Have Your Voice Heard - Learning about ME/CFS - Consultation Survey
The Covid Rehabilitation service within NHS Arran & Ayrshire (Scotland) has received additional temporary funding to accommodate people living with conditions like Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS).
As we are already established as a long covid service, we are particularly interested in hearing more from those with ME/CFS. If you have ME/CFS or have a friend or family member with ME/CFS, we would like to hear from you. Throughout February 2026 we are hoping to reach out to as many people as possible, with the survey set to close on 28th February 2026.
What we are looking to learn is: what is important to you in terms of symptom presentation and management, what do you want to see in a service, what barriers have you experienced in accessing services, and what has helped?
We are happy to hear any thoughts you have. Please do not worry about writing answers that feel like the 'right' answer for each question; the main questions are open format so that you can write whatever comes to mind. The responses will be used to help us shape the development of our service, so that we can deliver appropriate care.
This is an anonymous survey: we will not ask you for any identifying information, and any information you give will be treated as confidential. If you have any further questions, you can contact us at the email address below.
Thank you, and we are looking forward to hearing from you.
Covid19.Rehab@aapct.scot.nhs.uk
Project Lead: Anya Owen (she/her), Assistant Psychologist
HARP Covid Rehabilitation
