a good intro (Chapter 2) Measuring Health - Ann Bowling - Google Books
The analysis which focusses on a really thorough examination of the construct validity using Rasch analysis. The Wikipedia page is pretty good introduction. Rasch model - Wikipedia
Trish Davis
Sarah Tyson Thank you for the information about how you analyse the data. I'll take a look.
You say: "If you don’t mind me saying, I think you have not grasped (or maybe are unwilling/unable to accept) that the point of the MEAQ is to ask about what people do, rather than the full detail of how they do it."
My response to that is that I'm sorry to say I find this response patronising and missing my point. As I said earlier, I find FB particuarly difficult to use for in depth discussion, but I've tried to convey the central factors of cumulative effect and how often one can do an activity to gauging key factors of severity and need for care, which are presumably an important part of care planning. However good the mathemeatical/analytical instruments used, any summary statistic is too easily skewed by the sort of data this will provide. I think I'll have to leave it there. I have no energy left for arguing against someone so convinced their knowledge is superior to anything I might say.