It’s like putting a guy in charge of Gun Safety who shoots himself in the foot, then tells everyone that’s how you build resilience.
Sharing testimony today from Minnesota House of Representatives hearing to protect MN Department of Health Long COVID Program grants & appropriation funding. Minnesota House Health Finance and Policy Committee 5/7/25 (testimony begins at about 43 minute mark) Many thanks to the following for testifying in-person on such short notice: Terri Wilder, Chair of #MEAction MN Suzanne Wheeler, Minnesota ME/CFS Alliance Ben Hsuborger, #MEAction Linda Pozen, #MEAction Jesse Bethke Gomez, Metropolitan Center For Independent Living In the House document uploaded today for the hearing, there were also over 20 submissions of written testimony in support for the MDH Long COVID Program from patients, caregivers, and medical professionals (if you search LC) Covered as well in The Sick Times today
(This morning on ESPN about Boston Celtics NBA player Kristaps Porziņģis) https://www.youtube.com/watch?v=PbsNiqwl7LU at 15:50 min mark Reporter Brian Windhorst: ‘I spoke to him last night. He just described what happened to him in the last few days as ‘a big crash’. He said he was managing what he was dealing with relatively well and he’s had this crash and he feels it from a fatigue standpoint. That’s why they didn’t start him last night. Now when you hear he’s sick, he’s not sneezing, he’s not wheezing. He’s feeling incredible fatigue. Boston is one of the leading medical cities in the world. He is an NBA player with a huge investment in him, trust me, they’ve taken him and had all these specialists look at him. This is a problem. He was managing it well. He said it’s killing him that it’s happening now, but he is not himself. He admitted that.’
Boston Herald: May 8, 2025 Boston Celtics NBA player Kristaps Porziņģis "said his current condition is “probably” related to the viral illness that sidelined him for nine games in late February and early March. Head coach Joe Mazzulla said the same on Tuesday, acknowledging that the 7-foot-2 center has been “kind of dealing with it on and off, fighting through it, working through it, doing the best that he can” since he returned to the lineup on March 15. “I’ve had, like, ups and downs throughout up until this point,” Porzingis said. “Just now, I had a big crash now, and my energy, my everything, hasn’t been good. But who cares? I have to look forward, and it’ll get better from this point on.”
I hope he’s right that he will get better. And I hope he is aware of the possibility of getting PEM from covid.
Lindsay McAlpine of Yale: 'Clinicians & Scientists: my AAN talk on Long COVID is now up on Vumedi! "Is Long COVID a Neuroimmunologic Disease of the Brain?" https://twitter.com/user/status/1920864314040205674 Link to talk here.
May 15, 2025 - Yale Medicine: 'Unraveling Long COVID Pathogenesis: Insights Gained and Frontiers Ahead' 10:30 AM- 12:30 PM ET - 'Hybrid event. In person and via Zoom' 'This symposium represents the culminating session and 'report back' from the first international scientific workshop focused entirely on the pathogenesis of Long COVID, convened at Yale over a span of two days. Discussion topics will include putative immunologic, virologic, and vascular mechanisms, as well as considerations specific to the central nervous system, pediatrics, and implications for future studies and clinical trials.' Hosts Serena Susan Spudich, MD, MA Akiko Iwasaki, PhD
