NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

Neither have I but that's largely coz my player went on pause when the break started, and I've been doing stuff waiting for the sound to resume before I switched back........

I had no idea it had restarted until your post.
 
My main take-away from Naviaux this time was that using the means of studying and/or healing acute illness does NOT work on chronic illness. That might be a philosophical angle, but I do think it's important.
 
The current speaker is emphasizing the need for standardized data points and data sharing. A lot is over my head, but what I understand is good and important. I liked when he told NIH they need to evaluate grant applications in different ways than how they've "always done it."
 
Wonko said:
Neither have I but that's largely coz my player went on pause when the break started, and I've been doing stuff waiting for the sound to resume before I switched back........

I had no idea it had restarted until your post.
Click to expand...
I have had couple freezes today but nt hte downtime others are getting.
Not sure why, i am using Chrome on Windows
I normally use Firefox but have too many open tabs on it right now
 
Oliver Fiehn on using informatics in researching metabolomics. My main impression from this was that there are hundreds of thousands of metabolites, and libraries of mass spectrometer spectra for identifying them, and the importance of making sure data is shared. It's amazingly complex - makes me realise what a hugely complex biochemical organism we are! Very keen on open data.
 
Andy said:
For those on Apple products this might be a solution.
Click to expand...


Authorize Flash for this? Nah.

This thing is wildly inconsistent. Keeps stopping, so far three browsers including Chrome. Several times it stopped when I was closing a tab in a different browser. At the moment runs on my phone using Chrome but it did stop before on that. I wonder how often this happens at videocasts of research conferences involving diseases where a large number of substantially disabled and impaired patients are reliant on their tech to try to watch along.
 
Very interesting talk by Oliver Fiehn. He mentioned many of the issues that we will have to overcome when it comes to data analysis and for setting up the necessary mechanisms to get good quality data.

I am also very excited to hear several mentions on mining published research and harnessing it for extracting knowledge ! :

Screen Shot 2019-04-04 at 18.27.48.png
 
Just died for the first time for more then a few secs on my end, the number of viewers crashed and its says

Cannot load m3u8 crossdomain access denied
 
You're not missing much, all that's happening is they've moved down a coal mine and turned all the microphones off.

I've you're into black silence it's wonderful, and much less environmentally friendly than turning off my monitor.

ETA - I now have a message, from the internet, which says "Error loading player: No playable sources found"

Which is nice.
 
Break for lunch for an hour, then back with

Immunology of ME/CFS
Nancy Klimas (NOVA SE) –moderator
1-1:30 PM "Cytokine networks and HLA genetic susceptibility associated with ME/CFS and disease severity" Jose Montoya (StanfordUniversity)
1:30-2 PM “Potentially important T cell activity in CFS/ME” Mark Davis (Stanford University)
2-2:30 PM “Disturbance of the immune system during ME/CFS” Derya Unutmaz (Jackson Labs)
2:30-3PM “Cellular Metabolism of Immune Cells” Maureen Hanson (Cornell University)​
 
The livestream difficulties are ridiculous and are making it tough to follow things.
For a patient population plagued with cognitive issues it is additionally exhausting to try to piece things together with all of these gaps in the streaming.

I hope that in addition to posting the videos, transcripts will also be made available.
 
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