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Tricia Pendergrast et al on housebound versus non-housebound ME-patients. Study correctly described?

Discussion in 'General ME/CFS news' started by Kalliope, Dec 18, 2017.

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  1. Trish

    Trish Moderator Staff Member

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    52,218
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    UK
    I've tried reading this article but I stopped half way when it said:
    I assume the Planting pots are an odd artefact of Google translate. I can't make any sense of the article.

    Edit - or was the whole thing written by a computer program. The next sentence mentions botox injections.

    And now it's just getting silly:
     
    Trish, Jan 15, 2018
    #21
    Invisible Woman, Snow Leopard, Luther Blissett and 3 others like this.
  2. Indigophoton

    Indigophoton Senior Member (Voting Rights)

    Messages:
    849
    Location:
    UK
    Actually this article appears to be a mangled version of this one, from last June,
    http://simmaronresearch.com/2017/06...activation-in-chronic-fatigue-syndrome-mecfs/

    The paper was published in September of last year (and discussed at the other place):

    PLoS One. 2017 Sep 7;12(9):e0184325. doi: 10.1371/journal.pone.0184325. eCollection 2017.Altered right anterior insular connectivity and loss of associated functions in adolescent chronic fatigue syndrome.
    Wortinger LA1,2, Glenne Øie M2,3, Endestad T2, Bruun Wyller V1.
     
    Indigophoton, Jan 15, 2018
    #22
    Invisible Woman, Luther Blissett, Andy and 1 other person like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    6,274
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    Norway
    Lost all respect for Wyller as a researcher after he recently claimed in the Journal for the Norwegian Medical Association that of course ME-patients should be encouraged to try Lightning Process. :banghead:
    Wasn't a big fan before either, and I think it is telling that he NEVER attends the international research conferences on ME. That's inexcusable.
     
    Kalliope, Jan 15, 2018
    #23
    Squeezy, Invisible Woman, Snow Leopard and 10 others like this.
  4. Esther12

    Esther12 Senior Member (Voting Rights)

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    4,393
    Wyller seems terrible. He recently offered a nothing defence of the PACE trial too.
     
    Esther12, Jan 17, 2018
    #24
    Inara, Invisible Woman, Atle and 2 others like this.
  5. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Australia
    I'm not at all amazed. Wyller's intended audience is not us, it is those in charge of making health policy and medical decisions. It is the perfect reply for that audience - an authorative "top scientists disagree", nothing to see here move along. If he engages with the details, they will go, "hang on" and get confused. He is relying on such people to not even bother looking at the details - which is the norm by the way - most authorities don't bother.
     
    Snow Leopard, Jan 17, 2018
    #25
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  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    Yeah, I can see that from a propaganda perspective, but what I meant is that now we also have authority figures criticising PACE, being on the wrong side of the argument seems more likely to harm one's own career in the long-run, so failing to engage with the details of the debate seems much more personally risky. Wyller wasn't tied to PACE in the way some were (although there are separate problems with his own work), so for him to now put forth such a weak defence of PACE seems likely to be self-defeating for him in the near future.
     
    Esther12, Jan 18, 2018
    #26
    Inara, Kalliope and Invisible Woman like this.
  7. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Well he's defending it because he is still a true believer.
     
    Snow Leopard, Jan 18, 2018
    #27
    Inara likes this.
  8. Esther12

    Esther12 Senior Member (Voting Rights)

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    4,393
    I guess that's what's bewildering for me. Wouldn't he want to check that he's on the right side with this one?
     
    Esther12, Jan 18, 2018
    #28
  9. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    :rofl::rofl::rofl::rofl::rofl:
     
    Snow Leopard, Jan 18, 2018
    #29
    Inara and Esther12 like this.
  10. Sean

    Sean Moderator Staff Member

    Messages:
    7,155
    Location:
    Australia
    Ah, Snowy, your cynicism is coming along nicely. You will make a fine old curmudgeon. :thumbup:

    This is a good point to get to, where the risks for the still uncommitted of throwing their lot in with an existing school/faction/theory are becoming obvious and well-known.

    Nobody likes backing a loser, especially if it could wreck your career and income.
     
    Sean, Jan 18, 2018
    #30
    Esther12, Valentijn, ladycatlover and 1 other person like this.
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