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Problematic training courses - please add

Discussion in 'Advocacy Projects and Campaigns' started by Sly Saint, Jan 5, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    [The Andrew Sims Centre: Mental Health & Learning Disability]

    Essentials: Chronic Fatigue Syndrome/ME - The Past, The Present, The Future

    Wednesday 25th March 2020
    The Met Hotel, King Street, Leeds, LS1 2HQ
    https://www.andrewsimscentre.nhs.uk/book-events/chronic-fatigue-syndroome

    more info
    https://www.andrewsimscentre.nhs.uk/assets/downloads/form---cfs---25.03.20.pdf
     
    Invisible Woman and Esther12 like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Hypnotherapy CPD in Chronic Fatigue Syndrome & Fibromyalgia
    http://psi-training.co.uk/chronic-fatigue-syndrome-me-fibromyalgia/
     
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    shak8 and ScottTriGuy like this.
  4. Esther12

    Esther12 Senior Member (Voting Rights)

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    Reading the NICE guidelines talking about 'appropriately trained' staff made me think about this thread.... do we think that UK medicine is likely to be appropriately training people on ME/CFS? Is there anything we could suggest as an improvement for the NICE guidelines to help things?
     
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  5. rvallee

    rvallee Senior Member (Voting Rights)

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    The only real change would come from an explicit repudiation of the current psychological paradigm, that it's wrong and invalid, caused enormous harm. IOM went there based on the evidence, it speaks for itself. Maybe that's too hard to swallow but this is what's needed. Especially given how secretive these things work out, a good example being the training modules based on FINE that are impossible to access without special codes and likely form the basis of what NHS use internally, rather than the current NICE guidelines.

    Anything less will be insufficient, but it is admission of massive failure and that means accountability, lots of hard questions about impossible promises made years ago. Difficult to maintain while the NHS is full speed ahead with IAPT, MUS and FND and all that crap.

    The point may be made and simply rejected but I don't see any alternative to making it explicitly.
     
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  6. rvallee

    rvallee Senior Member (Voting Rights)

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    Last edited by a moderator: Apr 3, 2021
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    https://www.ichypnosis.com/chronic-fatigue-syndrome-m-e

    (next course is at KCL)
     
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  8. Haveyoutriedyoga

    Haveyoutriedyoga Senior Member (Voting Rights)

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    Haven't read read whole thread

    Do we need a repository for published materials that might get taken down now the new guidelines are out? Practitioners handbooks, patient guides, Web pages etc?
     
    MEMarge, Sly Saint and Trish like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    hopefully this thread might be a starting point although it was started a while ago and I don't know if anyone has started to check. There is sooo much crap out there that needs sorting out I think it would take forever to put together a list. But it's definitely something that needs addressing.

    Personally I think the big ones are going to be the NHS sites. Hopefully the charities will start to make headroads in that area, although they appear to have been quite happy to have their names associated with quite a lot of questionable content in the past.
     
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  10. Haveyoutriedyoga

    Haveyoutriedyoga Senior Member (Voting Rights)

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    I guess the question is what exactly might we want to hold people to account for in the future, and then as a start anybody interested in collecting things could pick an area and look for anything published by the local unis and services
     
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  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  12. rvallee

    rvallee Senior Member (Voting Rights)

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    Aaaah, the asymmetry of bullshit mixed with unaccountable abuse of statutory authority. In other words: might makes right.
     
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    The MEA writes to GP Notebook about their information for GPs on exercise for people with ME/CFS

    July 6, 2022

    The ME Association writes to GP Notebook about their information for GPs on exercise for people with ME/CFS – last reviewed November 2021

    https://meassociation.org.uk/2022/0...n-for-gps-on-exercise-for-people-with-me-cfs/
     
    Last edited by a moderator: Jul 7, 2022
    MEMarge likes this.

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