Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

A number of posts have been moved to A general thread on the PACE trial!
These posts cover topics such as:
  • AfME's role in the PACE trial, and its role, as well as the MEA's role, in later criticism of it
  • the nature of early criticism of the PACE trial
  • concerns about the selection of participants in the PACE trial and the application of the supposed findings to groups of patients
  • the relationship between FINE and PACE
 
Paul Garner just put an utterly creepy and wholly disingenuous Comment under a recent Telegraph article.
Please note his gross tactic.


The article of the 7th October 2024 is called:

'Coroner tells NHS to act on ‘nonexistent’ ME care in wake of 27-year-old’s death'
'Maeve Boothby O’Neill died of malnutrition as a result of myalgic encephalomyelitis having battled with the condition since her teens'

https://www.telegraph.co.uk/news/20...y-oneill-myalgic-encephalomyelitis-death-nhs/



Paul Garner's Comment:

'The Oslo Chronic Fatigue Consortium is made up of researchers and clinicians who question the conventional approach of prolonged rest, social isolation, and sensory deprivation. They advocate for a more constructive approach that helps patients develop a less threatening understanding of their symptoms. Maeve's death is so heartbreaking. These symptoms are real and produced by the brain. These conditions are not necessarily incurable, and improvement and recovery is possible through more holistic approaches encompassing biological, psychological and social factors.'

.
 
Last edited:
Lou B Lou said:
Paul Garner just put an utterly creepy and wholly disingenuous Comment under a recent Telegraph article.
Please note his gross tactic.


The article of the 7th October 2024 is called:

'Coroner tells NHS to act on ‘nonexistent’ ME care in wake of 27-year-old’s death'
'Maeve Boothby O’Neill died of malnutrition as a result of myalgic encephalomyelitis having battled with the condition since her teens'

https://www.telegraph.co.uk/news/20...y-oneill-myalgic-encephalomyelitis-death-nhs/



Paul Garner's Comment:

'The Oslo Chronic Fatigue Consortium is made up of researchers and clinicians who question the conventional approach of prolonged rest, social isolation, and sensory deprivation. They advocate for a more constructive approach that helps patients develop a less threatening understanding of their symptoms. Maeve's death is so heartbreaking. These symptoms are real and produced by the brain. These conditions are not necessarily incurable, and improvement and recovery is possible through more holistic approaches encompassing biological, psychological and social factors.'

.
Click to expand...
I wonder if he is also getting mainstream medical doctors offside with his repeated publicly made statements that prolonged rest, social isolation, and sensory deprivation is the conventional approach and therefore by implication what they are and have been recommending?

These doctors can insist until the cows come home that their patients need to keep active and it will never be enough for PG. I guess he’s doing double duty trolling here and why not?
 
Last edited:
2 replies to Garner's Comment on the Telegraph thread:


1/ "Oh yes, Norway, where the Drs have fallen for mind/body 'cure' scams. How naive of them."


2/ "What a load of codswallop and wholly disingenuous of Paul Garner to present ‘prolonged rest, social isolation, and sensory deprivation’ as if they are treatments for ME, calling them ‘the conventional approach’, when they’re unavoidable, totally unwanted, consequences of the illness."

.
 
Lou B Lou said:
Paul Garner just put an utterly creepy and wholly disingenuous Comment under a recent Telegraph article.
Please note his gross tactic.


The article of the 7th October 2024 is called:

'Coroner tells NHS to act on ‘nonexistent’ ME care in wake of 27-year-old’s death'
'Maeve Boothby O’Neill died of malnutrition as a result of myalgic encephalomyelitis having battled with the condition since her teens'

https://www.telegraph.co.uk/news/20...y-oneill-myalgic-encephalomyelitis-death-nhs/



Paul Garner's Comment:

'The Oslo Chronic Fatigue Consortium is made up of researchers and clinicians who question the conventional approach of prolonged rest, social isolation, and sensory deprivation. They advocate for a more constructive approach that helps patients develop a less threatening understanding of their symptoms. Maeve's death is so heartbreaking. These symptoms are real and produced by the brain. These conditions are not necessarily incurable, and improvement and recovery is possible through more holistic approaches encompassing biological, psychological and social factors.'

.
Click to expand...
No forum-approved words for this one
 
Lou B Lou said:
Paul Garner just put an utterly creepy and wholly disingenuous Comment under a recent Telegraph article.
Please note his gross tactic.


The article of the 7th October 2024 is called:

'Coroner tells NHS to act on ‘nonexistent’ ME care in wake of 27-year-old’s death'
'Maeve Boothby O’Neill died of malnutrition as a result of myalgic encephalomyelitis having battled with the condition since her teens'

https://www.telegraph.co.uk/news/20...y-oneill-myalgic-encephalomyelitis-death-nhs/



Paul Garner's Comment:

'The Oslo Chronic Fatigue Consortium is made up of researchers and clinicians who question the conventional approach of prolonged rest, social isolation, and sensory deprivation. They advocate for a more constructive approach that helps patients develop a less threatening understanding of their symptoms. Maeve's death is so heartbreaking. These symptoms are real and produced by the brain. These conditions are not necessarily incurable, and improvement and recovery is possible through more holistic approaches encompassing biological, psychological and social factors.'

.
Click to expand...
:sick::sick::sick::wtf:

Paul Garner said:
The Oslo Chronic Fatigue Consortium is made up of researchers and clinicians who question the conventional approach of prolonged rest, social isolation, and sensory deprivation
Click to expand...
Theirs has been the only approach for decades. In the report, it's explicitly why Maeve died, even though it falls short of saying it. No one who is in the right ever has to lie half as hard as this.

What nonsense to speak of social isolation and sensory deprivation as part of convalescence, when it's a consequence of illness. Might as well speak of the conventional treatment for the flu consisting of sneezing and coughing. That they not only feel the need to pretend like they're complete idiots is one thing, but that it doesn't bother anyone is so damn absurd.
 
rvallee said:
:sick::sick::sick::wtf:


Theirs has been the only approach for decades. In the report, it's explicitly why Maeve died, even though it falls short of saying it. No one who is in the right ever has to lie half as hard as this.

What nonsense to speak of social isolation and sensory deprivation as part of convalescence, when it's a consequence of illness. Might as well speak of the conventional treatment for the flu consisting of sneezing and coughing. That they not only feel the need to pretend like they're complete idiots is one thing, but that it doesn't bother anyone is so damn absurd.
Click to expand...

Coughing and sneezing indeed.
 
Lou B Lou said:
Paul Garner just put an utterly creepy and wholly disingenuous Comment under a recent Telegraph article.
Please note his gross tactic.


The article of the 7th October 2024 is called:

'Coroner tells NHS to act on ‘nonexistent’ ME care in wake of 27-year-old’s death'
'Maeve Boothby O’Neill died of malnutrition as a result of myalgic encephalomyelitis having battled with the condition since her teens'

https://www.telegraph.co.uk/news/20...y-oneill-myalgic-encephalomyelitis-death-nhs/



Paul Garner's Comment:

'The Oslo Chronic Fatigue Consortium is made up of researchers and clinicians who question the conventional approach of prolonged rest, social isolation, and sensory deprivation. They advocate for a more constructive approach that helps patients develop a less threatening understanding of their symptoms. Maeve's death is so heartbreaking. These symptoms are real and produced by the brain. These conditions are not necessarily incurable, and improvement and recovery is possible through more holistic approaches encompassing biological, psychological and social factors.'

.
Click to expand...

The only good thing about this is that the only airplay he could get was a comment. If he's a Telegraph subsciber - that says alot!! There was a time he was doing hundreds of media articles either quoted or as an expert. At least in this media round there's been no 'othersiding' or BPS crowd approached. It just shows how far he has fallen -only kooky patient groups like Living Proof and 'free speech' groups will touch him.
 
Last edited by a moderator:
I sometimes wonder if the most zealous BPS proponents were at some point in their lives the kind of patient that they see in ME/CFS patients. The one with false perceptions of reality, fear, and so on.

Or maybe the defense mechanism is rewriting a scary past into something that's not threatening. He wasn't close to lifelong disability, he just had a few silly months of unjustified fears and bad behavioural patterns and then pulled himself together.
 
Hoopoe said:
I sometimes wonder if the most zealous BPS proponents were at some point in their lives the kind of patient that they see in ME/CFS patients. The one with false perceptions of reality, fear, and so on.

Or maybe the defense mechanism is rewriting a scary past into something that's not threatening. He wasn't close to lifelong disability, he just had a few silly months of unjustified fears and bad behavioural patterns and then pulled himself together.
Click to expand...
I think it’s more the latter. I believe he has a relative who has had ME for many years, it was mentioned by him in an interview early on, but not going to discuss his personal life beyond what he has made public himself.
In any case, he’s paying a subscription to leave comments. Not exactly reaching much of an audience.
 
Hoopoe said:
I sometimes wonder if the most zealous BPS proponents were at some point in their lives the kind of patient that they see in ME/CFS patients. The one with false perceptions of reality, fear, and so on.

Or maybe the defense mechanism is rewriting a scary past into something that's not threatening. He wasn't close to lifelong disability, he just had a few silly months of unjustified fears and bad behavioural patterns and then pulled himself together.
Click to expand...
Both. A combination of projection and defense mechanism.

No doubt some other factors in there too, like wanting to hang onto their empires, status, and incomes.
 
Sparkly Unicorn said:
The only good thing about this is that the only airplay he could get was a comment. If he's a Telegraph subsciber - that says alot!! There was a time he was doing hundreds of media articles either quoted or as an expert. At least in this media round there's been no 'othersiding' or BPS crowd approached. It just shows how far he has fallen -only kooky patient groups like Living Proof and 'free speech' groups will touch him.
Click to expand...
This has been happening for a few years. Sharpe and at least one more similar I think of, all they could manage is some lame quote as a comment on an article. Still, where it counts they're just as influential as ever so it doesn't bother them (yet).

But it is notable that I haven't seen much of Garner in the media for a long while on LC, a big contrast with early days. Amazing that this triggers zero self-reflection, but falling down pseudoscientific rabbit holes rarely gets fixed with reason or self-awareness. But Wessely was enemy #1 of the community for many years and he has done very well for himself, so it would be surprising for anyone involved in this to assume otherwise.

Until a breakthrough, their BS will reign supreme. It will be a very steep drop into irrelevancy, but until then they are dining rich on the throne of misery they helped build.
 
You must log in or register to reply here.
Back
Top Bottom