News from Scandinavia

A news article/radio segment (2 minutes, in Swedish), based on the Swedish Covid Association's press release:

Ny mätning: Så många svenskar uppger att de har postcovid
https://www.sverigesradio.se/artikel/ny-matning-sa-manga-svenskar-uppger-att-de-har-postcovid
Auto-translate said:
New survey: How many Swedes say they have post-covid
2:02 min

A new survey from Kantar Sifo, commissioned by the Swedish Covid Association, shows that 3 per cent of respondents state that they have post-covid.

The Swedish Covid Association thinks the figures are particularly important because no authority has been tasked with mapping how widespread the disease is and they think the figures show that more needs to be done to map the disease.

‘It's a very poor quality of life you live with,’ says 55-year-old Mats Carlberg, who has had post-covid for five years.
 
Job ad from Karolinska, looking for an överläkare (consultant, director, head physician, senior physician?) for the post-infectious diseases clinic.

Överläkare till Mottagningen för postinfektiösa sjukdomar
https://karolinska.weselect.com/p/61107-overlakare-till-mottagningen-for-postinfektiosa-sjukdomar

(I note several words I don't like, such as "complex", "medical psychology", "behavioural" etc. Psychiatrists are included in the specialities that are welcome to apply. No post-infectious experience required. Hmm... :cautious:)

Google Translate, English.
 
Job ad from Karolinska, looking for an överläkare (consultant, director, head physician, senior physician?) for the post-infectious diseases clinic.

Överläkare till Mottagningen för postinfektiösa sjukdomar
https://karolinska.weselect.com/p/61107-overlakare-till-mottagningen-for-postinfektiosa-sjukdomar

(I note several words I don't like, such as "complex", "medical psychology", "behavioural" etc. Psychiatrists are included in the specialities that are welcome to apply. No post-infectious experience required. Hmm... :cautious:)

Google Translate, English.

The position means that you will be clinically active at the Post-Infectious Diseases Reception in Huddinge and have your organizational affiliation at the Behavioral Medicine Section.
Does this mean the Infectious Diseases sort under Behavioural Medicine?
Or that this particular position does?
Qualifications
Claim:
- Licensed physician with a specialist certificate in one of the following specialties: Rehabilitation Medicine, General Medicine, Oncology, Infectious Diseases, Pulmonary Diseases, Neurology, Rheumatology, Internal Medicine, Psychiatry or Geriatrics.
Based on the qualifications, it seems like an oncologist could sort under Behavioural Medicine. Which could imply that Infectious Disease does as well.

This website from Karolinska has an English definition of Behavioural Medicine:
The interdisciplinary field concerned with the development and integration of behavioral and biomedical science, knowledge, and techniques relevant to health and illness and the application of this knowledge and these techniques to prevention, diagnosis, treatment, and rehabilitation.
So it seems like they have an entire BPS section! I wonder what isn’t included..
 
News article + short radio segment (1 min).

300 000 personer kan ha postcovid – Martin från Molkom en av alla drabbade
https://www.svt.se/nyheter/lokalt/varmland/300-000-personer-kan-ha-postcovid-jag-kunde-inte-ens-ga
Auto-translate said:
300,000 people may have post-covid - Martin from Molkom one of the many affected

Five years after the start of the pandemic, 300,000 Swedes are still living with long-term symptoms, according to a new Sifo survey. Martin Blomwaiss is one of them. After being hospitalised in an intensive care unit (ICU), he has been struggling for years to get his everyday life back.

Start the clip above to hear more about Martin's 4-year battle with post-covid.

Martin Blomwaiss from Molkom outside Karlstad was not vaccinated and fell ill with COVID-19 in 2021. He was hospitalised in the intensive care unit and all his internal organs were affected, eventually losing the ability to walk and sit steadily.

- ‘I couldn't even sit on a chair without falling off,’ he says.

The post-covid clinic in Karlstad helps those affected

A new Sifo survey commissioned by the Swedish Covid Association shows that 300,000 Swedes are still living with long-term symptoms.

Post-covid clinics are currently only available in Värmland and Stockholm. The clinic in Karlstad receives referrals from all over the country, mainly from Västra Götaland.

- ‘As long as we see that there are people who need us, we will keep the postcovid clinic open,’ says Monica Magnusson, head of department.

Last year, the clinic received 40 referrals, including Martin.

- ‘They were very good, and I got a second chance at life,’ he says.

‘I hope to get my life back’

For Martin, the next step awaits: in April, he will start 25 per cent job training as a caretaker at a school in Molkom, with the aim of returning to a normal life.

- ‘I want to go back and do my part and give back to society, just as I have been helped,’ he says.

At the moment, around ten patients are being cared for at the post-covid clinic in Karlstad. The team consists of doctors, psychologists, occupational therapists, physiotherapists, nurses and assistant nurses, who together help patients to regain their quality of life.
 
A new long covid and ME/CFS clinic is set to open in Skåne, Sweden.

Ny mottagning ska hjälpa patienter med postcovid
https://www.sydsvenskan.se/2025-03-18/ny-mottagning-ska-hjalpa-patienter-med-postcovid-Rg6Ey/

Ny mottagning ska hjälpa patienter med postcovid
https://www.hd.se/2025-03-18/ny-mottagning-ska-hjalpa-patienter-med-postcovid/
Auto-translate said:
New clinic to help patients with post-covid

[...] After a basic assessment at the primary care clinic, a doctor will be able to send the patient to the new clinic for a more in-depth assessment and treatment of symptoms. The idea is that several professionals, ranging from doctors to physiotherapists, will work in a team around the patient.

The care period will have a clear start and end date, and the patient will then be sent back to primary care for further rehabilitation, with support from the clinic.

- ‘It will be relatively short interventions on our part, but it will be of great importance to the patient,’ says Liselott Rehn, acting area manager in the Nearby Care and Health administration in Region Skåne, which will be responsible for the clinic.

‘It has not been decided where it will be located, but it is clear that it will be in Skåne. Probably in Malmö or Lund,’ says Liselott Rehn.

They are now looking for a suitable location.

- ‘We had hoped to open after the summer, but I don't think it will be that early.
 
(Not ME specific, but relevant to pwME especially severe and very severe pwME.)

Opinion piece about how important communication aids are for some disabled people, and how difficult they are to get because the people in power think they are too expensive. :thumbsup:

Neka inte människor med funktionsnedsättningar rätten att kommunicera
https://www.altinget.se/artikel/nek...funktionsnedsattningar-ratten-att-kommunicera

"Don't deny people with disabilities the right to communicate"
 
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From last year, but while looking for something else I came across this opinion piece written by a psychologist who got LC, and at the time of writing she is 8 months post-infection and 80% back at work. Talking about her own (and the rest of healthcare's) negative preconceptions of "fatiguing illness". Though sadly also build up under why this is so by writing a lot about the importance of hope, how saying symptoms are "long"(-lasting) not "chronic" can be helpful in the healing journey, supporting GET and rehab despite not learning anything by going to rehab, and agrees with the doctor that told her people that get long covid are in their busiest part of life and going through a lot of stress.

Long covid og utmattelse – ulik grad av stigma
Long covid and fatigue – varying degrees of stigma
 
From last year, but while looking for something else I came across this opinion piece written by a psychologist who got LC, and at the time of writing she is 8 months post-infection and 80% back at work. Talking about her own (and the rest of healthcare's) negative preconceptions of "fatiguing illness". Though sadly also build up under why this is so by writing a lot about the importance of hope, how saying symptoms are "long"(-lasting) not "chronic" can be helpful in the healing journey, supporting GET and rehab despite not learning anything by going to rehab, and agrees with the doctor that told her people that get long covid are in their busiest part of life and going through a lot of stress.

Long covid og utmattelse – ulik grad av stigma
Long covid and fatigue – varying degrees of stigma
Ugh, I don’t believe she has a good understanding of LC or ME/CFS at all. It looks a lot like what I thought of both diagnoses after around one year, and I was wrong about pretty much everything.

It seems to me like she’s had some kind of PVF based on how she says that she didn’t fit some of the CCC-ME/CFS criteria and how she’s almost recovered at the 1 year mark.

She says ‘I might be wrong’ and ‘this might be a coincidence’ many times, but she doesn’t spend any time talking about the alternative interpretations and the implication of being wrong if she actually is wrong. Which is a shame - it would probably have taught her and the readers a lot more than this speculative anecdote does.
 
The Swedish government is assigning the Swedish Agency for Health and Care Services Analysis to map knowledge management in other countries for diseases or conditions "where knowledge is weak". The aim is "to improve care for these patients in Sweden". They have to present their final report to the Ministry of Social Affairs by 30 April 2026.

Press release: Ny kartläggning ska stärka vården för patienter med svårdiagnostiserade tillstånd
https://www.regeringen.se/pressmedd...-patienter-med-svardiagnostiserade-tillstand/
Auto-translate said:
Press release: New survey to improve care for patients with difficult-to-diagnose conditions

[...] The Agency for Healthcare Policy Analysis will examine how countries around the world are working to disseminate and apply knowledge about post-covid and other conditions such as ME/CFS, PANS/PANDAS and POTS. Particular focus will be placed on vulnerable groups to ensure that care is equitable and accessible to all.

Patients with post-covid and similar conditions often find it difficult to get the right care due to a lack of knowledge and evidence-based treatment methods. The National Board of Health and Welfare has previously updated the state of knowledge for these conditions, but there are still large gaps in knowledge.

By studying how other countries handle knowledge management and implementation of care, the government hopes to learn lessons that can improve care in Sweden. The focus will be on how governance can be more coordinated, effective and adapted to needs.

To implement the assignment, the Government has allocated SEK 3 million for 2025. The funds will be used to collect and analyse data from other countries.

Uppdrag till Myndigheten för vård- och omsorgsanalys att kartlägga kunskapsstyrningen i andra länder gällande sjukdomar eller tillstånd med svagt kunskapsläge
https://www.regeringen.se/regerings...domar-eller-tillstand-med-svagt-kunskapslage/
Auto-translate said:
Assignment to the Swedish Agency for Health and Care Services Analysis to map the knowledge management in other countries regarding diseases or conditions with a weak knowledge base

[...] Patients, relatives and healthcare professionals should be confident that the best available knowledge is used in every healthcare encounter. Knowledge management is an important part of this work. In short, knowledge management is a process in which knowledge is disseminated, applied, the results followed up and new knowledge created in a coherent chain.

The mapping should be based on a patient and equality perspective. During the assignment, a special focus will be placed on particularly vulnerable groups.

This new assigment is in addition to the already ongoing project to produce a new evidence review for post-covid. Forum thread here:
https://www.s4me.info/threads/swede...nce-reviews-for-post-covid.42487/#post-585255
 
The Swedish government is assigning the Swedish Agency for Health and Care Services Analysis to map knowledge management in other countries for diseases or conditions "where knowledge is weak". The aim is "to improve care for these patients in Sweden". They have to present their final report to the Ministry of Social Affairs by 30 April 2026.

Press release: Ny kartläggning ska stärka vården för patienter med svårdiagnostiserade tillstånd
https://www.regeringen.se/pressmedd...-patienter-med-svardiagnostiserade-tillstand/


Uppdrag till Myndigheten för vård- och omsorgsanalys att kartlägga kunskapsstyrningen i andra länder gällande sjukdomar eller tillstånd med svagt kunskapsläge
https://www.regeringen.se/regerings...domar-eller-tillstand-med-svagt-kunskapslage/


This new assigment is in addition to the already ongoing project to produce a new evidence review for post-covid. Forum thread here:
https://www.s4me.info/threads/swede...nce-reviews-for-post-covid.42487/#post-585255
Thank you @mango for sharing these news. This sounds promising and I hope NICE's guidelines will play an important part.
 
The Swedish government is assigning the Swedish Agency for Health and Care Services Analysis to map knowledge management in other countries for diseases or conditions "where knowledge is weak". The aim is "to improve care for these patients in Sweden". They have to present their final report to the Ministry of Social Affairs by 30 April 2026.

Press release: Ny kartläggning ska stärka vården för patienter med svårdiagnostiserade tillstånd
https://www.regeringen.se/pressmedd...-patienter-med-svardiagnostiserade-tillstand/


Uppdrag till Myndigheten för vård- och omsorgsanalys att kartlägga kunskapsstyrningen i andra länder gällande sjukdomar eller tillstånd med svagt kunskapsläge
https://www.regeringen.se/regerings...domar-eller-tillstand-med-svagt-kunskapslage/
Press release by the Swedish Covid Association:

Regeringen vill kartlägga postcovidvård i andra länder
https://covidforeningen.se/regeringen-vill-kartlagga-postcovidvard-i-andra-lander/
Auto-translate said:
Government to map post-covid care in other countries

- This is long-awaited and an important step to ensure that the large group of people affected in Sweden get better care. Existing knowledge must be disseminated more effectively. Several countries have come further and we need to look at them,’ says Lisa Norén, specialist doctor and board member of the Swedish Covid Association [...].

- If the Swedish health authorities had been more on their toes, this job would probably already have been done. It is unworthy of Sweden as a nation of knowledge to be so behind the curve when it comes to long-term illness due to covid,’ says Lisa Norén, specialist doctor and board member of the Swedish Covid Association.
 
Almost no ME/CFS patients return to work
"The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher.

https://www.sciencenorway.no/chroni...ost-no-me/cfs-patients-return-to-work/2482762

A new Norwegian study shows that very few ME/CFS patients return to the workforce after being diagnosed.

The findings have sparked debate among both researchers and patients about how ME/CFS is handled in the healthcare system and the workplace.
...
"As long as there's no effective treatment, many remain chronically ill. The study suggests that the help patients have received through the welfare and healthcare systems has had little rehabilitative effect," says Tronstad, adding:

"It's possible that better facilitation would have yielded somewhat more positive results, but we also need new forms of treatment."​

No, it isn't. Quite beating that damn dead horse, it's basically nanodust at this point.

The study: https://www.s4me.info/threads/what-...-encephalomyelitis-2024-kielland-et-al.41193/.
 
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