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OMF adds a fourth ME/CFS Collaborative Research Center

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BREAKING NEWS
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We are pleased to announce that we have added a fourth ME/CFS Collaborative Research Center (CRC) to join our End ME/CFS Project.
Directed by Alain Moreau, PhD, the ME/CFS Collaborative Research Center at CHU Sainte-Justine/Université de Montréal in Québec, Canada will serve to increase our international collaborative efforts.
Dr. Moreau and his lab have been researching ME/CFS for several years. After meeting Ronald W. Davis, PhD, OMF Scientific Advisory Board Director, and OMF CEO Linda Tannenbaum in 2017, Dr. Moreau has been a part of the ME/CFS working group and has presented multiple times at the community symposium held at Stanford University. Additionally, he organized the first ME/CFS Canadian Collaborative Conference held in Montreal in May 2018.
"I initially decided to invite Dr. Moreau to join our ME/CFS Working Group because he demonstrated that he could take multiple novel approaches to understand the disease. His work will be very complementary to the research of other investigators. The CRC in Montreal extends our international collaboration for solving ME/CFS." Ronald W. Davis, PhD
About the Research
The new ME/CFS Collaborative Research Center at the Université de Montréal is searching for the cause of the disease with a focus on actionable therapeutic
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targets. Their innovative research program is at the frontier of genetic predisposition and external factors that may have altered the gene expression in ME/CFS patients (epigenetic changes).
They hope that monitoring different biomarker changes during a stress test will shed light on the pathophysiology of ME/CFS and help to identify specific molecular signatures. In parallel, they intend to develop better clinical tools allowing clinicians to diagnose ME/CFS and select the best treatments to address their medical needs. Ultimately, they hope to find a cure to end ME/CFS.
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Dr. Moreau's Research Team at the ME/CFS Collaborative Research Center
CHU Sainte-Justine/Université de Montréal in Québec, Canada

Learn more about the ME/CFS Collaborative Research Center, Université de Montréal
About Dr. Moreau
Alain Moreau, PhD, is a Full Professor in the Department of Stomatology, Faculty of Dentistry and Department of Biochemistry and Molecular Medicine, Faculty of Medicine, at Université de Montréal, Montréal, Québec, Canada. Additionally, Dr. Moreau is the Director of Network for Canadian Oral Health Research. He is the Scientific Director of the Viscogliosi Laboratory in Molecular Genetics of Musculoskeletal Diseases, Sainte-Justine University Research Center, Montréal, Québec.
Dr. Moreau's chief interests of study are pediatric scoliosis, osteoarthritis, osteoporosis, and Myalgic Encephalomyelitis. Dr. Moreau is a member of the Open Medicine Foundation Scientific Advisory Board and is the Director of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network, a national research network funded by the Canadian Institute of Health Research.
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We are so proud of the great minds from across the globe that have joined
The End ME/CFS Project. Dr. Moreau's colleagues are from Canada, France,
Iran, Moldova, China, Egypt, Columbia, Spain, Russia, and Romania!
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Really glad for this right in my backyard. It's my former university :) Well, the one where I assembled a bunch of credits into a certificate anyway. Ah, the before time. That was a great time.

It's going to be a rough start, though. Montreal is being hit pretty hard right now, especially in long-term care homes. Hospitalizations are rising despite weeks of lockdown so it may be tightened further. Enough that the army has been called to provide assistance, in Quebec and Ontario.

I just hope we can convince Health Canada to give the COVID-PVFS-ME issue some importance.
 
OMF announced this week a new Celebrity Ambassador - Jennie Jacques. She is an actress and currently playing the role of Saxon Queen Judith in the historical drama TV series Vikings.

Jennie explains in her own words, why her new role as an OMF Ambassador is of significance to the entire ME/CFS community:

“I have a keen interest in the science behind ME/CFS. I am in awe of the stellar Scientific Advisory Board working for OMF. As an OMF Ambassador I hope to come up with creative ways to engage with researchers and ultimately use my platform to raise awareness and further educate people.

The illness is severely under-represented, and I am honoured to be a relatable public voice. I find myself productively looking up medical jargon after delving into videos, interviews, and seminars on ME/CFS; I hope, as an OMF Ambassador, to relay such information in a way which enables a person without the scientific vocabulary to better comprehend.

I am excited to collaborate with OMF and I look forward to building our relationship and moreover, finding a cure.”


https://www.omf.ngo/2020/05/13/actress-jennie-jacques-becomes-omfs-newest-ambassador/
 
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O M F TRIPLE GIVING TUESDAY

i just wanted to remind people that any donations to the o m f are tripled today. for those who do not know the open medicine foundation funds research into m e and f m
 
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If you're worried that you may have missed it, it looks like "Triple Giving Tuesday" runs from today (10/20) through December 1st ( a total of 44 days, I think).


Thanks to generous donors from across the globe, any amount you donate to OMF any day of the week… starting October 20… will be triple matched through International Giving Tuesday, December 1, 2020. Yes! You read that correctly! Three is the magic number!
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https://www.omf.ngo/2020/10/15/triplegivingtuesday-is-almost-here/
 
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From email


We have a unique opportunity to share with you: Donate to OMF’s Facebook Fundraiser on Tuesday, Dec. 1 (International Giving Tuesday), and have your gift matched by 6x!

When you donate to our #TripleGivingTuesdayOMF Facebook Fundraiser tomorrow, Facebook will match up to $7 million in donations — for the first $2 million, they will match 100 percent of your donation, and for the remaining $5 million, they will match 10 percent of your donation. On top of that, generous OMF supporters will triple match the amount of your gift. That means OMF can receive six times the amount you donate!

Donate Now to Make 6x the Impact on ME/CFS Research!

Facebook’s matching grant will run out quickly, so please be sure to make your donation as soon as the match launches on Tuesday, Dec. 1 (5 AM Pacific / 8 AM Eastern / 1 PM London). All you have to do is follow this link to our Facebook Fundraiser, then click the “donate” button to make your gift. The matching contributions will be applied automatically.

Additionally, Facebook covers the processing fees for your gift, so that 100 percent of your contribution goes to OMF. Your $10 donation turns into $60, $100 into $600, and so on; any amount you contribute makes a difference.
 
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Burnham-On-Sea artist Felicity Franks from Felicity Franks Portraits is donating a pet portrait to the winner of ‘The Pawfect Virtual Bake Off’, which aims to raise funds towards the treatment of Long Covid.

The event will be supporting the Open Medicine Foundation (OMF) towards medical research for chronic complex diseases with initial focus on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID.

Rebecca Handler from the Open Medicine Foundation explains about the medical research and where the donations will be going: “Early on in the pandemic, Open Medicine Foundation realised that a percentage of those who do not recover from COVID-19 may end up with ME/CFS.”

“We’re now leading a large-scale international study following the potential conversion of Long-COVID to ME / CFS; a chronic, life-altering disease. We know one thing to be true: If we don’t do the research now, millions will be left behind.”
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Bake4MECFS is asking pet owners/animal lovers to donate £4 via their website at www.bake4mecfs.com to enter, then bake something animal themed, encouraging entries to be as creative as possible.

Entries are submitted by posting a photo on social media and tagging the charity (@bake4mecfs on Instagram) or emailing them directly bake4me.social@gmail.comwith extra brownie points if their pet features in the photo of their creation! All levels and ages are welcome and will be judged accordingly.

Bake4MECFS are asking bakers to help spread the word and make a difference to this great cause by also nominating four friends to join in with them.
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https://www.burnham-on-sea.com/news...es-pet-portrait-to-charitys-virtual-bake-off/
 
6X match tomorrow.

Facebook’s matching grant will run out quickly, so please be sure to make your donation as soon as the match launches on Tuesday, November 30, (5 AM Pacific / 8 AM Eastern / 1 PM London). All you have to do is follow this link to our Facebook Fundraiser, then click the “donate” button to make your gift. The matching contributions will be applied automatically.

 
Kitty said:
It's not a great time of year to try and raise money from people who mostly don't have enough to manage in the first place, is it.
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The giving Tuesday is part of the American Thanksgiving traditions which includes Black Friday, Cyber Monday and Giving Tuesday. OMF is simply taking advantage of this tradition as are other charities. For people who are well off, giving at this time of year provides tax relief.

For most of us sick and relying on insurance or government benefits for years if not decades, charitable giving likely creates hardships, and can be a fine balance between putting food on the table, paying rent and debts, and saving for retirement, and investing in research for a cure.
 
Milo said:
The giving Tuesday is part of the American Thanksgiving traditions which includes Black Friday, Cyber Monday and Giving Tuesday. OMF is simply taking advantage of this tradition as are other charities. For people who are well off, giving at this time of year provides tax relief.
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I know this is an OMF thread, but the emails I get are actually all from UK-based charities. The run-up to Christmas* is when our budgets are most stretched—quite apart from the gift-giving, food-buying, card-sending and Christmas-tree decorating, our heating costs are doubled because it's flipping perishing! I do give when I can, but I've never managed any of the Christmas appeals.


* 'Christmas' starts in mid-October with Diwali gifts and food, runs through Hallowe'en, bonfire night, and Chanukah, and ends on 2/3 January after Hogmanay. I s'pose we could fit Thanksgiving in as well if we absolutely had to... :rofl:
 
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