Sweden - RME news

I have just watched Prof. Kristian Sommerfelt who is a paediatrician. He described in detail the steps he goes through with children and adolescents to diagnose them with ME with very careful questioning. He talked about the importance of pacing and said there is not evidence that pwME have psychological problems or that it has a psychological cause. And he was clear that CBT/GET don't work.

He said in Norway he has observed numbers of cases rising, and that schools are learning to recognise it and put in place the right support, and GP's can be good, but hospital doctors are generally not good.

He seemed like a really caring doctor who understands ME well.
 
Trish said:
I have just watched Prof. Kristian Sommerfelt who is a paediatrician. He described in detail the steps he goes through with children and adolescents to diagnose them with ME with very careful questioning. He talked about the importance of pacing and said there is not evidence that pwME have psychological problems or that it has a psychological cause. And he was clear that CBT/GET don't work.

He said in Norway he has observed numbers of cases rising, and that schools are learning to recognise it and put in place the right support, and GP's can be good, but hospital doctors are generally not good.

He seemed like a really caring doctor who understands ME well.
Click to expand...
Thank you for writing a summary @Trish
Yes, he is one of the doctors who "gets it" and recognises how brave his patients are and how good they're at coping. I'm sure it means the world for children and adolescents with ME to meet a doctor who witnesses that.
 
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ME conference October 2022

The Swedish patient organisation RME is hosting their annual ME conference 13th October [2021] from 13.00 - 17.00. The conference is aimed towards health care personell, researchers and decision makers within health care.
This year it will be on zoom and it's free to sign up.

The first lecture is by prof. Anthony Komaroff and will be in English. The rest is in Swedish, beside of one lecture in Norwegian.

Here's a translation of the programme:

Opening - Kerstin Heiling, director RME

International ME/CFS research - an overview - Professor Anthony Komaroff

INMEST-treatment in ME/CFS - Professor Jan-Erik Juto

The gut's microbiome and probiotic treatment in ME/CFS - PhD Shahram Lavasani

Fecal transplantation in ME/CFS - The Comeback Study - MD Linn Skjevling and nurse Marthe Rasmus

The relation between Long Covid and ME/CFS - Professor Jonas Bergquist

What is needed to start a regional ME/CFS-clinic? - Lecturer Jens Boman

More information here:
https://rme.nu/konferenser/
 
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The Swedish patient organisation RME is once again organising their annual ME conference.
The conference will take place in Stockholm (12th Oct) and Malmö (13th Oct) as well as in digital version.

The title of the conference and program (translated):

The disease's many faces - a conference about ME

  • Disease mechanisms with ME/CFS
    Øystein Fluge, Haukeland University Hospital, Bergen

  • Disrupted energy metabolism in ME/CFS
    Karl Johan Tronstad, University of Bergen

  • Dysautonomy in ME/CFS and EDS
    Peter Rowe, Johns Hopkins University School of Medicine, USA

  • POTS
    Peter Rowe

  • The New NICE Guideline for ME/CFS: Following the Science
    Brian Hughes, National University of Ireland

  • Pan-European patient survey - results and conclusions
    Trude Schei, Deputy Secretary General of the Norwegian ME Association

More information here:
https://rme.nu/konferenser/
 
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PROGRAM STOCKHOLM* Datum: 12 oktober kl. 13–17
Moderator: Michel Silvestri, PhD, enhetschef eHälsomyndigheten.
Anmäl dig
på rme.nu!
12.30 Registrering, utdelning av konferensmaterial
13:00 Konferensens öppnande
Henrik Fransson, RME Stockholm
Desirée Pethrus, vårdutvecklingsregionråd, Region Stockholm
13:10 Sjukdomsmekanismer vid ME/CFS – en modell Øystein Fluge, professor, Haukelands
universitetssjukhus, Bergen
13:40 Störd energimetabolism vid ME/CFS
Karl Johan Tronstad, professor, Universitetet i Bergen
14:10 Dysautonomi vid ME/CFS och postcovid Peter Rowe, professor, Johns Hopkins
University School of Medicine, Bal�more Professor Rowe belyser i två föredrag fenomenen dysautonomi och POTS i rela�on �ll ME/CFS, postcovid och EDS (det första föredraget behandlar POTS)
14:40 Sambandet mellan hypermobil EDS (Ehlers-Danlos syndrom) och ME/CFS
Peter Rowe (se ovan)
15:10 Paus med kaffe/te och enklare förtäring
15:40 Paneuropeisk pa�entenkät – resultat och slutsatser
Trude Schei, biträdande generalsekreterare Norges ME-forening
16:10 The New NICE Guideline for ME/CFS (2021): Following the Science
Brian Hughes, professor, Na�onal University of Ireland, Galway
16:30 Paneldiskussion 17:00 Avslutning
* Programmen för Stockholm resp. Malmö den 13/10 är i huvudsak iden�ska. Moderator i Malmö är Jesper Mehlsen. Läs mer på www.rme.nu/konferenser.
 
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