Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

The MEA must be feeling that they can't do anything right. They are seemingly attempting to cosy up to the rehabilitation brigade and play nice with the establishment, but get flak from people with ME/CFS. And they are still are subjected to allegations of keeping people sick in order to get donations.
Tokens always get spent.
 
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Like I said, this thread is usually good for a laugh.

Paul, most people with persistent symptoms after an infection do recover in the first couple of years. That doesn't make them special or possessors of some superior knowledge. It certainly doesn't warrant the earning of a badge, not even an embarrassingly bad badge reminiscent of frog spawn or Bubble Guppies.

What next? A day for people who recover from Covid-19 without any persistent symptoms at all to wear a badge to celebrate their moral superiority over people who develop Long Covid, no matter for how short a time?

Or perhaps Garner's followers would like to display their wide ranging moral fortitude by earning more badges?
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Went to the Gym
Don’t let your instagram followers be the only ones to know about your glorious achievement. Now everyone who sees your new gym bag patch will know that you Went to the Gym.
 
Can I have a badge for recovering from measles, mumps and chicken pox, all before the age of 7.
Take 3, one for each illness.

And let's have three special days of the year to celebrate people like you who recovered from each of those diseases without complications. Don't worry that it might be upsetting to the people who developed shingles later as a result of their chicken pox and ended up with persistent nerve pain or losing their sight. Or the people who became deaf after mumps or the pregnant mother who got measles and miscarried. Clearly these people are not made of the same special recovery stuff as you are.

And, in any case, they have had the benefit of all those secondary gains of people fussing over them, and they cost the health system plenty. So, have those special days and wear your badges with pride - you deserve to be celebrated.
 
Don't forget to mention badges and logos links to create your own 'badge of honour" to wear on Chronically Recovered Day, July 13th.
it seems a strange day to choose. 13 is still thought unlucky by many. I had a look up and found this: https://www.telegraph.co.uk/news/ne...9564716/July-13th-declared-unsafest-date.html

UK parliament breaks for summer late July, so it's not quite in the silly season (no other news) but maybe an attempt to be able to make noise before said silly season?
 
IMG_0231.jpeg

Like I said, this thread is usually good for a laugh.

Paul, most people with persistent symptoms after an infection do recover in the first couple of years. That doesn't make them special or possessors of some superior knowledge. It certainly doesn't warrant the earning of a badge, not even an embarrassingly bad badge reminiscent of frog spawn or Bubble Guppies.

What next? A day for people who recover from Covid-19 without any persistent symptoms at all to wear a badge to celebrate their moral superiority over people who develop Long Covid, no matter for how short a time?

Or perhaps Garner's followers would like to display their wide ranging moral fortitude by earning more badges?
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And for those who for example might have 'only' had something that debilitated their life for xyears and then they recovered well, certainly if you take some time to think about what that would mean at different age brackets, then anything much longer than 18months and it probably had quite a significant impact not in a 'hero' sense but in a pretty torrid time to have gone through.

I know some who think they are 'recovered' (but does changing your life completely so you can't follow any of the same opportunities you should have been able to or eg just pick up a full time job like others in your peer group could count as that?) and certainly go through stages of not wanting to revisit that time simply because ill health is made so hard, pretty much deliberately by this sort of ideology making sure it becomes a 'pile-on' and 'war of attrition' opportunistic stiaution actively seemingly trying to bury those who are ill from surviving as best they could rather than the opposite (lobbying against it being understood, lobbying to undermine adjustments, lbbying so others suggest more work that these people 'deserve to be expected to show they are doing' over those who aren't ill). Finding everyone just plays the 'delay' and ignore card even on listening to a word you say on something that needs quick action otherwise will bury you.

It is often a sad situation where you see a pretty dark side of other people's human nature or the system that you can't unsee etc. particularly people like this who get away with interfering with you just getting survival stuff done and undermining it whilst pretending 'they are help' and you just spend your time trying to educate them until you realise they are just not quite right or really wanting to help at all.

I don't see or believe that this really seems to be about acknowledgement of what any of those who have had something for proper lengths of time - yep 6months might feel bad, but it doesn't at all have the same life trajectory impacts or all the work that comes with it or bigotry sewn by all this starting to kick in 'cos this illness has been going on too long and now we are bored' - have gone through at all.

It seems to just be a way of patronising them too rather than giving them ownership of their own truth? and sticking somethign different on it, almost nicking their own 'badge' for having ridden out hell and come out the other side and replacing it with some nonsense as if 'they must have done a woo course, well done woo-seller' ?
 
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