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There was a vote in our second chamber, which I guess you would call the house if you're from the US. The vote was about holding a congressional debate about long covid. There was a majority support to hold such a debate. I don't know if there's anything we can do to latch on to that, but it's mainly about the state of care for long covid patients and the lack of good research. Our health minister and his party voted against btw. And therein lies our problem with regards to the situation surrounding ME too. Willful ignorance. If we don't research long covid and ME we don't have to do anything about it.
The outbreak management team supported the decision I think, estimating there are 100.000-350.000 long covid patients in the Netherlands but also saying we can't be sure because proper research just isn't done and we still don't have a clear case definition. For ME we have that(IOM, CCC, ICC) but ZonMw gets allowed or forced to sidestep it.
There was a vote in our second chamber, which I guess you would call the house if you're from the US. The vote was about holding a congressional debate about long covid. There was a majority support to hold such a debate. I don't know if there's anything we can do to latch on to that, but it's mainly about the state of care for long covid patients and the lack of good research. Our health minister and his party voted against btw. And therein lies our problem with regards to the situation surrounding ME too. Willful ignorance. If we don't research long covid and ME we don't have to do anything about it.
The outbreak management team supported the decision I think, estimating there are 100.000-350.000 long covid patients in the Netherlands but also saying we can't be sure because proper research just isn't done and we still don't have a clear case definition. For ME we have that(IOM, CCC, ICC) but ZonMw gets allowed or forced to sidestep it.
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