Medscape: Pandemic Boosts Care for Serious Illnesses at Home Hospital care at home is nothing new for patients with low-level health needs. But...
Gym at 6.30am followed by a G&T 12 hours later. For women who want to live life at their optimum, energy is currency. So, when an illness strikes...
Abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a rare disease with no known etiology. It affects 0.4% of the population,...
I’m thrilled to share this guest post by Jennie Spotila. Jennie is one of the top patient-advocates for myalgic encephalomyelitis (also known as...
Abstract Many people with severe Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) commonly receive no care from healthcare professionals,...
My Story... Resting on the sofa, I hear a churp-churp coming from just outside the lounge window. It is a blackbird – feathers immaculate, just...
I am slowly adjusting to the new realities and what they mean for life and work for at least the next couple of months; this lockdown or...
Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients...
This was recognisable, amusing and clever. It contains 12 points on being housebound....
I am looking for the paper that shows that 25% ofME patients are housebound or bed bound. Thanks!
A “fiercely independent” woman who has spent months trapped inside her own home after her medical condition deteriorated has said that it took a...
I also have not read this yet but seems relevant...
Australian Ricky Buchanan has written a much-needed report about the issues facing bedbound and homebound people in getting access to medical...
Perhaps some of you remember the study Housebound versus non housebound patients with myalgic encephalomyelitis and chronic fatigue syndrome from...
I have been housebound with a chronic health condition (Myalgic Encephalomyelitis, ME) since 2008. Yet over the last few years I’ve published...
What it's like to travel again after 14 years of being housebound:...
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