News from Doctors with ME

Andy said:
Well, Googling the URL given above only returns the page with the picture of Dr Qureshi - it's certainly doesn't seem to be a latest post of Doctors with ME at all.
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No, agreed, I don't think it is meant to be. I suspect as @Trish said, it is probably a mistake. A web writer has maybe accidentally created this orphaned unfinished web page below the main post's page, and overlooked to tidy it up afterwards.
 
Barry said:
So this chap then, as one of the expert commenters:
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I have seen this quote and photo before, but think the only place it could have was the Doctors with ME post on the new guidelines with a number of quotes at the bottom.

Yes, it is still there, see https://doctorswith.me/nice-2021-a-...IEI-uNgyt7TURqryvcPDdWK2dKvPDLcZDfoUP5jRBCCKA

So presumably it was created as a draft for this part of the bigger page, and accidentally got left as a page by itself.

[added - sorry is that what people have already said above.]
 
A doctor who doesn’t believe she is ill
Dr. Hng collapses at work and still doesn’t know she is ill. She doesn’t call for help. She thinks she will be up again in ten minutes…

~~~~~~~

Dr. Hng is a senior trainee in General Internal Medicine and Gastroenterology. She is a medical educator. Has she never heard of ME?

Dr. Hng’s tale…
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https://doctorswith.me/a-doctor-who-doesnt-believe-she-is-ill/

eta:
"One night shift I couldn’t function at all. I could not get up off the chair. All night. A powerful, invisible magnet pulled me flat onto the desk, chair and floor. I could not overcome it."
 
I had read about Dr Hng's experiences described here in her book. I think it's good for doctors to share their stories of getting ME/CFS to help educate other doctors.

I'm puzzled by the last paragraph which seems to read as if DwME are claiming the new NICE guideline, and flu vaccines for pwME in the UK, were achieved by DwME. I'm not aware of DwME as an organisation having a particular role in either of these.
 
"Together, doctors, scientists and health care professionals with lived experience of ME/CFS, and increasingly also Long Covid, are a voice that cannot be ignored. Just months from launch, Doctors with M.E. has already made significant impact and put itself on the world stage. The 2021 NICE guideline on ME/CFS and its success securing annual influenza vaccinations for half a million ME/CFS patients in the UK are some examples."
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Am I right in thinking DwME were not registered stakeholders for the NICE Guideline but added their name to a letter or statement signed by other stakeholders?

The second link goes to this article:

https://doctorswith.me/doctors-with-m-e-driving-advancement-in-frontline-care/

"Founded in 2009, Modality is now the largest National GP Super-partnership in the UK, serving over 450,000 patients across 8 regions."

"As of January 2021, Modality’s medical directors group have agreed that their organisation will be informed that patients with myalgic encephalomyelitis will be consistently offered the seasonal influenza vaccination under the NHS GMS contract. This is due to its longstanding status as a neurological condition, which will be consistently reflected across the organisation."

So this refers to the patients in the Modality practice group.


Are there 500,000 ME/CFS patients in the UK?

Where does it say that all ME patients in the UK will be offered a flu jab?

"...and its success securing annual influenza vaccinations for half a million ME/CFS patients in the UK are some examples."


Who is writing the content for this site?

----------------------------

Edited to add: The content of the paragraph I have quoted has now been edited (see Post #64)
 
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Not wanting to be nitpicky, but the we've seen that picture at the top of the article before, a few years ago. I'm used to the media using rubbish stock photos of models at a desk rubbing their head to represent ME, but I'm disappointed to see a patient organisation use it. I suppose it's because she's a model with a stethoscope.
 
So, the Modality Partnership has "nearly half a million patients" and "is now the largest National GP Super-partnership in the UK, serving over 450,000 patients across 8 regions".

Modality has agreed that "As of January 2021, Modality’s medical directors group have agreed that their organisation will be informed that patients with myalgic encephalomyelitis will be consistently offered the seasonal influenza vaccination under the NHS GMS contract."

But the DwME article here: https://doctorswith.me/a-doctor-who-doesnt-believe-she-is-ill/

states:

"Doctors with M.E. has already made significant impact and put itself on the world stage. The 2021 NICE guideline on ME/CFS and its success securing annual influenza vaccinations for half a million ME/CFS patients in the UK are some examples."

So, who wrote that statement?
Who signed off on it?

Have none of the Directors, Honorary Fellows, member of the various sub committees and members and associates who have paid a subscription fee queried the veracity of that statement?
 
TiredSam said:
Not wanting to be nitpicky, but the we've seen that picture at the top of the article before, a few years ago. I'm used to the media using rubbish stock photos of models at a desk rubbing their head to represent ME, but I'm disappointed to see a patient organisation use it. I suppose it's because she's a model with a stethoscope.
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They could have used a photo of Dr Hng.
 
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