The ME Show

arewenearlythereyet said:
The thing I don’t get is what behaviours he thinks are at play? I was tested for depression and anxiety before they gave me a diagnosis ...no problem here?
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Me too. I had to get the all clear from a psychologist / neurologist / psychiatrist before I could go to the university hospital in Berlin to get my ME diagnosis. My GP is also a specialist in psychosomatic disorders (I only found out when it was too late!) and has given me the all clear in that regard too. Presumeably Michael Sharpe, never having met me, knows better. After all, I'm an ME sufferer, and that's all the proof he needs.
 
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arewenearlythereyet said:
I think MS is too far gone ..he seems to be lost amongst the smoke screens he’s created. He is now tying himself up in knots. Nice that he’s listening though.

The thing I don’t get is what behaviours he thinks are at play? I was tested for depression and anxiety before they gave me a diagnosis ...no problem here? I’m still positive I haven’t lost the plot...what I really need is a treatment that helps me with my ATP, not parlour tricks with no clinical evidence to support them, or even worse clinical evidence that proves they don’t work.
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....not to forget that the least thing you or anyone else need is clinical evidence of things not only working but causing direct harm in the short run, but a lot more critical in the long run and for overall prognosis.
 
NelliePledge said:
Hi @Gary Burgess just fishing to see if with the Invest in ME conference coming up you’ve got any interviews with any of the attendees coming up - hope so it’s such a big event. I was hoping to go but won’t be able to this year.
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Hi Nellie. I haven’t so far. Let me looking into it, see who’s there and see what’s possible. I’ll let you know what I manage. Thanks for flagging it up.
 
Morning all. A happy bank holiday to you (if that’s a thing?!). Episode four of The ME Show is now live.

I speak to Jane Colby from Tymes Trust, a charity for children with ME. A truly fascinating interview about their work but also saddening revelations about some of the situations those children and their parents find themselves in.

www.meassociation.org.uk/podcast

I hope you get chance to have a listen - and please share far and wide if you can. Thank you.
 
Another excellent show, @Gary Burgess!

I've never heard Jane Colby speak and I was very impressed. A wonderful person to have on the side of children with ME (and their parents).

What struck me especially was when she pointed out the irony that those who call this disease 'chronic fatigue syndrome' don't accept that it can be chronic and that if it continues in a child, something else must be wrong. o_O
 
Excellent podcast, Gary.
Managed to subscribe to it on iTunes (which I don't otherwise use) with the intention of rating and reviewing but apart from a drop-down menu choice of "loved" or "dislike" - obviously I ticked "loved"! - I can't find any other way to rate or review it. Any tips anyone?
 
Ravn said:
Excellent podcast, Gary.
Managed to subscribe to it on iTunes (which I don't otherwise use) with the intention of rating and reviewing but apart from a drop-down menu choice of "loved" or "dislike" - obviously I ticked "loved"! - I can't find any other way to rate or review it. Any tips anyone?
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In iTunes, go to Podcasts -> Library -> Shows -> ME Show

On the page for the full show, rather than separate episodes, you should find reviews and/or options to post a review :) (this is based on the podcast app, might be slightly different in iTunes)
 
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