NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

[Kalliope]

 

[Sunshine3]

Brilliant that we can watch in our own time afterwards. Thanks @Andy

 

[Sisyphus]

Merged thread

This must have been posted elsewhere, but I didn't see it. The NIH (USA gov't agency which directs most health research in the country) has two days of presentations on the topic, Thursday (tomorrow) and Friday 4/4 and 4/5, to be available via streaming video cast. I'm not aware of any audience participation.

Here's the agenda:
https://custom.cvent.com/536726184E...35e11fdf/572de4fe15dd4c08a515a089094bc343.pdf

Here's the placemark for the videocast, which is scheduled to begin Thurs 4/4, 9am Eastern Daylight Time, which is ummm GMT-4.
https://videocast.nih.gov/summary.asp?live=31636&bhcp=1

 

[Sasha]

Is there any indication of whether the talks will be posted online later?

 

[Andy]

Is there any indication of whether the talks will be posted online later?

"Please note that the meeting archive will be available on the NIH Videocast website approximately a week following the close of the meeting and then available to view forever.", from my post upthread which was from an email that the organisers sent out.

 

[Trish]

Looks like it's getting ready to start.
Edit - not a good start. Watched the first few minutes, auditorium looks nearly empty. Then screen went blank, no sound, access denied.

 

[Inara]

I don't see anything, too.

 

[Trish]

It's working now.

 

[Three Chord Monty]

Worked for a few minutes, for me, then stopped cold. Tried two different browsers. When I refresh it brings up a shot that seems current but there's no sound or playback.

 

[Kalliope]

 

[Denise]

It reminds me of the effects of ME ..... start up, work a little bit, then dead stop.
[ETA - and during the dead stop (no livestream), it's like a blackout (PEM - patient not visible to the world) .]

 

[Denise]

Sorry OMF. It's not just mobiles. Livestream isn't working on my computer.

 

[Three Chord Monty]

Chrome on my phone seems to be able to run it. Thanks!

 

[Trish]

Watching on Chrome. Mostly OK but stops quite .often, so I'm missing bits.
Dr Bateman was good on clinical experience, case studies and discussing the history and purposes of the different definitions.

Naviaux now.

 

[Alvin]

I'm watching as well, Dr Bateman was good, Dr Naviaux so far is not wrong but is essentially arguing philosophy meets medicine. And he is now confirming that by quoting Greek gods.

 

[Cheshire]

I'm watching as well, Dr Bateman was good, Dr Naviaux so far is not wrong but is essentially arguing philosophy meets medicine. And he is now confirming that by quoting Greek gods.

I find it very confusing and not very convincing so far.

 

[Alvin]

I find it very confusing and not very convincing so far.

I don't agree with some of what he says and some of it is irrelevant.
He makes some good points but some have alternate just as plausible explanations.
In the end i think his work on metabolomics will be more useful then the philosophical implications of medical research or theories about how things work

 

[Trish]

I think I've heard or read most of what Dr Naviaux said from him before, but I found it interesting. I don't know enough to know whether his theories are likely to be useful.

Half hour break now.

The auditorium still looks only about a quarter full or less which is disappointing.

 

[Alvin]

Half hour break now.

Nice, i heard 15 mins then forgot the 1/2 hour part.

The auditorium still looks only about a quarter full or less which is disappointing.

Indeed.
Though the real issue is are the NIH ready to open the purse strings or are they just stringing us along yet again?

 

[Denise]

The auditorium still looks only about a quarter full or less which is disappointing.

Especially since they said the space was oversubscribed.

I wonder how many people were at the young/new investigator meeting yesterday and what will come of that....