Scotland - National Action Plan on Neurological Conditions (Draft for consultation) 2019-2024

Sly Saint

Sly Saint

Senior Member (Voting Rights)
"This draft plan sets out our vision for driving improvement in the care, treatment and support available to people living with neurological conditions – and their carers - in Scotland. Our Vision is that everyone with a neurological condition will be able to access the care and support they need to live well, on their own terms. We are consulting on the draft plan, and the commitments it contains."

https://www2.gov.scot/Publications/2018/11/3402

A consultation on the draft National Action Plan on Neurological Conditions (2019-2024)
Overview
The draft National Action Plan on Neurological Conditions sets out the vision of improving diagnosis, treatment and care of people with neurological conditions in Scotland, and describes our commitments to achieve this vision.

This consultation invites people living with neurological conditions, carers, those who provide neurological services and wider health and social care organisations to consider and respond to the commitments made in the draft plan.

Why We Are Consulting
The neurological community is very diverse and includes people with many different types of neurological conditions, of different ages, and of different levels of health and wellbeing. It is important to ensure we capture a wide range of views.

We want peoples' engagement with the issues and commitments raised in the draft action plan, so that we can be sure (1) we have considered a wide range of perspectives in determining the priorities and commitments in the draft plan and (2) we have described the best actions possible to make improvements.

In this consultation we ask questions about the plan. Please answer them as this will help us understand your views, however you do not have to answer them if you prefer not to.

We have also provided space for you to make comments on the plan if you wish, however you do not have to make comments if you choose not to.

At the end of the consultation we will publish a report on the responses we received to the consultation.
Click to expand...

link to consultation paper and how to participate can be found here:
https://consult.gov.scot/healthcare-quality-and-improvement/neurological-conditions/

The consultation started in Nov 2018.

(Found this on AfME website:
"Action for M.E. are taking the time to respond to this plan and highlight areas where this plan will affect the lives of people with M.E./CFS. In particular, we would like to see the introduction of specialist services for people with M.E./CFS and trained healthcare professionals who can take a lead in its delivery." )

Are any of the other charities responding to this?
@Russell Fleming @Emsho @chicaguapa
 
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At the moment, the introduction of 'specialist services' could well do more harm than good. Of those being paid to run such service in the UK, how many have spoken out about the sort of problems we've seen from PACE? How many have just cashed their cheques while misleading patients about the value of the services they provide?
 
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