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  1. Science For ME
    Thread

    Open letters to the UK ME Association trustees about a research project developing PROMs, led by Sarah Tyson

    In 2023 the UK ME Association announced it was funding a project, currently ongoing, which is developing Patient Reported Outcome Measures...
    Thread by: Science For ME, Apr 2, 2024, 4 replies, in forum: Open Letters and Replies
  2. Andy
    Thread

    Closed ‘The Index of ME Symptoms (TIMES)’, developing a clinical assessment toolkit for ME/CFS

    Developing a clinical assessment toolkit for people with ME/CFS and clinical services. Part 1: The Index of ME Symptoms (TIMES) We are asking...
    Thread by: Andy, Nov 28, 2023, 2 replies, in forum: Recruitment into current ME/CFS research studies
  3. Andy
    Thread

    Trial Report Home-based testing protocol to measure physiological responses to everyday activities in ME: a feasibility study, 2023, Clague-Baker et al

    ABSTRACT Background and objectives Individuals with Myalgic Encephalomyelitis (ME) have shown altered physiological responses during maximum...
    Thread by: Andy, Aug 17, 2023, 33 replies, in forum: ME/CFS research
  4. Tom Kindlon
    Thread

    Thesis System and methods to determine ME/CFS & Long Covid disease severity using wearable sensor & survey data, 2023, Sun

    Free fulltext:...
    Thread by: Tom Kindlon, Jul 11, 2023, 21 replies, in forum: ME/CFS research
  5. InitialConditions
    Thread

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    https://meassociation.org.uk/2023/05/me-association-funds-research-for-a-new-clinical-assessment-toolkit-in-nhs-me-cfs-specialist-services/ ME...
    Thread by: InitialConditions, May 8, 2023, 1,009 replies, in forum: ME/CFS research news
  6. Andy
    Thread

    Review The vicious cycle of [FND]s: a synthesis of healthcare professionals’ views on working with patients, 2020, Barnett, Tyson et al

    Full title: The vicious cycle of functional neurological disorders: a synthesis of healthcare professionals’ views on working with patients with...
    Thread by: Andy, Sep 25, 2020, 40 replies, in forum: Other psychosomatic news and research
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