Problematic training courses - please add

[The Andrew Sims Centre: Mental Health & Learning Disability]

Essentials: Chronic Fatigue Syndrome/ME - The Past, The Present, The Future

Wednesday 25th March 2020
The Met Hotel, King Street, Leeds, LS1 2HQ
CFS/ME is a condition which harbours more opinions than facts. Misunderstandings about the condition continue to prevent patients from being able to access appropriate care. The NICE guidelines of 2007 are in the process of being revised. Research is leading to advancements in our understanding of the mechanisms which underlay the symptoms of CFS/ME and may also give clues to the causes of fatigue in other conditions.

Led by Dr Vikki McKeever, GP with a specialist interest in CFS/ME LYPFT, and Deborah Taylor DipCOT, MSc Clinical Lead for the Therapy Service CFS/ME LYPFT, this talk aims to give an opportunity to reflect on the history of this condition and how it has been approached previously. We will update you on what services do currently both in terms of the diagnostic process and also approaches to therapy. We will then collectively look forward to consider what the future provision of care for people with CFS/ME should look like.

After attending this course delegate will be able to:

  • Understand the progress that has been made in our understanding of the condition
  • Feel more confident to recognise CFS/ME and distinguish it from other conditions which cause significant fatigue
  • Use some basic strategies to help patients manage fatigue symptoms
https://www.andrewsimscentre.nhs.uk/book-events/chronic-fatigue-syndroome

more info
https://www.andrewsimscentre.nhs.uk/assets/downloads/form---cfs---25.03.20.pdf
 
Hypnotherapy CPD in Chronic Fatigue Syndrome & Fibromyalgia
Chronic Fatigue Syndrome (CFS) or Myalgic Encephalomyelitis (ME) and Fibromyalgia are both relatively misunderstood illnesses. This course goes into considerable detail for each of the illnesses, in order to give you a better understanding of how they can affect an individual, both physically and psychologically.

The training covers the issues you may be presented with and various treatment interventions, including specific hypnotherapeutic treatment that you might choose to use.
http://psi-training.co.uk/chronic-fatigue-syndrome-me-fibromyalgia/
 
Reading the NICE guidelines talking about 'appropriately trained' staff made me think about this thread.... do we think that UK medicine is likely to be appropriately training people on ME/CFS? Is there anything we could suggest as an improvement for the NICE guidelines to help things?
 
Reading the NICE guidelines talking about 'appropriately trained' staff made me think about this thread.... do we think that UK medicine is likely to be appropriately training people on ME/CFS? Is there anything we could suggest as an improvement for the NICE guidelines to help things?
The only real change would come from an explicit repudiation of the current psychological paradigm, that it's wrong and invalid, caused enormous harm. IOM went there based on the evidence, it speaks for itself. Maybe that's too hard to swallow but this is what's needed. Especially given how secretive these things work out, a good example being the training modules based on FINE that are impossible to access without special codes and likely form the basis of what NHS use internally, rather than the current NICE guidelines.

Anything less will be insufficient, but it is admission of massive failure and that means accountability, lots of hard questions about impossible promises made years ago. Difficult to maintain while the NHS is full speed ahead with IAPT, MUS and FND and all that crap.

The point may be made and simply rejected but I don't see any alternative to making it explicitly.
 
Copied post
sigh

What motivated someone to post this today is... I don't know.



Quality "assured". Turns out when you disable quality control... well, quality is definitely not assured.
 
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Learn how to help treat Chronic Fatigue Syndrome and M.E. on this one day training course.

These debilitating conditions have puzzled doctors for decades. There is now research showing techniques that can help alleviate these conditions. This exciting course teaches you the most effective researched strategies to help your clients regain their full functioning.

We will be covering:
❖ Psycho-education: Helping the client to understand the effect the mind has on the body during these conditions. We will cover the: adrenalin spiral; Necker cube; expectation error; ACC and activating wellbeing; disparity between our perception and reality

❖ Self-awareness: The client needs to become aware of the personal triggers which activate their condition and the protective mechanisms they’ve employed which maintain the condition

❖ Shifting mind-states: Integral to success is the capacity to change mind states and the body’s physiological response. We will take our time to practise these techniques so that they feel familiar

❖ The debates: We will cover the history of Chronic Fatigue Syndrome and M.E.; the different treatment modalities and contra-indications

The course content is very practical with exercise so that you will get most of your training. The course will also go through the structure that will enable you to start running effective CFS ad ME courses for clients, valuable for anyone interested in running groups sessions in addition to their one-to-one work.

https://www.ichypnosis.com/chronic-fatigue-syndrome-m-e

(next course is at KCL)
 
Haven't read read whole thread

Do we need a repository for published materials that might get taken down now the new guidelines are out? Practitioners handbooks, patient guides, Web pages etc?
hopefully this thread might be a starting point although it was started a while ago and I don't know if anyone has started to check. There is sooo much crap out there that needs sorting out I think it would take forever to put together a list. But it's definitely something that needs addressing.

Personally I think the big ones are going to be the NHS sites. Hopefully the charities will start to make headroads in that area, although they appear to have been quite happy to have their names associated with quite a lot of questionable content in the past.
 
hopefully this thread might be a starting point although it was started a while ago and I don't know if anyone has started to check. There is sooo much crap out there that needs sorting out I think it would take forever to put together a list. But it's definitely something that needs addressing.

Personally I think the big ones are going to be the NHS sites. Hopefully the charities will start to make headroads in that area, although they appear to have been quite happy to have their names associated with quite a lot of questionable content in the past.

I guess the question is what exactly might we want to hold people to account for in the future, and then as a start anybody interested in collecting things could pick an area and look for anything published by the local unis and services
 
"Graded exercise therapy remains one of the better treatments studied"
Aaaah, the asymmetry of bullshit mixed with unaccountable abuse of statutory authority. In other words: might makes right.
 
Not a training course but worth keeping an eye on as is for GPs

ME (myalgic encephalitis)
https://gpnotebook.com/simplepage.cfm?id=-1952841719

diagnosis
https://gpnotebook.com/simplepage.cfm?ID=-650837995


The MEA writes to GP Notebook about their information for GPs on exercise for people with ME/CFS

July 6, 2022

The ME Association writes to GP Notebook about their information for GPs on exercise for people with ME/CFS – last reviewed November 2021

https://meassociation.org.uk/2022/0...n-for-gps-on-exercise-for-people-with-me-cfs/
 
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