NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

And in case someone from NIH reads this -I also hope the slides for each presentation accompany or better yet, are embedded in the transcripts.

 

ETA - Koroshetz suggested that the conference today and tomorrow may help inform responses to the RFI (revised deadline 1 May 2019) so I hope all of the conference material (videos, slides, transcripts) are promptly made available so we can use them as he suggests.

 

Montoya now

 

Hi all from the conference! Not sure if mentioned in thread but auditorium is pretty full, I’m impressed with the turnout as this is a very large place. It’s a great improvement compared to the previous NIH workshops.

 

Any idea how many are ME-knowledgeable (specialists, advocates,etc) vs. folks unfamiliar with the field?

 

I personally think there was really nothing there in the Montoya cytokine results... all moderate patients were no different than controls. I’m not sure I buy this bimodal explanation either.

What do people think? I’m sure it was talked about here when the paper came out. Cytokines are a tricky business to measure accurately and reproducibly and technology might need to improve before we see anything.

 

Hard to tell you accurately by scanning the crowd.

 

I think though his HLA genetic risk factors work is very interesting

 

I took a picture of the auditorium but when tried to upload it’s too big and don’t know how to resize just from my phone so will upload tonight sorry

 

I'm having problems with the stream and appreciate screenshots being posted.

 

Cut out again