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Reality of ME. How would you get this across (briefly) using words or graphics?

Discussion in 'General Advocacy Discussions' started by MEMarge, Feb 4, 2021.

  1. Mij

    Mij Senior Member (Voting Rights)

    Messages:
    8,320
    I find this very difficult to deal with as well, but thankfully I live alone. When my sister visits for 2-3 weeks every year is when I'm reminded that I can not follow a recipe or cook and talk at the same time. Thankfully I recover from cognitive energy deficit much quick than physical energy deficit, but it still leaves me feeling nauseous/unwell.
     
  2. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    3,664
    I can relate to all that has been said. I like the description it feels like a flu/being hungover/after running a marathon. @arewenearlythereyet used this one. I heartily agree.

    I often feel like I'm slogging through glue, both mentally, and physically.

    ME never leaves; it's like an extremely unwanted guest. Normally joyful times, times of celebration, of holiday, this terrible unwanted, unwelcome thing is still there.
    The debilitating symptoms don't take time off; they're never on holiday.
     
  3. Forestvon

    Forestvon Senior Member (Voting Rights)

    Messages:
    405
    ahimsa, Kitty, MEMarge and 3 others like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,259
    Location:
    UK West Midlands
    Yes and this is what she manages on a good day
     
    ahimsa, Kitty, MEMarge and 2 others like this.
  5. Sean

    Sean Moderator Staff Member

    Messages:
    7,159
    Location:
    Australia
    Nothing I had experienced in my 20 years of life before I got sick compares to having ME.

    These two, plus the one I quoted in my first comment, are my favourites.
     
    Last edited: Feb 6, 2021
  6. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,522
    Ditto. And/or, like a never-ending flu + concussion.
     

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