What an apparently devious and deceitful survey – in keeping with everything we’ve come to expect from the PACE authors and their supporters. It would be interesting to know where/how it is being promoted.
I hope that the charities will bring this survey to the attention of their members and advise them how to complete it is they do not wish to endorse the NHS CFS clinics which promote GET and PACE-type CBT as effective treatments for ME. @Russell Fleming @EspeMor @Action for M.E.
Like others, I’ve answered “no” and explained that the current “specialist NHS services” which promote GET and PACE-type CBT are totally inadequate and inappropriate, and that I would like people with ME to have access to appropriate physician-led specialised NHS services instead.
I suspect this survey will only be used if it produces the desired result. I suggest that we request to see the results if they are not published.
From what I’ve seen before AFME and MEA would actually most likely encourage people to say Yes with the argument whatever the service currently provides it’s better to have a specialist service than nothing specifically for ME patients as it’s easier to change something that exists than set up something new. This isn’t my view.