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The ME Show

Discussion in 'General ME/CFS news' started by Gary Burgess, Apr 21, 2018.

  1. dangermouse

    dangermouse Senior Member (Voting Rights)

    Messages:
    791
    That’s my experience too..no negative thought patterns, no fear of using energy on the rare occasion that I get any. I have hopes and dreams and remain positive.
     
    alktipping, Atle, Binkie4 and 11 others like this.
  2. Amw66

    Amw66 Senior Member (Voting Rights)

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    6,327
    Excellent show. I thought the shorter format worked well, it deals with issues and leaves you coming back for more.

    Also a good way of introducing points , enabling further updates/ detail to be explored at a later date.
     
  3. NelliePledge

    NelliePledge Moderator Staff Member

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    13,274
    Location:
    UK West Midlands
    Hi @Gary Burgess just fishing to see if with the Invest in ME conference coming up you’ve got any interviews with any of the attendees coming up - hope so it’s such a big event. I was hoping to go but won’t be able to this year.
     
  4. TiredSam

    TiredSam Committee Member

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    10,496
    Location:
    Germany
    Me too. I had to get the all clear from a psychologist / neurologist / psychiatrist before I could go to the university hospital in Berlin to get my ME diagnosis. My GP is also a specialist in psychosomatic disorders (I only found out when it was too late!) and has given me the all clear in that regard too. Presumeably Michael Sharpe, never having met me, knows better. After all, I'm an ME sufferer, and that's all the proof he needs.
     
    Last edited: May 25, 2018
    alktipping, Atle, andypants and 3 others like this.
  5. Peter

    Peter Senior Member (Voting Rights)

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    239
    ....not to forget that the least thing you or anyone else need is clinical evidence of things not only working but causing direct harm in the short run, but a lot more critical in the long run and for overall prognosis.
     
    alktipping likes this.
  6. Gary Burgess

    Gary Burgess Established Member (Voting Rights)

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    52
    Location:
    Jersey
    Hi Nellie. I haven’t so far. Let me looking into it, see who’s there and see what’s possible. I’ll let you know what I manage. Thanks for flagging it up.
     
  7. Andy

    Andy Committee Member

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    21,944
    Location:
    Hampshire, UK
    I won't mention that I did suggest this in an email to Gary a while ago.... ;)
     
  8. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    2,338
    @Gary Burgess . Just listened to this week's programme and then posted it on my fb page. Excellent programme. You are really good at drawing in the listener. Thank you for your work.
     
  9. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,274
    Location:
    UK West Midlands
    That must be where I got the idea from :thumbup:
     
    alktipping and Trish like this.
  10. Gary Burgess

    Gary Burgess Established Member (Voting Rights)

    Messages:
    52
    Location:
    Jersey
    Morning all. A happy bank holiday to you (if that’s a thing?!). Episode four of The ME Show is now live.

    I speak to Jane Colby from Tymes Trust, a charity for children with ME. A truly fascinating interview about their work but also saddening revelations about some of the situations those children and their parents find themselves in.

    www.meassociation.org.uk/podcast

    I hope you get chance to have a listen - and please share far and wide if you can. Thank you.
     
  11. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
    Another excellent show, @Gary Burgess!

    I've never heard Jane Colby speak and I was very impressed. A wonderful person to have on the side of children with ME (and their parents).

    What struck me especially was when she pointed out the irony that those who call this disease 'chronic fatigue syndrome' don't accept that it can be chronic and that if it continues in a child, something else must be wrong. o_O
     
    Atle, Hutan, TiredSam and 14 others like this.
  12. Andy

    Andy Committee Member

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    21,944
    Location:
    Hampshire, UK
    Good to highlight the work of the Tymes Trust. I notice that Jane was careful not to name the sources of the particular unhelpful dogma on ME that she talks about - I think I can guess who she means though. :)
     
    alktipping, Hutan, Inara and 10 others like this.
  13. Skycloud

    Skycloud Senior Member (Voting Rights)

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    2,187
    Location:
    UK
    Excellent show Gary, thank you.
     
    alktipping, Hutan, Inara and 6 others like this.
  14. dangermouse

    dangermouse Senior Member (Voting Rights)

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    791
    alktipping, Hutan, Inara and 4 others like this.
  15. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,274
    Location:
    UK West Midlands
    another good one @Gary Burgess as someone like you pretty new to ME i find these are adding to my knowledge. Yet accessible enough to share with and influence non ME audience as well. I have an acquaintance who is a deputy head teacher im going to text a link to this one to :thumbup:
     
    alktipping, Hutan, Amw66 and 6 others like this.
  16. Allele

    Allele Senior Member (Voting Rights)

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    Another fantastic episode. Thank you Gary!
     
    alktipping, Hutan, Inara and 3 others like this.
  17. Amw66

    Amw66 Senior Member (Voting Rights)

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    Good episode @Gary Burgess
    Tactfully and sensitively done- a difficult task given the subject.
    It is a Kafkaesque life some lead, i' m sure they will appreciate this
     
    alktipping, Missense, MeSci and 4 others like this.
  18. Nellie

    Nellie Senior Member (Voting Rights)

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    Location:
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    Really good Gary, thank you.
     
  19. Ravn

    Ravn Senior Member (Voting Rights)

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    Location:
    Aotearoa New Zealand
    Excellent podcast, Gary.
    Managed to subscribe to it on iTunes (which I don't otherwise use) with the intention of rating and reviewing but apart from a drop-down menu choice of "loved" or "dislike" - obviously I ticked "loved"! - I can't find any other way to rate or review it. Any tips anyone?
     
  20. andypants

    andypants Senior Member (Voting Rights)

    Messages:
    1,334
    Location:
    Norway
    In iTunes, go to Podcasts -> Library -> Shows -> ME Show

    On the page for the full show, rather than separate episodes, you should find reviews and/or options to post a review :) (this is based on the podcast app, might be slightly different in iTunes)
     
    Gary Burgess, alktipping and Ravn like this.

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