News from the USA, United States of America

Well, yes. Of course medicos need to communicate clearly.

But the problem isn't so much miscommunication, as that what they are communicating, explicitly and implicitly, is unevidenced garbage, or simply disinterest and sometimes outright hostility.
 
'Clinical trial underway for potential Long COVID treatment'

'Nova Southeastern University and the Schmidt Initiative for Long COVID will study the efficacy of a long-acting antibody for treating Long COVID'

'With funding from SILC, NSU researchers led by Dr. Nancy Klimas are enrolling 100 patients in the multi-year study with the goal of improving their Long Covid symptoms and restoring them to full health. '

'..Long Covid is incredibly complicated and thus little understood,” said Klimas, director of the Institute for Neuro-lmmune Medicine at NSU. “Finding a treatment will be life-changing for patients suffering from the myriad symptoms of Long Covid.”

'The study will test whether the monoclonal antibody sipavibart, which is approved for the pre-exposure prophylaxis (prevention) of COVID-19 in Japan and the EU, is effective in treating Long Covid.'
 
Dakota15 said:
'Clinical trial underway for potential Long COVID treatment'

'Nova Southeastern University and the Schmidt Initiative for Long COVID will study the efficacy of a long-acting antibody for treating Long COVID'

'With funding from SILC, NSU researchers led by Dr. Nancy Klimas are enrolling 100 patients in the multi-year study with the goal of improving their Long Covid symptoms and restoring them to full health. '

'..Long Covid is incredibly complicated and thus little understood,” said Klimas, director of the Institute for Neuro-lmmune Medicine at NSU. “Finding a treatment will be life-changing for patients suffering from the myriad symptoms of Long Covid.”

'The study will test whether the monoclonal antibody sipavibart, which is approved for the pre-exposure prophylaxis (prevention) of COVID-19 in Japan and the EU, is effective in treating Long Covid.'
Click to expand...
Has the protocol been published?
 
Nightsong said:
Anyone know (assuming this goes ahead) if this is likely to affect any ongoing ME studies, biobanks - are there any dependent on NIH funding?
Click to expand...
Jackie Cliff at Brunel has a long standing NIH grant. She moved from LSHTM where the CureME Biobank team are so I don't know if the NIH funding is used to help maintain that team or not. In the early days the NIH funding was helpful to establish the Biobank as it gave them studies to work on while at the same time build a patient cohort.

At least that is my impression from afar. Someone else should have more up to date knowledge.
 
UVA Health: 'Discovery Explains Long COVID Breathing Problems'

'To dive deeper into the persistent respiratory symptoms of Long COVID, Woodfolk and her team examined extensive clinical and immune datasets from 110 patients at UVA Health’s Long COVID Clinic.'

'Researchers used a form of artificial intelligence called machine learning to study long-term changes in patients’ T cells, a type of immune cell'

“By uncovering distinct immune patterns in patients who have different types of restrictive lung disease after infection, we can better understand the immune drivers of lung injury and how these patterns may reflect different stages of the same disease process,” Woodfolk said. “Our ability to distinguish immune changes linked to lung disease from those linked to other disorders typical of Long COVID also adds a new dimension to our understanding of this complex illness.”

Study here.
 
Sharing testimony today from Minnesota House of Representatives hearing to protect MN Department of Health Long COVID Program grants & appropriation funding.

Minnesota House Health Finance and Policy Committee 5/7/25 (testimony begins at about 43 minute mark)

Many thanks to the following for testifying in-person on such short notice:

Terri Wilder, Chair of #MEAction MN
Suzanne Wheeler, Minnesota ME/CFS Alliance
Ben Hsuborger, #MEAction
Linda Pozen, #MEAction
Jesse Bethke Gomez, Metropolitan Center For Independent Living

In the House document uploaded today for the hearing, there were also over 20 submissions of written testimony in support for the MDH Long COVID Program from patients, caregivers, and medical professionals (if you search LC)

Covered as well in The Sick Times today
 
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May 15, 2025 - Yale Medicine: 'Unraveling Long COVID Pathogenesis: Insights Gained and Frontiers Ahead'

10:30 AM- 12:30 PM ET - 'Hybrid event. In person and via Zoom'

'This symposium represents the culminating session and 'report back' from the first international scientific workshop focused entirely on the pathogenesis of Long COVID, convened at Yale over a span of two days. Discussion topics will include putative immunologic, virologic, and vascular mechanisms, as well as considerations specific to the central nervous system, pediatrics, and implications for future studies and clinical trials.'

Hosts
Serena Susan Spudich, MD, MA
Akiko Iwasaki, PhD
 
The Sick Times: 'Secretary Kennedy promises to support Long COVID treatment research in Senate hearing, says son is “dramatically affected”

'Kennedy’s comments in the hearing contradict Trump administration actions targeting Long COVID and COVID-19 research & support'

'Long COVID was at the top of legislators’ priority list during today’s Senate Health, Education, Labor, and Pensions (HELP) Committee hearing with Health Secretary Robert F. Kennedy Jr. Senator Bill Cassidy (R-L.A.), who chairs the HELP Committee, asked about federal health agencies’ commitment to addressing Long COVID in his first question to the Secretary.'

'In his question, Cassidy noted the need to treat previously ignored infection-associated chronic illnesses like myalgic encephalomyelitis (ME) in tandem with Long COVID.'

Kennedy told the HELP Committee, “I am 100% committed to finding treatments for Long COVID. I’m deeply involved in that, personally. I have a son who is really dramatically affected by Long COVID.
 
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